Literature DB >> 34308263

The Work of Workplace Disclosure: Invisible Chronic Conditions and Opportunities for Design.

Kausalya Ganesh1, Amanda Lazar1.   

Abstract

Health disclosure at work is complicated for people with invisible chronic conditions. Due to the lack of visible symptoms, invisible conditions affect the work life of people in ways that are not obvious to others. This study examines how people disclose and conceal their conditions in the workplace and opens the design space for this topic. In the first phase, we analyzed posts on two subreddit forums, r/migraine and r/fibromyalgia, and found a range of strategies that individuals use to disclose or conceal their conditions. In the second phase, we created five technological design concepts based on these strategies that were shown to eight people with migraines or fibromyalgia in semi-structured interviews. Based on these phases, we contribute understandings of disclosure and concealment of invisible conditions in the workplace for future research, such as potential areas for intervention ranging from individual to societal level efforts, as well as the potential and limitations of relying on empathy from others.

Entities:  

Keywords:  Accessibility; Chronic conditions; Disability; Empathy; Fibromyalgia; Invisible conditions; Migraine; Workplace

Year:  2021        PMID: 34308263      PMCID: PMC8297988          DOI: 10.1145/3449147

Source DB:  PubMed          Journal:  Proc ACM Hum Comput Interact


  20 in total

1.  Creating meaning in fibromyalgia syndrome.

Authors:  Sue Madden; Julius Sim
Journal:  Soc Sci Med       Date:  2006-09-01       Impact factor: 4.634

2.  Preventing work disability among employees with rheumatoid arthritis: what medical professionals can learn from the patients' perspective.

Authors:  Inge Varekamp; Joke A Haafkens; Sarah I Detaille; Paul P Tak; Frank J H van Dijk
Journal:  Arthritis Rheum       Date:  2005-12-15

3.  Automatic detection of pain intensity.

Authors:  Zakia Hammal; Jeffrey F Cohn
Journal:  Proc ACM Int Conf Multimodal Interact       Date:  2012-10

4.  Stigma of visible and invisible chronic conditions.

Authors:  G Joachim; S Acorn
Journal:  J Adv Nurs       Date:  2000-07       Impact factor: 3.187

Review 5.  The diagnosis and treatment of chronic migraine.

Authors:  Mark W Weatherall
Journal:  Ther Adv Chronic Dis       Date:  2015-05       Impact factor: 5.091

6.  Illness experience in fibromyalgia syndrome: a metasynthesis of qualitative studies.

Authors:  Julius Sim; Sue Madden
Journal:  Soc Sci Med       Date:  2008-04-20       Impact factor: 4.634

7.  "Not all my friends need to know": a qualitative study of teenage patients, privacy, and social media.

Authors:  Maja van der Velden; Khaled El Emam
Journal:  J Am Med Inform Assoc       Date:  2012-07-06       Impact factor: 4.497

8.  Migraine--more than a headache: women's experiences of living with migraine.

Authors:  Stina Rutberg; Kerstin Öhrling
Journal:  Disabil Rehabil       Date:  2011-10-10       Impact factor: 3.033

9.  The Rights of Persons with Disabilities Act, 2016: Does it address the needs of the persons with mental illness and their families.

Authors:  Choudhary Laxmi Narayan; Thomas John
Journal:  Indian J Psychiatry       Date:  2017 Jan-Mar       Impact factor: 1.759

10.  To Disclose or Not to Disclose: A Multi-stakeholder Focus Group Study on Mental Health Issues in the Work Environment.

Authors:  E P M Brouwers; M C W Joosen; C van Zelst; J Van Weeghel
Journal:  J Occup Rehabil       Date:  2020-03
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  2 in total

Review 1.  Unravelling the Complexities of Workplace Disclosure Among Persons with Non-Visible Disabilities and Illnesses: A Qualitative Meta-Ethnography.

Authors:  Vanessa Tomas; Hiba Ahmed; Sally Lindsay
Journal:  J Occup Rehabil       Date:  2022-01-17

Review 2.  Migraine in the workplace.

Authors:  Olivia Begasse de Dhaem; Fumihiko Sakai
Journal:  eNeurologicalSci       Date:  2022-06-06
  2 in total

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