Literature DB >> 34244760

Digital Disparities: Lessons learned from a Patient Reported Outcomes Program During the COVID-19 Pandemic.

Rachel C Sisodia1,2, Jorge A Rodriguez3, Thomas D Sequist2,3.   

Abstract

The collection of patient reported outcomes (PROs) allows us to incorporate the patient's voice within their care in a quantifiable, validated manner. Large scale collection of PROs is facilitated by the electronic health record (EHR) and its portal, though historically patients have eschewed the portal and completed patient reported outcome measures (PROMS) in clinic via tablet. Furthermore, access to and use of the portal is associated with known racial inequities. Our institution oversees the largest clinical PRO program in the world, and has a long history of racially equitable PRO completion rates via tablet. However, when the COVID-19 pandemic forced us to remove tablets from clinics and rely exclusively on portal use for PRO completion, profound racial disparities resulted immediately. Our experience quantifiably demonstrates the magnitude of inequity that the portal, in its current configuration, generates and serves as a cautionary tale to other health care systems and EHRs.
© The Author(s) 2021. Published by Oxford University Press on behalf of the American Medical Informatics Association.

Entities:  

Keywords:  Disparities; Inequity; Patient Reported Outcomes; Portal

Year:  2021        PMID: 34244760     DOI: 10.1093/jamia/ocab138

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  7 in total

1.  Implementation strategies to promote measurement-based care in schools: evidence from mental health experts across the USA.

Authors:  Elizabeth H Connors; Aaron R Lyon; Kaylyn Garcia; Corianna E Sichel; Sharon Hoover; Mark D Weist; Jacob K Tebes
Journal:  Implement Sci Commun       Date:  2022-06-21

Review 2.  Assessing Patient-Reported Outcomes in Pediatric Rheumatic Diseases: Considerations and Future Directions.

Authors:  Christina K Zigler; Rachel L Randell; Bryce B Reeve
Journal:  Rheum Dis Clin North Am       Date:  2022-02       Impact factor: 2.032

Review 3.  Implementing patient-reported outcomes in routine clinical care for diverse and underrepresented patients in the United States.

Authors:  Colby J Hyland; Ruby Guo; Ravi Dhawan; Manraj N Kaur; Paul A Bain; Maria O Edelen; Andrea L Pusic
Journal:  J Patient Rep Outcomes       Date:  2022-03-07

4.  Deploying the Behavioral and Environmental Sensing and Intervention for Cancer Smart Health System to Support Patients and Family Caregivers in Managing Pain: Feasibility and Acceptability Study.

Authors:  Virginia LeBaron; Ridwan Alam; Rachel Bennett; Leslie Blackhall; Kate Gordon; James Hayes; Nutta Homdee; Randy Jones; Kathleen Lichti; Yudel Martinez; Sahar Mohammadi; Emmanuel Ogunjirin; Nyota Patel; John Lach
Journal:  JMIR Cancer       Date:  2022-08-09

Review 5.  Impact of the coronavirus disease 2019 pandemic on delivery of and models for supportive and palliative care for oncology patients.

Authors:  Karineh Kazazian; Deanna Ng; Carol J Swallow
Journal:  Curr Opin Support Palliat Care       Date:  2022-07-18       Impact factor: 2.265

Review 6.  Leveraging Electronic Health Records to Address Breast Cancer Disparities.

Authors:  Solange Bayard; Genevieve Fasano; Rulla M Tamimi; Pilyung Stephen Oh
Journal:  Curr Breast Cancer Rep       Date:  2022-09-03

Review 7.  Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection.

Authors:  Olalekan Lee Aiyegbusi; Jessica Roydhouse; Samantha Cruz Rivera; Paul Kamudoni; Peter Schache; Roger Wilson; Richard Stephens; Melanie Calvert
Journal:  Nat Commun       Date:  2022-10-12       Impact factor: 17.694

  7 in total

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