Tracy Haitana1, Suzanne Pitama1, Donna Cormack2, Mau Te Rangimarie Clark1, Cameron Lacey1. 1. Māori Indigenous Health Institute (MIHI), Department of the Dean University of Otago, Christchurch, Christchurch, New Zealand. 2. Te Rōpū Rangahau Hauora a Eru Pōmare, Department of Public Health, University of Otago, Wellington, Wellington, New Zealand.
Abstract
OBJECTIVE: Research designed to increase knowledge about Māori with bipolar disorder is required to understand how health services support wellbeing and respond to identified levels of community need. This paper synthesises the expert critique of Māori patients with bipolar disorder and their whānau regarding the nuances of cultural competence and safety in clinical encounters with the health system. METHODS: A qualitative Kaupapa Māori Research methodology was used. A total of 24 semi-structured interviews were completed with Māori patients with bipolar disorder and members of their whānau. Structural, descriptive and pattern coding was completed using an adapted cultural competence framework to organise and analyse the data. RESULTS: Three themes were evident from participants' critique of clinical components of the health system. Theme 1 established that the efficacy of clinical care for bipolar disorder was dependent on Māori patients and whānau having clear pathways through care, and being able to access timely, consistent care from clinically and culturally competent staff. Theme 2 identified the influence of clinical culture in bipolar disorder services, embedded into care settings, expressed by staff, affecting the safety of clinical care for Māori. Theme 3 focused on the need for bipolar disorder services to prioritise clinical work with whānau, equip staff with skills to facilitate engagement and tailor care with resources to enhance whānau as well as patient wellbeing. CONCLUSION: The standard of clinical care for Māori with bipolar disorder in New Zealand does not align with practice guidelines, Māori models of health or clinical frameworks designed to inform treatment and address systemic barriers to equity. Research also needs to explore the role of structural and organisational features of the health system on Māori patient and whānau experiences of care.
OBJECTIVE: Research designed to increase knowledge about Māori with bipolar disorder is required to understand how health services support wellbeing and respond to identified levels of community need. This paper synthesises the expert critique of Māori patients with bipolar disorder and their whānau regarding the nuances of cultural competence and safety in clinical encounters with the health system. METHODS: A qualitative Kaupapa Māori Research methodology was used. A total of 24 semi-structured interviews were completed with Māori patients with bipolar disorder and members of their whānau. Structural, descriptive and pattern coding was completed using an adapted cultural competence framework to organise and analyse the data. RESULTS: Three themes were evident from participants' critique of clinical components of the health system. Theme 1 established that the efficacy of clinical care for bipolar disorder was dependent on Māori patients and whānau having clear pathways through care, and being able to access timely, consistent care from clinically and culturally competent staff. Theme 2 identified the influence of clinical culture in bipolar disorder services, embedded into care settings, expressed by staff, affecting the safety of clinical care for Māori. Theme 3 focused on the need for bipolar disorder services to prioritise clinical work with whānau, equip staff with skills to facilitate engagement and tailor care with resources to enhance whānau as well as patient wellbeing. CONCLUSION: The standard of clinical care for Māori with bipolar disorder in New Zealand does not align with practice guidelines, Māori models of health or clinical frameworks designed to inform treatment and address systemic barriers to equity. Research also needs to explore the role of structural and organisational features of the health system on Māori patient and whānau experiences of care.
Entities:
Keywords:
Māori; bipolar disorder; cultural competence; cultural safety; qualitative
Research suggests Māori (New Zealand Indigenous peoples) and other Indigenous peoples
experience greater bipolar disorder (BD) community prevalence not explained by
differences in sociodemographic variables alone (Baxter et al., 2006; Blanco et al., 2017; Grant et al., 2005; Waitoki et al., 2014). Limited research
has been designed to increase knowledge about Māori with BD despite international
health authorities ostensibly prioritising quality mental health research with
Indigenous peoples (Anderson et
al., 2016; Black et
al., 2017; Haitana
et al., 2020b; United Nations, 2016; World Health Organization, 2013).Indigenous peoples are affected by pervasive health inequities through the ongoing
effects of colonisation, in which health and other social systems privilege
non-Indigenous ethnic groups (Anderson et al., 2016; Reid et al., 2019; United Nations, 2016). BD research is
needed in communities with higher prevalence, because it is a chronic condition that
has significant impacts and requires high health system resource (Angst, 2004; Cunningham et al., 2020a,
2020b; Merikangas et al., 2011;
Rowland and Marwaha,
2018). BD research with Māori has the potential to inform knowledge about
many other serious and chronic mental health conditions affecting Indigenous peoples
(United Nations,
2016; World Health
Organization, 2013).Clinician beliefs and behaviours contribute to health inequities, with cultural
competence skills and cultural safety interventions required to support clinicians
to work effectively with Indigenous and minoritised ethnic groups (Anderson et al., 2016;
Betancourt et al.,
2003, 2014;
Medical Council of New
Zealand, 2019; Palmer et al., 2019; Reid et al., 2019; Skelly et al., 2013). Culturally competent
and safe clinical practice encompasses reflective practice measures to capture bias
and minimise discriminatory care practices, clinican knowledge about socio-cultural
differences and cross-cultural communication skills (Betancourt et al., 2003, 2014; Palmer et al., 2019; Reid et al., 2019). Although the
importance of cultural competence and safety to achieve health equity is widely
reported, few studies describe the nuances of these from the perspective of
Indigenous peoples receiving clinical care (Haitana et al., 2020a, 2020b; Palmer et al., 2019).This paper synthesises the expert critique of Māori patients with BD and their whānau
(family/support networks) regarding the nuances of cultural competence and safety in
clinical encounters with health services.
Methods
Research approach and paradigm
An Indigenous methodology, Kaupapa Māori Research (KMR) was used to inform this
qualitative study and is described in detail elsewhere (Haitana et al., 2020a). Methods chosen
aligned with KMR principles to achieve the study aim and identify how systemic
factors perpetuated inequitable health outcomes for Māori participants.
Sample and context
A total of 24 semi-structured interviews were completed across three New Zealand
sites selected for their range of mental health services, rural and urban loci.
Table 1
summarises self-reported demographic information for Māori patients with BD
(n = 24) who participated. Over half of interviews included
the perspectives of patients together with one or more whānau
(n = 19). All patients had a BD diagnosis with a stable
mood at interview. Mental health staff gave study information to eligible
patients, and interested participants were then recruited by the research team.
No exclusions were made for co-morbidities. A purposive sampling frame recruited
men and women of differing ages across sites. Participants provided informed
consent in writing before interviews.
Table 1.
Participant demographics for Māori patients with bipolar disorder
(BD).
Interviews (n = 24)
%
BD diagnosis
Type I
20
83.3
Type II
2
8.3
NOS
2
8.3
Inpatient admissions
Yes
22
91.7
No
2
8.3
Whānau at interview
(n = 19)
Yes
13
54.2
No
11
45.8
Psychiatric comorbidity
Yes
12
50
No
12
50
Physical comorbidity
Yes
9
37.5
No
15
62.5
Age range (years)
16–24
2
8.3
25–44
8
33.3
45–64
12
50
65+
2
8.3
Gender
Men
10
41.6
Women
14
58.3
Participant demographics for Māori patients with bipolar disorder
(BD).
Ethics
Ethical approval was received from the Health and Disability Ethics Committee of
New Zealand (ID:16/STH/137). The CONSolIDated critERia for strengthening
research involving Indigenous peoples (CONSIDER statement) was utilised to align
the study with Indigenous research guidelines and priorities (Haitana et al., 2020a;
Huria et al.,
2019).
Procedure
Interviews were conducted in-person by two of the research team between December
2017 and August 2019. Venues included participants’ homes, health services or a
research unit. The interview schedule was informed by a systematic literature
review (Haitana et al.,
2020b), and adaptation of a cultural competence framework (Betancourt et al.,
2003). Questions explored the impact of clinical interactions on
participants’ hauora (wellbeing).
Data collection and processing
Interviews were recorded, transcribed and analysed by the research team.
Transcripts were anonymised assigning a number to each interview (1–24) with a
corresponding number given to participants (P1–P24) and their whānau (W1–W24).
Where multiple whānau were present at one interview, an interview number and
letter was assigned to whānau members (W1a, W1b, W1c). NVivo12 data management
software was used to display transcripts, code data and refine codes, categories
and themes and monitor saturation across themes and sub-themes.
Data analysis
Two cycles of coding were completed (Saldaña, 2016). The first cycle
involved two phases. Phase 1 used structural coding. This involved applying a
cultural competence framework adapted to the New Zealand context to group data
according to whether it involved participants’ critique of clinical, structural
and/or organisational components of the health system (Betancourt et al., 2003). The
Betancourt framework defined the ‘clinical’ component of health systems as
interactions between health care providers, patients and their
families (Betancourt et al., 2003). Based on the coding process, the criteria
for inclusion widened to incorporate interactions between Māori
patients/whānau and specific staff/health services/providers; barriers or
enablers to hauora related to/arising from these clinical interactions; and
specific clinical interventions and their contribution to hauora.
For this paper, only findings from the ‘clinical’ component of analysis will be
presented. Phase 2 employed descriptive coding to highlight topics identified
within the clinical code.Coding cycle 2 used a method called pattern coding where related codes and
categories from the first cycle were grouped. Groupings provided breadth and
depth to understand the phenomenon being explored forming a theme. This process
was repeated until theoretical sufficiency was met, measured by the depth of
commentary across all interviews, and the point at which no further codes,
categories or themes were identified.
Data display
Findings will be presented by defining each theme, then describing the nuances of
related sub-themes including the barriers and enablers to hauora through
clinical care. Quotes will be included to elucidate each sub-theme.
Results
Three themes reflected participants’ critique of cultural competency and safety of
clinical components of health care services provided to Māori with BD and their
whānau. Themes centred on clinical care, clinical culture and clinical work with
whānau. Figure 1
illustrates these.
Figure 1.
Themes and sub-themes from critique of clinical components of the health
system.
Themes and sub-themes from critique of clinical components of the health
system.
Clinical care
This theme included critique about the range, benefits and limits to care
provided to Māori patients with BD and whānau by health services. Three
sub-themes were involved: pathways through care; provision of care; and gaps in
care.
Pathways through care
This sub-theme captured participants’ critique of the number of complex
pathways Māori patients and whānau have to learn and navigate to receive
clinical care for BD in New Zealand. Participants wanted information about
BD to facilitate pathways through care. This required clinicians to increase
patient and whānau health literacy about the chronicity and course of BD,
explain the types of services and clinicians available to Māori and their
role in care, and outline how service contact might vary in response to
changing BD symptomatology. Failure to equip participants with information
compounded distress and maintained a power imbalance as pathways through
care became dependant on the availability and willingness of staff to listen
and act on concerns raised.Pathways through care were obstructed when staff with specialist skills, like
psychiatrists, psychologists and hauora Māori (Māori health) practitioners,
were absent or unavailable. Participants emphasised the importance of
consistently available general practitioners (GPs) for BD, as alternative GP
practice models hampered pathways through care contributing to potentially
preventable inpatient admissions. Although inpatient care for BD was
required infrequently, pathways could be improved if the process or purpose
of an admission was clear, whānau were listened to and involved, and all
staff were culturally competent and safe minimising the use of violence,
restraint and seclusion on Māori in inpatient settings:By the time we knew what was wrong, she was well and truly
unwell, and had to go to a mental health unit. The crisis team
weren’t around. We didn’t know what to do. I got my local
doctor, who we trusted. But he, like a lot of the professionals
didn’t know what to do, and didn’t help. So I learned what to
look for. I found it happens really fast, extremely fast. That
was the hardest thing to communicate to the professionals. That
I knew she was unwell, but they’d wait until she was really
bad. (W1)
Provision of care
This sub-theme explored the quality and efficacy of clinical care provided to
Māori patients with BD and their whānau. All participants reported having
contact with mental health services, some for years, before BD was formally
diagnosed. Provision of care for BD therefore necessitated comprehensive
assessments, incorporating patient and whānau perspectives, and longitudinal
information over more than one interview. Care was considered to be more
efficacious when clinicians developed a partnership arriving at a holistic
understanding of BD and shared intervention plan. Staff who integrated
knowledge about BD, te ao Māori (the Māori world) and their individual Māori
patients and whānau were deemed to provide the greatest standard of
care.Medication was described as the mainstay of clinical care in the treatment of
BD. While participants generally accepted the role of medications for Māori
with BD, effective care required time to review and discuss medications,
removal of prohibitive prescription costs and active side effect management.
Participants also noted the need for clinical care cognisant of the
lifecourse persistence of BD, requiring a tailored approach for Māori men
and women with age. This included the need for clinicians to consider that
Māori with BD have important roles and responsibilities within their whānau,
and that effective care needed to encompass these:I’m one of those fortunate people I’ve had a lot of help,
I’ve had a lot of people who have spent time. When I see tangata
whaiora now, and I look at them, they seem so medicated, they’ve
had their wairua taken off them. I’ve had the opposite. I’ve had
people come in, always at a level which is to support and not to
be a nuisance. I’ve had some really good psychiatrists that have
given information, they’re kind of an open book. The
psychiatrists that sit there with their questions and
judgements, they are useless, but the others that are holistic,
they are good. (P1)
Gaps in care
The final sub-theme from clinical care identified gaps in health services for
BD, and the impact of those on Māori patient and whānau wellbeing. Gaps in
care arose when clinicians with relevant skills, like talking therapies,
hauora Māori expertise or psychopharmacology, were under resourced, absent
or on rotating rosters. Inconsistent care limited the ability of staff to
provide timely interventions to influence the course of BD, by altering
medication dosage or providing support to mitigate stressors or risk
factors. Inconsistency also prevented the development of effective working
relationships built on trust, a shared formulation and management plan,
affecting decision making for a chronic condition like BD.Gaps in care also adversely affected hauora when indicators of comorbidity
were undetected, physical and mental health conditions were untreated or
care was limited to symptom alleviation. This meant that the impact of the
social determinants of health were rarely a focus of clinical care for BD,
not explored by clinicians or highlighted as important when transitioning
Māori patients and whānau to other services. Gaps in care narrowed the focus
to Māori patients without considering their roles and relationships with
whānau, as clinicians lacked sufficient time, knowledge or skills to work
with whānau collaboratively. Gaps caused delays in essential communication
at key points of care, and left little scope to incorporate the expertise of
Māori patients, whānau and hauora Māori practitioners alongside Westernised
psychiatric frameworks:Over time I think they needed to include my family more.
Children need information. I was in the unit and had to plead
with the psychiatrist to help my children understand what was
going on. They weren’t going to at first. They had the attitude,
‘Oh, children are resilient’. But it’s how people treat them
that creates that resilience. You know – because they
understand, they can cope with mum’s illness and be supportive.
But if they don’t, and you’re mentally ill at the same time and
you’re trying to explain it to them it adds pressure.
(P2)
Clinical culture
This theme identified the culture embedded within clinical services and expressed
by staff and other patients in care settings for Māori with BD and their whānau.
This theme encompassed three sub-themes: culture of care settings; culture of
staff; and safety of the clinical culture.
Culture of care settings
This sub-theme synthesised critique of established cultural practices and
norms in clinical settings, and their influence on care for Māori patients
with BD and whānau. The culture of care settings was influenced by clinical
and non-clinical staff, features of the care setting and other patients.
Culture influenced whether participants felt comfortable, welcome and safe
to be Māori and receive health services for BD in that setting. Care
settings were valued when Māori tikanga (customs/protocols), kaupapa (focal
issues/matters), values and practices were embedded in service culture, and
employed flexibly to meet the diverse needs of Māori patients and
whānau.Participants were critical of care settings where the culture was dominated
by Westernised approaches, or Māori tikanga, kaupapa, values and practices
were applied tokenistically rather than being a core consideration
throughout. A critical tenet of an effective culture of care for Māori with
BD was defined by the commitment of services and staff to respect and uphold
the mana (authority/dignity) of all Māori patients at all stages of their
illness. Valuing the importance of Māori spaces within clinical settings,
such as providing access to marae (meeting house) or whānau-friendly
facilities, also featured strongly as an indicator of a culture of care.Some participants critiqued culture-blindness in care settings, encountered
when services failed to attend to dynamics between Māori patients, whānau
and staff with shared whakapapa (geneaological ties) or social networks.
Care settings where whakapapa or social connections were not thoughtfully
addressed were seen as unsafe by Māori participants and avoided when
possible. Where care within unsafe settings was compelled by court order,
this was highly aversive to participants, ineffective and harmful.
Participants identified that clinical services needed to establish a culture
in care settings to support the wellbeing and retention of Māori staff,
patients and whānau. This required reflection and discussions about the
impact of potential conflicts of interest unique to Māori, and a clinical
management approach encompassing clinical and cultural priorities when
staff, patients and whānau shared connections:I’ve had a consistent Māori health worker, she’s been the
best. The only consistent person. She would come to anything
even if it wasn’t at her service. I went to my outpatient visit
with my psychiatrist and Māori health worker and was told: ‘If
you don’t walk over to the inpatient service right now you are
under the Mental Health Act’. He was forcing me to be admitted
without having to put me under the Act and I think it is
manipulative to have someone come to an outpatient appointment
and not give them a choice, but use language that sounds like
they do. It was a complete waste of time. It didn’t work. The
services can’t be so separated with one person in
between. (P3)
Culture of staff
This sub-theme synthesised critique about the cultural norms sometimes
implicitly held and expressed by clinicians and staff, and the impact on
care provided to Māori patients and whānau. Participants valued the
contribution of cultural diversity among clinicians and staff employed in
health services for BD and the choice to work with Māori and non-Māori.
However, participants were clear in stating that all staff, regardless of
role or ethnicity, needed to be culturally competent to provide effective
care in clinical settings.Key attributes of staff culture contributing to positive experiences for
Māori in BD services were also identified. These included effective
communication skills, listening, hearing, understanding and relaying key
information, often at times of distress, of relevance to Māori patients with
BD and whānau. When there were few culturally competent staff, participants
noted resistance from teams and additional pressure on those staff to
advocate for equity-focused care for Māori. A healthy staff culture, valuing
learning, growth and different perspectives, was noted by participants as an
antidote to the dominance of Westernised approaches to health care, and an
essential component in equity for Māori. This included embracing
professional development opportunities to nurture culturally competent and
safe practice as it normalised the need for continuous evaluation and
service improvements:It doesn’t matter which service – whether Māori or
mainstream, there are always good people in either who go above
and beyond what they are called to do. In mental health services
what is most important is that staff genuinely care and have
empathy. And many of those people aren’t supported by their
co-workers or the organisation, they don’t get the credit for
the work that they do. The system can be quite brutal to the
workers. And I know the system has gone more that way over the
years. (P4)
Safety of clinical culture
Safety of clinical culture was the final sub-theme involving critique about
the degree of alignment between Māori tikanga, kaupapa, values and practices
and the approaches taken to delivering health services for Māori patients
with BD and whānau. The safety of clinical culture was measured by how
participants felt in services, when with clinicians in that service, or when
receiving care. A safe clinical culture supported staff to be conscious and
attentive to power imbalances and biases, with flexibility to consider how
their approach could mitigate or exacerbate health inequities disadvantaging
Māori.Participants considered a safe clinical culture was measured by the degree to
which clinical and cultural competencies were recognised, utilised, valued
and integrated into services and expressed in the delivery of care by staff.
The provision of equitable health care was also described by participants as
an indicator of safety within the clinical culture of services, with
participants noting how different approaches could enhance or inhibit the
efficacy of care for Māori receiving services for BD. A safe clinical
culture required a whole service commitment to quality care for Māori
patients and whānau, expressed through the actions of all staff rather than
being the sole delegation of Māori:They welcomed me and my parents, it was always a Māori
kaupapa, and a lot of tikanga. They used to have a marae setting
which we liked because that made me feel at home. I think that’s
what I was missing. But there have been a lot of changes during
the years to that service, they’ve been cutting back tikanga
which I’ve missed. (P5)
Clinical work with whānau
This theme critiqued the approach taken when working with the whānau of Māori
patients seeking care for BD. While just over half of interviews included
whānau, this theme was evident in most interviews. Three related sub-themes were
identified: clinical engagement with whānau; clinical resourcing with whānau;
and clinical contribution to whānau ora (family/support network wellbeing).
Clinical engagement with whānau
This sub-theme synthesised critique of the barriers and enablers to effective
clinical engagement with whānau, and the impact on hauora for Māori patients
with BD. Participants considered effective clinical engagement with whānau
improved health outcomes for Māori with BD and facilitated service contact.
Valued roles fulfilled by whānau included assistance to navigate pathways
through care for BD, scheduling and transport to and from appointments, and
in-person support.Whānau were also recognised by participants as holding expert knowledge
relevant to the assessment and treatment of BD, which could not be utilised
without clinical engagement. Effective engagement with whānau allowed
changes to patient symptomatology, early warning signs and notable risk
factors to be managed proactively to prevent relapse. Engagement also
enhanced the efficacy of interventions, as clinically informed whānau were
equipped with knowledge to reinforce the importance of medications or
encourage uptake of other clinical advice. In addition, services that
engaged whānau could reinforce the value of everyday support, structure,
stability and aroha (care/empathy/compassion) to prevent relapse after
discharge.Participants were critical of services when staff did not prioritise or
recognise the need for clinical engagement with whānau. Lack of clinical
engagement was a barrier to hauora and placed a burden of responsibility on
Māori patients and whānau to educate staff about their unmet needs.
Participants experienced tension when considering whether to provide
feedback about ineffective clinical engagement with whānau, and reported
occasions when whānau input was viewed pejoratively from a Westernised
individualised perspective of health:We weren’t even encouraged to attend appointments initially.
So we just let him go to the appointments by himself. Then at a
new service they said ‘it’s lovely to see you, it’s lovely that
you are here, it’s great and it makes a difference’. Whereas
before, it had been very much behind closed doors. The other
thing was there was no real support for us as whānau about how
we could best support him, what was best to do, or what bipolar
disorder was. I mean, other staff wrote that I was an
interfering mother basically. (W2)
Clinical resourcing with whānau
This sub-theme explored whether whānau were recognised as a finite resource
fundamental to hauora, and if clinical resources for BD were aligned with
(rather than imposed on) available whānau supports. Participants described
the need for clinicians to recognise and respect the diverse realities of
Māori whānau, and to tailor their clinical resourcing with whānau according
to need. This included the need for health care providers to assist whānau
to obtain knowledge and skills to support them to enhance clinical outcomes,
by building on their existing roles. This critique highlighted the need to
assess whānau strengths and resources, to inform a care plan that would not
over-burden available whānau.Participants were clear that clinical resourcing with whānau also equipped
them with essential knowledge about BD and resources they could adapt to the
changing needs of their loved one over time. This was viewed by participants
as an efficient way of maximising a limited clinical resource, by empowering
whānau whose relationships with patients extend beyond the clinical
encounter. Where whānau support was absent or unavailable, greater
resourcing was required from clinical services. In particular, services
needed to provide clinical resources when whānau were unavailable, and work
collaboratively with established supports:There should be an investment made in educating the whānau
and the consumer. Because you’re not always in the right state
of mind when that information is being passed on, so there needs
to be an intervention with the whānau as well. Because once
you’re discharged from the service you go into the care of
whānau. So if the service offered that support to whānau in a
more meaningful way, in a faster way, and not just once it would
improve the environment for the consumer and their
whānau. (P6)
Clinical contribution to whānau ora
The final sub-theme synthesised critique of health care providers’ capacity
to recognise and respond to whānau needs to improve hauora for Māori with
BD. Participants were clear that clinicians needed to understand that
patient and whānau wellbeing is interconnected for Māori to meaningfully
contribute to whānau ora. When this was recognised, participants described
an improved alignment between services and whānau to enhance hauora and
reduce the risk of relapse on discharge. This required clinicians to have an
understanding of the ongoing impacts of colonisation on whānau ora, and to
assess and tailor care for Māori patients and whānau based on this.Unfortunately, participants described a tendency for health staff to fail to
acknowledge or enquire about the cumulative impact on whānau of caring for a
loved one with a chronic condition like BD. Many participants expressed
frustration when providers focused care exclusively on Māori patients,
without considering the impact or process of treatment on that person’s
whānau. To address this, participants recognised the need for a duty of care
extending beyond the individual Māori patient, including a broader view of
confidentiality and clinical scope, and greater resourcing to facilitate
multi-service collaboration:Services need to focus on educating our people. There needs
to be wānanga with whānau to make a difference. Nice and early,
manaaki the whānau and explain what’s going on. Then their
children understand, know what triggers might be, and as they
improve, how to work together so we can all support, and be part
of the whole solution. Alongside that clinical model, wellness
across the board. (W3)
Discussion
This research identifies barriers and enablers to high quality, culturally safe and
equitable clinical care from the expert perspectives of Māori receiving services for
BD in New Zealand. Three themes were evident from participants’ critique of clinical
components of the health system. Theme 1 established that the efficacy of clinical
care for BD was dependent on Māori patients and whānau having clear pathways through
care, and being able to access timely, consistent care from clinically and
culturally competent staff. Theme 2 identified the influence of clinical culture in
BD services, embedded into care settings, expressed by staff, affecting the safety
of clinical care for Māori. Theme 3 focused on the need for BD services to
prioritise clinical work with whānau, equip staff with skills to facilitate
engagement and tailor care with resources to enhance whānau as well as patient
wellbeing.These findings reinforce the utility of Māori models of health, Māori clinical
practice frameworks and clinical guidelines for BD, but identify gaps in the
standard of clinical care in New Zealand (Durie, 2011; Malhi et al., 2021; Pitama et al., 2017). Gaps were most
evident in primary and community care, with few resources beyond medications, and an
absence of psychological or social support risking relapse and harmful acute
readmissions (McLeod et al.,
2017; Malhi et al.,
2021). This synthesis extends beyond broad systemic recommendations from
other qualitative studies, by detailing changes required to clinical care, clinical
culture and clinical work with whānau to improve hauora for Māori with BD in New
Zealand (New Zealand
Government, 2018; Waitoki et al., 2014). While the ability to access ‘by Māori for Māori’
BD services remains important, we found that this alone was insufficient to meet the
health needs of Māori or address the contribution of clinician beliefs and
behaviours to health inequity (Harris et al., 2006; Medical Council of New Zealand, 2019;
Reid et al.,
2019).Findings also align with provider perspectives’ research investigating health care
for Indigenous peoples with cancer, kidney disease, diabetes, mental health
conditions and BD (Crowshoe et
al., 2018; Johnstone
and Read, 2000; New
Zealand Government, 2018; Newman et al., 2013; Rix et al., 2013; Staps et al., 2019). Recommendations
included the need for systemic changes to reposition responsibility with providers
to deliver culturally safe, competent and equitable health care rather than blaming
Indigenous patients and their families (Crowshoe et al., 2018; Johnstone and Read, 2000;
New Zealand Government,
2018; Newman et al.,
2013; Rix et al.,
2013; Staps et al.,
2019). Similar to our participants, providers also recognised they needed
specialised training, knowledge and skills and greater resourcing to tailor care to
their context, Indigenous patients and families, to address the determinants,
barriers and enablers to health equity. Normalising reflective practice and service
evaluation was also essential in provider research to reduce racism and
discrimination in care affecting Indigenous peoples’ health outcomes (Crowshoe et al., 2018;
Johnstone and Read,
2000; Newman et al.,
2013; Rix et al.,
2013).The strengths of this study include the KMR design in an under researched area,
adaptation of a method to privilege the expertise of Māori and identification of
barriers and enablers to culturally competent, safe and effective clinical care for
BD. This study also has limitations. First, recruiting Māori patients and whānau
through health care providers may have limited participation to people with positive
service experiences, however, this did not appear to be reflected in interview data.
In addition, if time had allowed, separate interviews with patients and whānau may
have highlighted different critique between groups, however, the benefits of one
interview were considered and aligned well with KMR principles (Haitana et al.,
2020a).This study demonstrates that the standard of clinical care for Māori with BD in New
Zealand does not align with practice guidelines, Māori models of health or clinical
frameworks designed to inform treatment and address systemic barriers to equity
(Durie, 2011; Malhi et al., 2021; Pitama et al., 2017).
Barriers to equity and harmful approaches to care will continue unless clinicians
and services are sufficiently equipped with training, knowledge and resources to
meet pre-existing practice standards (Durie, 2011; Harris et al., 2006; Malhi et al., 2021; Pitama et al., 2017). This will require a
commitment to evaluation and training, supporting all staff to deliver safe,
effective, consistent care to Māori, and community-level resources to maintain
hauora over time. While improving clinical care standards and implementing
previously recommended health service changes are important (McLeod et al., 2017), we acknowledge the
upstream drivers of inequity, and the need for research to identify necessary
structural and organisational changes to our health system.
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