| Literature DB >> 34313553 |
Sarah Oosman1, Christine Nisbet1, Liris Smith1, Sylvia Abonyi1.
Abstract
Aging well is a priority in Canada and globally, particularly for older Indigenous adults experiencing an increased risk of chronic conditions. Little is known about health promotion interventions for older Indigenous adults and most literature is framed within Eurocentric paradigms that are not always relevant to Indigenous populations. This scoping review, guided by Arksey and O'Malley's framework and the PRISMA-ScR Checklist, explores the literature on Indigenous health promoting interventions across the lifespan, with specific attention to Indigenous worldview and the role of older Indigenous adults within these interventions. To ensure respectful and meaningful engagement of Indigenous peoples, articles were included in the Collaborate or Shared Leadership categories on the Continuum of Engagement. Fifteen articles used Indigenous theories and frameworks in the study design. Several articles highlighted engaging Elders as advisors in the design and/or delivery of programs however only five indicated Elders were active participants. In this scoping review, we suggest integrating a high level of community engagement and augmenting intergenerational approaches are essential to promoting health among Indigenous populations and communities. Indigenous older adults are keepers of essential knowledge and must be engaged (as advisors and participants) in intergenerational health promotion interventions to support the health of all generations.Entities:
Keywords: Indigenous health; community engaged; culture-based; health promotion/intervention research; healthy ageing; role of elders
Mesh:
Year: 2021 PMID: 34313553 PMCID: PMC8317950 DOI: 10.1080/22423982.2021.1950391
Source DB: PubMed Journal: Int J Circumpolar Health ISSN: 1239-9736 Impact factor: 1.228
Figure 1.Article distribution by geographic location
Summary of articles in scoping review (n = 46)
| First author, year of publication, location | Study Design, framework, duration, participant ages and n | Evaluation & Outcomes |
|---|---|---|
| Adams, 2014 [ | Healthy Children, Strong Families, 5-year randomised intervention using community-based participatory research (CBPR) and American Indian model of Elders teaching life-skills to the next generation. Qualitative. | Successful interventions included community gardens and orchards, gardening and canning workshops, food-related policies and dog control regulations, an environmentally friendly playground, and providing access to recreational facilities. |
| Arellano, 2018 [ | Promoting Life Skills for Aboriginal Youth (PLAY) Utilisation-Focused Evaluation. 4 core components: after-school program, youth leadership program, sport for development programs, and diabetes prevention program. Qualitative. | Program was flexible and adaptable for individual communities, allowed meaningful youth contributions and leadership skills, and staff was passionate and committed. Recommendations: maintain flexibility, include Indigenous staff, ensure community-centred and owned, improve cultural sensitivity training |
| Bains, 2014 [ | Healthy Foods North, Community based intervention trial using social cognitive theory (SCT) and social ecological models (SEM). Quantitative. | > 70% did not meet recommended daily intake of fibre and vitamins D and E. Intervention: % with intakes < EAR or AI increased pre- to post- for all nutrients except vitamin B12, vitamin D, and zinc. Control: pre- to post-intervention situation of adherence to nutrient recommendations did not change for vitamins B12 and E, iron and zinc; and the proportion of people with fibre intake < AI decreased post-intervention. The intervention increased the overall intake of vitamins A and D, possibly due to promotion of traditional foods in the intervention group. |
| Brown, 2013 [ | Journey Diabetes Prevention Program (DPP). Community-based participatory research (CBPR) approach using Transtheoretical Model-Stages of Change and Social Cognitive Theory; adapted for Native youth. An intervention and comparison group pre- post- design. 9 sessions were taught over 3 months. Quantitative. | 95% of participants said they would recommend the program No significant changes in nutrition according to diet recall data. The Journey DPP group increased their overall nutrition KAB (knowledge, attitudes and beliefs) score by 8%, whereas the comparison group score did not change. Accelerometer data worsened for both groups. Daily self-reported screen time decreased by 0.4 hours in the Journey DPP group and increased by 1.1 hours in the comparison group. Both groups showed small increases in BMI. |
| Bruss, 2010 [ | Project Familia Giya Marianas. Community-based participatory research (CBPR) and quasi-experimental crossover design using curriculum development and ROPES (review, overview, presentation, exercise, and summary). Quantitative. | The study showed program-dependent effects on BMI z-score influenced by baseline BMI and degree of participation. Students in the healthy weight group, whose caregivers did not attend showed increased BMI z-scores, while those whose caregivers attended 5–8 sessions showed no change in BMI z-score. Subjects who were overweight or at risk of overweight and whose caregivers completed 1–4 and 5–8 sessions had a significant drop in BMI z-score, while those whose caregivers did not attend had no significant change. “At baseline, 90% of caregivers thought their children would grow up to have healthy weights. |
| Carlson, 2019 [ | Cardiovascular Disease Medicines Health Literacy Intervention with pre- and post-session data collection using a Kaupapa Māori evaluation (KME). Qualitative. | Participants outlined benefits: gained knowledge of medications and a sense of relief having questions answered. They also talked about medications with family, and shared knowledge with others. Health professionals indicated patients’ improved knowledge made it easier to confirm what medications they were taking and allowed patients to be more involved in self-care. Although, medication knowledge decreased over time. The most effective feature of the intervention was that it supported relationship building to overcome changing health professionals. |
| Carlson, 2016 [ | Cardiovascular Disease Medicines Health Literacy Intervention with pre- and post-session data collection using a Kaupapa Māori evaluation (KME). Qualitative. | The whānau (family group) is important to patients. They have responsibility to their whānau and their health and wellbeing is interwoven with that of their whānau. Connection between patients and health professionals was very important to patients. Patients gained a sense of wellbeing, security, and peace of mind. |
| Crengle, 2018 [ | A multisite pre–post design with multiple measurement points using education sessions with tablets, content adapted for different cultures. | Outcome measures differed across sites. The intervention resulted in significant increases in knowledge that were highest after the first session, still observed in others, and maintained between sessions, indicating participants were able to retain and recall information. |
| Dodge Francis, 2012 [ | Development of the Diabetes Education in Tribal Schools (DETS) based on the Diabetes Prevention Program adapting a curriculum for American Indian children and youth. | Teachers rated all Native American content areas of the DETS curriculum as “strong” or “very strong”. Students demonstrated statistically significant knowledge gains across all content areas and grades. |
| Dreger, 2015a [ | 2nd part of a 2-phase, sequential mixed-method design using a Mindfulness Based Stress Reduction with modifications for Indigenous; framework analytic approach. Qualitative. | Participants attended 6.8 sessions on average. Participation resulted in increased awareness, improved health awareness and well-being, changes to behaviour and attitude, and positive regard for the program. For example, participants became aware of reaching for snacks when bored. Participants reported lower blood glucose, better sleep, more energy, fewer headaches, better control over emotions, less worrying, less stress, improved relaxation, and better self-regard. “After the first session, I realized I was just kinda walking a lot softer on the planet”. Participants did not have a preference for an Indigenous instructor, but instead emphasised the importance of a connection to community and interactions that are kind, open, nonjudgmental, genuine, and trustworthy. |
| Dreger, 2015b [ | Quasi-experimental design using Kabat-Zinn’s Mindfulness Based Stress Reduction with modifications for Indigenous; framework analytic approach. Baseline (within 1 week prior to the start of the intervention), post-intervention (within 1 week of the final session), and follow-up (approx. 2 months after the completion of the program). 8 weekly, 2-h group sessions with home practice of 20–30 mins/day, 5 days/ week. Quantitative. | HbA1c significantly decreased by .43% from baseline to post-intervention. Less life stress at baseline was associated with significantly greater decreases in HbA1c at post-intervention. Significantly greater changes in HbA1c were observed for those living off-reserve than on-reserve both at post-intervention and follow-up. There were significant changes seen over time in mean arterial pressure, yet no significant changes were seen in weight. Significant improvements were seen on the general health and emotional well-being scales. Participants who had diabetes longer saw a larger decrease in symptoms. |
| Englberger, 2011 [ | An island state’s community, inter-agency, participatory programme and awareness campaign using an ethnographic multiple-methodology to develop education and media campaigns; inter-agency community based collaboration, advocacy, participatory activities and social marketing; formation of an NGO. Project duration = 10 years. Mixed methods. | Banana market studies: Inexpensive, nutrient rich banana varietals grown on the island, but not previously consumed by citizens, now sold in up to 8 of 14 markets across the island. KI interviews indicated eating more bananas due to messaging around ‘happiness’ (many youth did not respond to health messaging, but instead ‘happiness’) and promotional film. |
| Fanian, 2015 [ | The Kὸts’iὶhtła (“We Light the Fire”) project; a 5-day creative arts and music workshop developed using their own evaluation framework. Qualitative. | Facilitators thought youth developed new skills, had positive interactions, enjoyed the workshop and found it culturally relevant and used the arts to talk about community concerns (alcohol, cyber bullying, and suicide) and ideas for change. Several of the youth showed a noticeable increase in confidence, going from very shy to confident by the end of the week. |
| Harder, 2015 [ | Community-based participatory approach and interpretive phenomenology and decolonising and critical Indigenous methods. Mixed methods. | Youth noted the following improvements: knowledge of the Carrier language (87%), knowledge of their traditional culture (96%), connection to Elders (92%), opinion of themselves (90%). Risk taking behaviours decreased: desire to drink alcohol (55%) and desire to take illegal drugs (58%). Acquiring new culturally relevant skills and making interpersonal connections resulted in personal growth, self-awareness, positive development, and identity. |
| Hibbert, 2018 [ | This project used a community-based participatory approach and adapted version of Donnon and Hammond’s (2007a) Youth Resiliency: Assessing Developmental Strengths Questionnaire. Quantitative. | Significant positive changes were observed in both age groups: self-esteem, drug resistance, planning and decision-making, risk factor statements, and external family support. Negative changes were observed in reported sense of empowerment and safety, external support from peers, learning and achievement, and self-actualisation. |
| Ing, 2018 [ | Partnership for Improving Lifestyle Intervention (PILI) Lifestyle Program (PLP) at work (PILI@Work) using behavioural change principles from the social cognitive theory and motivational interviewing. PILI@Work = adaptation of PLP to worksites with many NHOPI employees. 3-month weight loss phase: 4 lessons every other week for 2 months. 9-month weight loss maintenance phase: 7 monthly lessons. Quantitative. | Significant increase in systolic and diastolic blood pressure (bp), and decrease in exercise frequency and a more internal locus of weight control. 60% successfully maintained their weight loss at 12 months. The number of lessons attended in Phase 1 was a significant predictor of % weight loss at 12 months. Systolic bp at baseline also predicted % weight loss at 12 months. No difference was observed between delivery methods (face-to-face vs. DVD) on weight loss maintenance. |
| Janssen, 2014 [ | Te Hauora O Ngāti Rārua programme using a Kaupapa Māori approach. One-on-one education and case management, a 6-week group education course, and an on-going diabetes support group. An embedded case study evaluation. Mixed methods. | Co-morbidities affected clients’ diabetes self-management. All clients showed improved knowledge and awareness related to diabetes and how to make personal changes while 4 clients saw short term improvements in health outcomes, but did not maintain them when support decreased. Health literacy improvements included better knowledge about food and exercise and maintaining overall wellness. |
| Jeffries-Stokes, 2015 [ | Western Desert Kidney Health Project used community arts centred on community consultation, participation and dialogue. Qualitative. | Art was an important way to promote health and joy in communities. Only positive feedback from the community was received. Communities use the health information, knowledge and support provided to advocate and achieve change in their communities: all 5 towns (previously 3) now have a grocery store that focuses on fresh food, 2 towns and 2 communities also planted fruit trees in public gardens, and all remote community schools and most town schools have new fruit and vegetable gardens. |
| Kaholokula, 2012 [ | Partnership to Improve Lifestyle Interventions (PILI) ‘Ohana Project; an adaptation of the Diabetes Prevention Program Lifestyle Intervention (DPP-LI). A family and community weight loss maintenance program using a community-based participatory approach. PILI Lifestyle Program (PLP), 6 monthly sessions, 1.5 hrs each in groups (6–10 people); and standard behavioural weight loss maintenance program (SBP), 6 monthly phone call follow-ups 15–30 mins each. Quantitative. | Retention was 68% in PLP and 71% in SBP. Older participants completed more sessions than younger participants. Statistically significant weight loss maintenance was observed in both interventions. The PLP group was 2.5 times more likely to maintain pre-intervention weight than SBP. Among the 76 of 144 participants who completed ≥3 of 6 lessons, PLP participants were 5.1 times more likely to maintain pre-intervention weight compared to the SBP group. |
| Kaholokula, 2014 [ | Translated Diabetes Prevention Program Lifestyle Intervention (DPP-LI) using a fully engaged a community-based participatory approach and a pre- post-intervention evaluation. Lessons were 1–1.5hrs, delivered in groups (10–20 people) with the 1st 4 lessons delivered weekly and the 2nd 4 delivered every other week for 8 weeks. Quantitative. | Significant improvements: weight loss (in comparison to pilot testing), systolic and diastolic BP, physical functioning and activity level, and dietary fat intake. However, results differed across the different types of community-based organisations (CBOs) where delivered. One CBO was in one neighbourhood so more likely to form community walking/fitness/dance groups due to social networks. They also demonstrated one of the highest mean weight losses and they were the only CBO that yielded significant improvements on all clinical and behavioural measures. |
| Kakekagumick, 2013 [ | The Sandy Lake Health and Diabetes Project (SLHDP); a modification of a curriculum developed by Kahnawake Mohawk community in Quebec and the CATCH curriculum; a model of culturally appropriate participatory research. Quantitative. | The home visit program was deemed unsustainable (lack of funding, labour-intensive, and lack of community interest) and discontinued after the 1-year trial period. The school program evaluation indicated improvements in diet intention, diet preference, and knowledge of curriculum, diet self-efficacy, dietary fibre intake, and screen time. The 2nd school evaluation showed significant improvements in self-efficacy and knowledge of health, nutrition, and screen time. However, these did not translate into direct physical activity improvements. |
| Kaufer, 2010 [ | Participatory, food-based approach. Quantitative. | Average daily energy and carbohydrate intake decreased significantly while protein and fat did not change. Average BCE intake increased significantly. Consumption of giant swamp taro, all banana types, local vegetables, all fruit, local drinks, snacks, chicken eggs, liver, and imported meat increased significantly. The frequency of sugar consumption (from imported foods such as well as sugar added to local foods or drinks) decreased significantly. However, consumption of imported drinks with sugar increased significantly. Diet diversity significantly increased. Awareness of a variety of community groups was > 80% with ≥ 50% of households having participated. Participants learned the connection of local food to health, of adding home-grown vegetables to meals, of physical activity and health, and the transfer of information from youth to adults. |
| Kolahdooz, 2014 [ | A community-based, multi-institutional nutrition intervention program using a quasi-experimental intervention evaluation with a pre- post- design. Intervention occurred at the community level. Quantitative. | Consumption of de-promoted foods and the utilisation of unhealthy cooking decreased. The intervention group reduced their intake of de-promoted high-fat meats, high-fat dairy, refined grain products, and unhealthy drinks by more than the control group. There was a reduction in energy, protein, and carbohydrate intake, and overall Body Mass Index (BMI) as well as an increase in vitamin A and D intake. |
| Mau, 2010 [ | Used CBPR and a new conceptual model of weight loss based on focus groups and key informant interviews using social action theory of behaviour change, using a thematic data analysis approach to culturally adapt the DPP-LI. Qualitative for adaptation of program. Quantitative to evaluate intervention. | All clinical and behavioural measures (weight, BMI, bp, 6-min walk test, dietary fat intake, and physical activity) significantly improved at the 12-week follow-up. Participants who completed all 8 lessons lost significantly more weight than those who completed <8 lessons. |
| McShane, 2013 [ | A community-based participatory approach using oral and visual media in a CD-Rom presented by an Inuk Elder in Inuktitut. Pre- post-design used to evaluate expectations vs. delivery. Follow-up was 3 months following the intervention. Mixed methods. | Results indicated overall satisfaction with the intervention and many were likely to recommend the CD-Rom to others. Following the intervention, people were more likely to think the CD-Rom was similar to an in-person conversation. With a facilitator present, feedback indicated the tool was easy to navigate. Community members thought the technology was a practical and cost-effective way to connect those in urban areas with Elders in the north. Participants requested more information on health promotion topics, particularly around parenting young children. |
| Mead, 2013 [ | A multilevel, multi-institutional nutritional and physical activity intervention developed using formative research, a community based participatory approach, and behavioural change strategy drawn from social cognitive theory and social ecological models. A quasi-experimental pre- post-evaluation. Quantitative. | The average frequency of unhealthy food acquisition significantly decreased in the intervention compared to comparison groups. The intervention did not impact BMI, although results did differ by weight. |
| Mendenhall, 2010 [ | The Family Education Diabetes Series (FEDS) using CBPR and The Citizen Health Care Model. Baseline, 3 and 6 months. Quantitative. | Blood pressure (systolic and diastolic) and HbA1c significantly decreased from baseline to 3-month follow-up, although they did not improve further at the 6-month follow-up. Average weight loss significantly improved at the 6-month follow-up. |
| Mia, 2017 [ | The Cultural, Social and Emotional Wellbeing program using Participatory Action Research and conceptual framework by Aboriginal and non-Aboriginal psychologists as a decolonising strategy to promote wellbeing and an Aboriginal Knowledge Framework. Mixed methods. | Allowed to more positively and constructively focus on their own needs resulting in individual healing, and their family’s needs, which strengthened both family and community relationships. Overall, participants are now more confident, empowered, have a stronger sense of cultural identity and pride, and greater appreciation for health and wellbeing. |
| Micikas, 2015 [ | Development of Caminemos Juntos (Let’s Walk Together) using Stages of Change Theory, and Health Belief Model. Weekly diabetes club meetings in groups of 15–20 and weekly home visits and preconsults in clinic for a duration of 7 months. Quantitative. | Barriers to insulin use in this setting include lack of access, cost, lack of refrigeration, and insufficient nursing experience in managing complications with insulin. Knowledge of recommended levels of HbA1c and fasting glucose, and that food increases blood glucose significantly increased at 4-month follow-up as did actual mean HbA1c levels. No significant change in mean BMI was observed. The health beliefs and practices survey did not produce significant results. |
| Mills, 2017 [ | The Work It Out program developed their own conceptual framework and a quasi-experimental, pre-post-test design. ≥2 sessions (45 mins ‘yarning’ and 1 hr exercise) per week for 12 weeks. Quantitative. | 6MWT significantly increased at follow-up. Those in the extremely obese group (BMI) significantly reduced their weight. Blood pressure (bp) significantly increased in those with normal bp at baseline. Those who had high systolic bp at baseline showed significant decreases at follow-up. After adjusting for baseline diastolic bp and age, those with one cardiovascular condition had a greater average decrease in diastolic bp at follow-up than those without a cardiovascular condition. |
| Murdoch-Flowers, 2019 [ | Kahnawake Schools Diabetes Prevention Project (KSDPP). Using a CBPR approach, interventions developed by community member/traditional healer/traditional knowledge holder using a holistic Haudenosaunee perspective. Naturalistic and interpretative inquiry and grounded theory. Qualitative. | Participants reported improvements to perceived mental, physical, spiritual and social health through activities such as cooking, physical activity (strength, balance, flexibility, weight-loss, and pain relief), stress relief, learning Mohawk spirituality, and making social connections. |
| Nagel, 2009 [ | RCT using a participatory action research model with framework to guide practitioners in culturally adapted treatment. Baseline, 6, 12, and 18 months. 2, one-hour sessions 2–6 weeks apart. Mixed methods. | 3 patients withdrew consent and 2 committed suicide during the 18 months. The intervention improved mental health ratings using standardised tool Greater improvements were seen in the motivational care planning group, particularly around well-being, life skills, and alcohol dependence, compared to the treatment as usual group, and improvements were sustained over time. |
| Pakseresht, 2015 [ | Healthy Foods North, designed using CBPR and evaluated using a quasi-experimental study design. Duration 14 months. Quantitative. | Energy intake decreased while intake of vitamins A and D increased, the primary source of which was traditional foods, which were promoted in the intervention. Consumption of traditional foods increased by 21% in the intervention group compared to 3% in the control group. |
| Payne, 2013 [ | A holistic style and a pragmatic method, allowed participants a key role in their self-management plan. 8 weekly sessions. Evaluation used a pre- post-design. Mixed methods. | Technical knowledge of diabetes management saw slight improvements. Improvements were made regarding diet and exercise, and physical activity was seen as an important part of an integrated self-management plan. Women’s awareness increased around the symptoms and impact of depression and the intervention fostered open communication about this illness among them. At the time of the report, the group had continued to connect for > 2 years. |
| Rolleston, 2017 [ | Used a Kaupapa Māori methodology to develop a 12-week exercise program, including attending clinic 3x/week. Aerobic-only program for 1st 6 weeks and aerobic and resistance training for next 6 weeks. Mixed methods. | SBP, Waist and hip circumference significantly decreased while HDL-C increased during the 12-week programme. Quality of life also improved. |
| Seear, 2019 [ | ‘Maboo wirriya, be healthy’, a diabetes prevention program was adapted locally and led by community. 8 weekly sessions, 1.5 hrs each for 2–3 months. Mixed methods. | Participants reported gaining new knowledge and changing their behaviours, particularly those around food shopping and portioning and soft drink intake. |
| Sinclair, 2013 [ | Partners in Care curriculum was designed and evaluated with African Americans and Latinos and then adapted for Indigenous using social cognitive theory. This study used a two-arm RCT with follow-up at 3 months. Quantitative. | Significant changes were observed from baseline to 3 months between the intervention and control groups for HbA1c and understanding and performance of diabetes self-care. When analysed separately, significant differences were noted in the mean baseline diabetes-related distress score for Filipinos compared to Native Hawaiians and other Pacific Islanders. |
| Smylie, 2018 [ | International Assessment of Literacy Skills (IALS): a single arm pre-post trial with multiple measurement points. 3 education sessions. The 2nd session after 1 week and the 3rd session after another 4 weeks. Quantitative. | Unadjusted mean knowledge scores of all 4 medications were significantly higher after attending 3 education sessions. Improvements in health literacy decreased the likelihood of risk of medication error with participants having near-perfect medication knowledge scores following the intervention and improved the likelihood of them sharing CVD knowledge. 91% referred to the program medication booklet and 45% used their customised pill card. |
| Stewart, 2015 [ | This multisite, interdisciplinary study used a multimethod participatory research design for psychosocial interventions. | Loneliness mean scores decreased significantly at post-test. Parents thought the intervention improved awareness of asthma in their community. Participants learned from others in the support group. Manitoba: Parents thought the intervention was interactive, engaging, cultural, and community driven and they appreciated that information was presented within the context of traditional practices |
| Teufel-Shone, 2014 [ | Youth Wellness Program, a 2-year intervention 2x/week 45–60 mins each. Quantitative. | Following the intervention, more participants were overweight and obese, had normal fasting blood glucose, had prediabetes and fewer had diabetes. Girls showed significant improvements in curl-ups, push-ups, and the PACER (Progressive Aerobic Cardiovascular Endurance Run) while boys had significant improvements in push-ups. |
| Tomayko, 2016 [ | Healthy Children, Strong Families, an American Indian model of Elders teaching life-skills to the next generation developed using a CBPR process. Mixed methods. | The method of toolkit delivery had no effect. Overall, mean BMI percentiles decreased in overweight and obese children post-intervention and the weight trajectory of adult participants improved compared to the control group. Consumption of vegetables and fruit significantly increased among children and screen time decreased in children and adults despite no changes in activity or sedentary time resulted from accelerometry data. Time spent together as a family increased, particularly around family meals and reading together with children often motivating families. |
| Tomayko, 2019 [ | Healthy Children, Strong Families 2, an American Indian model of Elders teaching life-skills to the next generation, using a randomised controlled trial with modified crossover design to an obesity prevention intervention (Wellness Journey) or a control group on child safety (Safety Journey). Baseline and year 1. Mixed methods. | Adults and children in the Wellness Journey group had a greater improvement in healthy diet pattern post-intervention compared to the Safety Journey group. Adults in the Wellness group had a significant increase in servings/wk of vegetables and fruit and 15-min periods of moderate to vigorous physical activity compared to those in the Safety group. No differences resulted between either intervention group for adult or child BMI. Adults in the Wellness group had significant increases in readiness to change when it came to physical activity, vegetable and fruit consumption, screen time, and sleep compared with the Safety group. Families were highly satisfied with the intervention and spend more time together reading and doing activities. Children were excited to receive materials by mail, which facilitated their participation and allowed them to work at their own pace. Receiving a book with each lesson was particularly appreciated. Many families indicated wanting to connect with other families in a “real world” setting”. |
| Townsend, 2016 [ | PILI@Work, adapted Diabetes Prevention Program DPP-LI based on social cognitive theory. 8 interactive 1-hr lessons over 12 weeks including 10–20 people per group. Quantitative. | Participants lost 1.2 kg on average and had significant improvements in fat intake, eating self-efficacy, and systolic and diastolic blood pressure. For each kg of weight lost, risk of T2DM reduced by 13%. Results did not indicate any differences across ethnic groups, although results did vary by worksite. |
| Tracey, 2013 [ | The Goldfields Kidney Disease Nursing Management Program (GKDNMP) used a framework developed by the Western Australia Renal Disease Health Network. Delivery of renal clinics, nurse clinics, using videoconferencing when necessary. Quantitative. | The program resulted in improved access and delivery of culturally sensitive renal health care services. The community renal nurse role allowed for more consultations and outpatient renal clinics and decreased the number of transfers needed. This was possible due to engagement with communities to identify Aboriginal people who may be unable to attend clinics and require extra support (transport and accommodation) and assisting them. Improvements to health service delivery has been demonstrated by requests from Aboriginal communities for more clinics and visits, and improved attendance at clinic and dialysis. |
| Wakani, 2013 [ | This project followed Turton’s (1997) health world view framework using participatory research. Piloted a Bingo intervention on one night. Qualitative. | The intervention was reported to be fun, informative, and educational. Participants suggested further hands on activities, expanded community outreach, and providing pamphlets on diabetes. At the time of this report, the intervention was scheduled monthly at the clinic. As a result of this project, the “Health and Diabetes Workshop Series” was developed and was to be delivered 4 times/year at the clinic. |
| Ziabakhsh, 2016 [ | The Seven Sisters project was informed by Indigenous healing perspectives, transcultural nursing, and feminist theories of health and illness. It was piloted as a gender- and culturally responsive model to promote activities for heart-health using a holistic approach. A 2-hr weekly women only group over 8 weeks. Women attended an average of 7 sessions. Mixed methods. | Following the intervention, women reported healthier eating including consuming more vegetables and fruit. Some women improved their level of participation in fitness activities. All were more mindful of the importance of activity for physical and mental wellness and many changed their emotional health. One of four smokers decided to try to quit. The integration of Indigenous culture was valued by participants as was the emphasis on relationships and promoting positive messages around self-care. The talking Circle was identified as the best part of the group experience and participants felt safer sharing and discussing sensitive issues in a women-only group. Participants did not like being weighed, wanted the intervention to last longer, and thought there was too much paperwork/forms. |
Indigenous and community engagement details of articles (n = 46)
| First author, Year of publication | Location, Ethnicity | Level of Community Engagement | Framework | Health priority | Intervention Activities & Elements | Intergenerational |
|---|---|---|---|---|---|---|
| Adams, 2014 [ | USA, American Indians | Shared Leadership | Indigenous: AI model of Elders teaching life-skills to younger generation and reinforce cultural values of family and traditional food and activity | Obesity | Mixed: healthy eating, physical activity | Not specified |
| Arellano, 2018 [ | Canada, Indigenous (Ontario, Manitoba, British Columbia, Alberta) | Shared Leadership | Western: Utilisation-Focused Evaluation | Diabetes | Mixed (diabetes prevention, leadership, physical activity, nutrition, health and wellness) | Advisor: design and delivery |
| Bains, 2014 [ | Canada, Inuit and Inuvialuit (Nunavut and Northwest Territories) | Collaborate | Western: Social Cognitive Theory and Social Ecological Models | Chronic disease | Healthy Eating | Not specified |
| Brown, 2013 [ | USA, Northern Plains Indians (Montana) | Collaborate | Adaptation: Transtheoretical Model-Stages of Change and Social Cognitive Theory, adapted for Indigenous youth | Diabetes | Mixed (Diabetes prevention, healthy eating, physical activity) | Advisors: delivery only |
| Bruss, 2010 [ | Other Oceania (Commonwealth of the Northern Mariana Islands) | Collaborate | Western: curriculum development and ROPES (Review, Overview, Presentation, Exercise, Summary) | Obesity | Mixed (physical activity, healthy eating, self-esteem) | Not specified |
| Carlson, 2019 [ | New Zealand, Māori | Collaborate | Indigenous: Kaupapa Māori | Cardiovascular Disease | Health Literacy | Advisors: design only |
| Carlson, 2016 [ | New Zealand, Māori | Collaborate | Indigenous: Kaupapa Māori | Cardiovascular Disease | Health Literacy | Not specified |
| Crengle, 2018 [ | International (Australia, Canada, New Zealand) | Collaborate | Adaptation: education sessions with tablets, content adapted for different cultures | Cardiovascular Disease | Health Literacy | Not specified |
| Dodge Francis, 2012 [ | USA, American Indians/Alaska Natives | Collaborate | Adaptation: curriculum for AI/AN children and youth | Diabetes | Mixed (Knowledge of health and diabetes; school-based) | Not specified |
| Dreger, 2015a [ | Canada, First Nations and Métis (Manitoba) | Collaborate | Adaptation: mindfulness practices based on Kabat-Zinn’s Mindfulness Based Stress Reduction (MBSR) guidelines with modifications to tailor the program to Aboriginal peoples | Diabetes | Quality of Life | Advisors: design and delivery |
| Dreger, 2015b [ | Canada, First Nations and Métis (Manitoba) | Collaborate | Adaptation: mindfulness practices based on Kabat-Zinn’s Mindfulness Based Stress Reduction (MBSR) guidelines with modifications to tailor the program to Aboriginal peoples | Diabetes | Quality of Life | Advisors: design and delivery |
| Englberger, 2011 [ | Micronesia, Pohnpei | Shared Leadership | Western: education and media campaigns | Obesity | Healthy Eating | Not specified |
| Fanian, 2015 [ | Canada, First Nations (Behchokὸ, Northwest Territories) | Shared Leadership | Indigenous: developed their own framework | Mental Health | Empowerment and Resiliency: healthy minds, bodies and spirits | Advisors: design only |
| Harder, 2015 [ | Canada, First Nations (Carrier Sekani communities) | Collaborate | Adaptation: both interpretive phenomenology and decolonising and critical Indigenous methodologies | Mental Health | Mixed: traditional food gathering, language, survival techniques, clan affiliation, the bah’lats system; connection to Elders, opinion of self, reducing alcohol and drugs | Advisors: design and participative implementation |
| Hibbert, 2018 [ | Canada, Métis (Alberta) | Collaborate | Adaptation: Donnon and Hammond’s Youth Resiliency: Assessing Developmental Strengths Questionnaire (YR:ADS) | Mental Health | Life skills and Resiliency: self-esteem, communication, neighbourliness, kinship, grief and loss, and hopes and dreams | Advisors: design only |
| Ing, 2018 [ | USA, Native Hawaiian and other Pacific Islanders (NHOPI) (Hawaii’) | Collaborate | Adaptation: behavioural change principles from Social Cognitive Theory and motivational interviewing, adapted for Native Hawaiian and Other Pacific Islanders | Diabetes | Mixed: healthy eating, physical activity, weight loss, self-efficacy, social support, locus of weight control | Not specified |
| Janssen, 2014 [ | New Zealand, Māori | Collaborate | Indigenous: Kaupapa Māori | Diabetes | Mixed: healthy eating and physical activity | Participants |
| Jeffries-Stokes, 2015 [ | Australia | Shared Leadership | Indigenous: Indigenous methods through community consultation, but not specified | Diabetes | Mixed: community arts for knowledge, capacity building, stress | Advisors: design only |
| Kaholokula, 2012 [ | USA, Native Hawaiian and other Pacific Islanders (Hawaii’) | Collaborate | Adaptation: The Diabetes Prevention Program, adapted for Native Hawaiian and other Pacific Islanders | Diabetes | Mixed: weight loss, healthy eating, physical activity, stress control | Not specified |
| Kaholokula, 2014 [ | USA, Native Hawaiian and other Pacific Islanders (Hawaii’) | Collaborate | Adaptation: The Diabetes Prevention Program, adapted for Native Hawaiian and other Pacific Islanders | Diabetes | Mixed: weight loss, healthy eating, physical activity, stress control | Not specified |
| Kakekagumick, 2013 [ | Canada, First Nations (Sandy Lake, Ontario) | Shared Leadership | Adaptation: modifications to a curriculum already developed by Kahnawake Mohawk community in Quebec | Diabetes | Mixed: healthy eating and physical activity (includes school curriculum) | Advisors: design only |
| Kaufer, 2010 [ | Micronesia, Pohnpei | Shared Leadership | Western: 24hour recalls and food frequency questionnaires | Chronic disease | Healthy Eating | Not specified |
| Kolahdooz, 2014 [ | Canada, Inuit and Inuvialuit (Kitikmeot region in Nunavut and Beaufort Delta region in the Northwest Territories) | Collaborate | Western: food frequency questionnaires | Chronic disease | Healthy Eating | Advisors: design only |
| Mau, 2010 [ | USA, Native Hawaiian and other Pacific Islanders (Hawaii’) | Collaborate | Adaptation: social action theory of behaviour change | Diabetes | Mixed: physical activity, healthy eating, weight loss | Advisors: design only |
| McShane, 2013 [ | Canada, Inuit | Collaborate | Adaptation: CD-Rom developed with an Inuk Elder in Inuktitut and in collaboration with a Tungasuvvingat Inuit Family Health Team using oral and visual media to match Inuit learning styles | Chronic disease | Pregnancy and family health | Advisors: design and delivery |
| Mead, 2013 [ | Canada, Inuit and Inuvialuit | Collaborate | Western: Social Cognitive Theory and Social Ecological Models | Chronic disease | Mixed: healthy eating, physical activity. | Not specified |
| Mendenhall, 2010 [ | USA, American Indians (Minneapolis and St. Paul, Minnesota) | Shared Leadership | Western: designed purposefully as a CBPR method for medical and mental health professionals | Diabetes | Mixed: Healthy eating, healthy weight, wellness. | Advisors: design and delivery |
| Mia, 2017 [ | Australia, Aboriginal and Torres Strait Islanders (Queensland) | Collaborate | Indigenous: Social and emotional wellbeing conceptual framework | Mental Health | Empowerment and Resiliency | Participants |
| Micikas, 2015 [ | Guatemala, Mayan (San Juan and San Pablo La Laguna, Sololá) | Shared Leadership | Western: Stages of Change Theory and Health Belief Model | Diabetes | Mixed: physical activity and social support | Not specified |
| Mills, 2017 [ | Australia, Aboriginal and Torres Strait Islanders (South-east Queensland) | Collaborate | Indigenous: designed own framework underpinned by conceptual framework based on the principle of Aboriginal and Torres Strait Islander community control | Cardiovascular Disease | Physical activity | Not specified |
| Murdoch-Flowers, 2019 [ | Canada, First Nations-Kanien’keha:ka (Mohawk), Montreal | Shared Leadership | Indigenous: designed own by a lay health worker from Kahnawake who designed interventions to address health holistically from a Haudenosaunee perspective | Diabetes | Mixed: physical activity, healthy eating, wellbeing. | Advisors: design only |
| Nagel, 2009 [ | Australia, Aboriginal and Torres Strait Islanders (Top End of the North Territory) | Collaborate | Adaptation: framework not specified, but states culturally adapted | Mental Health | Mixed: well-being, life skills, stress, family support, substance dependence, self-management | Not specified |
| Pakseresht, 2015 [ | Canada, Inuit and Inuvialuit | Collaborate | Western: food frequency questionnaires | Chronic disease | Healthy Eating | Not specified |
| Payne, 2013 [ | Australia, Aboriginal and Torres Strait Islanders-Nywaigi (Queensland) | Shared Leadership | Indigenous: unclear, self-management by participants themselves | Diabetes | Mixed: Self-management, knowledge, health, change, mental health | Participants |
| Rolleston, 2017 [ | New Zealand, Māori | Collaborate | Indigenous: Kaupapa Māori | Cardiovascular Disease | Mixed: healthy eating, physical activity, QOL, stress management | Not specified |
| Seear, 2019 [ | Australia, Aboriginal and Torres Strait Islanders (Derby) | Collaborate | Adaptation: a locally adapted community-led diabetes prevention program | Diabetes | Mixed: healthy eating, physical activity, stress | Not specified |
| Sinclair, 2013 [ | USA, Native Hawaiian and Pacific People (Hawaii’) | Collaborate | Adaptation: Social Cognitive Theory; The Partners in Care curriculum (originally designed and evaluated with African Americans and Latinxs was adapted for this intervention | Diabetes | Mixed: diabetes self-care (meds, glucose, healthy eating, physical activity, foot checks, smoking) | Not specified |
| Smylie, 2018 [ | Canada, Indigenous (Brantford and Hamilton, Ontario) | Collaborate | Western: International Assessment of Literacy Skills Scores | Cardiovascular Disease | Health literacy | Not specified |
| Stewart, 2015 [ | Canada, First Nations and Métis (Alberta, Manitoba-Dakota Tipi tribe, Nova Scotia-Mi’kmaq) | Collaborate | Adaptation: unclear, but used Indigenous ceremonies and activities | Asthma | Mixed: asthma education; traditional medicine, support | Advisors: design and delivery |
| Teufel-Shone, 2014 [ | USA, Hualapai Indian Community (Arizona) | Shared Leadership | Adaptation: not specified but indicated use of measures that would be appreciate by tribal and research communities and locally acceptable | Diabetes | Physical activity (school-based) | Not specified |
| Tomayko, 2016 [ | USA, American Indians (Wisconsin) | Shared Leadership | Indigenous: AI model of Elders teaching life-skills to younger generation and reinforce cultural values of family and traditional food and activity | Obesity | Mixed: healthy eating, physical activity | Advisors: design only |
| Tomayko, 2019 [ | USA, American Indians (Wisconsin) | Collaborate | Indigenous: AI model of Elders teaching life-skills to younger generation and reinforce cultural values of family and traditional food and activity | Obesity | Mixed: healthy eating, physical activity, stress, sleep | Advisors: design only |
| Townsend, 2016 [ | USA, Native Hawaiians, other Pacific Islanders or Filipinos (Hawaii’) | Collaborate | Adaptation: Social Cognitive Theory with adaptations based on a community needs assessment | Diabetes | Mixed: weight loss, healthy eating, physical activity, stress control | Not specified |
| Tracey, 2013 [ | Australia, Aboriginal (Goldfields region of Western Australia) | Collaborate | Western: used a framework developed by the Western Australia Renal Disease Health Network | Renal Care | Mixed: medication management, healthy eating | Advisors: design and delivery |
| Wakani, 2013 [ | Canada, First Nations (Algonquin of Rapid Lake) | Shared Leadership | Indigenous: Turton’s health world view framework | Diabetes | Mixed: diabetes management | Advisors: design only |
| Ziabakhsh, 2016 [ | Canada, First Nations (Coast Salish, Haida, and Cree) | Collaborate | Indigenous: informed by Indigenous healing perspectives, transcultural nursing, and feminist theories of health and illness | Cardiovascular Disease | Quality of Life | Participants |
Figure 2.Canadian article distribution by Indigenous groups
Figure 3.Article distribution by health priority
Figure 4.Article distribution by study intervention activities and elements