Literature DB >> 34216328

Healthcare Services During the Transitions to Adulthood Among Individuals with ASD Aged 15-25 Years Old: Stakeholders' Perspectives.

Parisa Ghanouni1, Liam Seaker2.   

Abstract

Although previous research has shown that the transition to adulthood may be challenging, there exists a lack of research regarding perspectives of stakeholders on the transition of individuals with Autism Spectrum Disorder (ASD). This study aimed to investigate stakeholders' experiences regarding healthcare services for youth with ASD during their transition. We involved 20 stakeholders, including 17 parents of youth with ASD as well as 3 services providers. The study yielded three major themes including: (a) accessibility and quality of care; (b) tensions and conflicts; and (c) navigation and integrated care. The findings can be used to direct change within the healthcare services towards better practices for youth with ASD and increasing the likelihood of positive health outcomes.
© 2021. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.

Entities:  

Keywords:  ASD; Experiences; Healthcare services; Transitions to adulthood

Mesh:

Year:  2021        PMID: 34216328     DOI: 10.1007/s10803-021-05159-6

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  20 in total

1.  Age and Adaptive Functioning in Children and Adolescents with ASD: The Effects of Intellectual Functioning and ASD Symptom Severity.

Authors:  Trenesha L Hill; Sarah A O Gray; Jodi L Kamps; R Enrique Varela
Journal:  J Autism Dev Disord       Date:  2015-12

2.  Brief report: the medical care of adults with autism spectrum disorders: identifying the needs.

Authors:  Mary Beth Bruder; Gerard Kerins; Cynthia Mazzarella; Jessica Sims; Neil Stein
Journal:  J Autism Dev Disord       Date:  2012-11

3.  Disparities in transition planning for youth with autism spectrum disorder.

Authors:  Nancy C Cheak-Zamora; Xuejing Yang; Janet E Farmer; Mary Clark
Journal:  Pediatrics       Date:  2013-02-11       Impact factor: 7.124

4.  Unmet need and problems accessing core health care services for children with autism spectrum disorder.

Authors:  Giuseppina Chiri; Marji Erickson Warfield
Journal:  Matern Child Health J       Date:  2012-07

5.  Exploration and Comparison of Adolescents With Autism Spectrum Disorder and Their Caregiver's Perspectives on Transitioning to Adult Health Care and Adulthood.

Authors:  Nancy C Cheak-Zamora; Michelle Teti; Anna Maurer-Batjer; Erica Koegler
Journal:  J Pediatr Psychol       Date:  2017-10-01

6.  Young Adults on the Autism Spectrum: The Struggle for Appropriate Services.

Authors:  Connie Anderson; Catherine Butt
Journal:  J Autism Dev Disord       Date:  2018-11

7.  From interdisciplinary to integrated care of the child with autism: the essential role for a code of ethics.

Authors:  David J Cox
Journal:  J Autism Dev Disord       Date:  2012-12

8.  Caregiver burden as people with autism spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom.

Authors:  Tim Cadman; Hanna Eklund; Deirdre Howley; Hannah Hayward; Hanna Clarke; James Findon; Kiriakos Xenitidis; Declan Murphy; Philip Asherson; Karen Glaser
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2012-08-02       Impact factor: 8.829

9.  Atypical Processing of Gaze Cues and Faces Explains Comorbidity between Autism Spectrum Disorder (ASD) and Attention Deficit/Hyperactivity Disorder (ADHD).

Authors:  Madeleine J Groom; Puja Kochhar; Antonia Hamilton; Elizabeth B Liddle; Marina Simeou; Chris Hollis
Journal:  J Autism Dev Disord       Date:  2017-05

10.  Unmet Need for Therapy Among Children with Autism Spectrum Disorder: Results from the 2005-2006 and 2009-2010 National Survey of Children with Special Health Care Needs.

Authors:  Teal W Benevides; Henry J Carretta; Shelly J Lane
Journal:  Matern Child Health J       Date:  2016-04
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