Susan Silveira1,2, Frank J Martin3,4, Maree Flaherty5,6, Heather C Russell7. 1. NextSense Institute, Sydney, NSW, Australia. sue.silveira@nextsense.org.au. 2. Macquarie School of Education, Macquarie University, Sydney, NSW, Australia. sue.silveira@nextsense.org.au. 3. University of Sydney, Sydney, NSW, Australia. 4. The Children's Hospitals Network and Sydney/Sydney Eye Hospitals, Sydney, NSW, Australia. 5. Department of Ophthalmology, The Children's Hospital Network, Sydney, NSW, Australia. 6. Discipline of Ophthalmology, Sydney Medical School, University of Sydney, Sydney, NSW, Australia. 7. Gold Coast University Hospital, Southport, QLD, Australia.
Abstract
BACKGROUND: Visual impairment is rare but has significant impact on the neurobehavioural development and quality of life of children. This paper presents the key findings from the Australian Childhood Vision Impairment Register, which commenced in 2008 to report on children diagnosed with permanent visual impairment. SUBJECTS/ METHODS: Families consent to completing a data form related to their child and for contact with the child's ophthalmologist. Ophthalmologists complete and return a comprehensive data form on the child's primary and secondary ocular diagnoses, associated disabilities and health conditions, visual acuity and visual fields. Data is stored on a secure database and anonymised data is available to researchers and for planning purposes. RESULTS: Nine-hundred four children and their families provided informed consent for participation, with 57% males and 43% females. Most children spoke English in their home. Eighty-three percent of children were born full term, with a birth weight of >2500 g (81%). Children were commonly suspected to have visual impairment by a parent, with 68% of families receiving a diagnosis of visual impairment by their child's first birthday. The most common primary diagnoses were retinal dystrophy (17%), CVI (15%) and Albinism (11%). A secondary diagnosis of infantile nystagmus occurred in 33% of children. Additional disabilities and/or developmental delay were reported for 44% of children. Corrected binocular visual acuity was reported for 75% of children, with moderate visual impairment being most common. CONCLUSIONS: These findings contribute to knowledge of rare diseases affecting the eye and visual pathway and represent Australian childhood visual impairment.
BACKGROUND: Visual impairment is rare but has significant impact on the neurobehavioural development and quality of life of children. This paper presents the key findings from the Australian Childhood Vision Impairment Register, which commenced in 2008 to report on children diagnosed with permanent visual impairment. SUBJECTS/ METHODS: Families consent to completing a data form related to their child and for contact with the child's ophthalmologist. Ophthalmologists complete and return a comprehensive data form on the child's primary and secondary ocular diagnoses, associated disabilities and health conditions, visual acuity and visual fields. Data is stored on a secure database and anonymised data is available to researchers and for planning purposes. RESULTS: Nine-hundred four children and their families provided informed consent for participation, with 57% males and 43% females. Most children spoke English in their home. Eighty-three percent of children were born full term, with a birth weight of >2500 g (81%). Children were commonly suspected to have visual impairment by a parent, with 68% of families receiving a diagnosis of visual impairment by their child's first birthday. The most common primary diagnoses were retinal dystrophy (17%), CVI (15%) and Albinism (11%). A secondary diagnosis of infantile nystagmus occurred in 33% of children. Additional disabilities and/or developmental delay were reported for 44% of children. Corrected binocular visual acuity was reported for 75% of children, with moderate visual impairment being most common. CONCLUSIONS: These findings contribute to knowledge of rare diseases affecting the eye and visual pathway and represent Australian childhood visual impairment.
Authors: Elvis Ojaimi; Kathryn A Rose; Wayne Smith; Ian G Morgan; Frank J Martin; Paul Mitchell Journal: Ophthalmic Epidemiol Date: 2005-02 Impact factor: 1.648
Authors: Esther Castanys-Muñoz; Kathy Kennedy; Eurídice Castañeda-Gutiérrez; Stewart Forsyth; Keith M Godfrey; Berthold Koletzko; Susan E Ozanne; Ricardo Rueda; Marieke Schoemaker; Eline M van der Beek; Stef van Buuren; Ken K Ong Journal: Acta Paediatr Date: 2017-05-15 Impact factor: 2.299