E Rydwik1,2, L Anmyr3,4, M Regardt5,6, A McAllister7,8, R Zarenoe3, E Åkerman9,10, Y Orrevall11,12, M Bragesjö13,14, O Dahl9,10, M K Kemani14,15, L Nordstrand6,14, U Ekman14,16, L Holmström13,14, M Nygren-Bonnier17,5. 1. Department of Neurobiology, Care Sciences and Society, Division of Physiotherapy, Karolinska Institutet, Huddinge, Sweden. elisabeth.rydwik@ki.se. 2. Women's Health and Allied Health Professionals Theme, Medical Unit Occupational Therapy and Physiotherapy, Karolinska University Hospital, Solna, Sweden. elisabeth.rydwik@ki.se. 3. Women's Health and Allied Health Professionals Theme, Department of Social Work in Health, Karolinska University Hospital, Solna, Sweden. 4. Department of CLINTEC, Karolinska Institutet, Stockholm, Sweden. 5. Women's Health and Allied Health Professionals Theme, Medical Unit Occupational Therapy and Physiotherapy, Karolinska University Hospital, Solna, Sweden. 6. Department of Neurobiology, Care Sciences and Society, Division of Occupational Therapy, Karolinska Institutet, Huddinge, Sweden. 7. Women's Health and Allied Health Professionals Theme, Medical Unit Speech and Language Pathology, Karolinska University Hospital, Stockholm, Sweden. 8. CLINTEC, Division of Speech-Language Pathology, Karolinska Institutet, Stockholm, Sweden. 9. Perioperative Medicine and Intensive Care Function, Department of Intensive Care, Karolinska University Hospital, Stockholm, Sweden. 10. Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Huddinge, Sweden. 11. Women's Health and Allied Health Professionals Theme, Medical Unit Clinical Nutrition, Karolinska University Hospital, Stockholm, Sweden. 12. Department of Biosciences and Nutrition, Karolinska Institutet, Stockholm, Sweden. 13. Department of Clinical Neuroscience, Division of Psychology Karolinska Institutet, Stockholm, Sweden. 14. Women's Health and Allied Health Professionals Theme, Medical Unit Medical Psychology Karolinska University Hospital, Solna, Sweden. 15. Department of Psychology, Stress Research Institute, Stockholm University, Stockholm, Sweden. 16. Department of Neurobiology, Care Sciences and Society, Division of Clinical Geriatrics, Karolinska Institutet, Huddinge, Sweden. 17. Department of Neurobiology, Care Sciences and Society, Division of Physiotherapy, Karolinska Institutet, Huddinge, Sweden.
Abstract
BACKGROUND: The knowledge of the long-term consequences of covid-19 is limited. In patients, symptoms such as fatigue, decreased physical, psychological, and cognitive function, and nutritional problems have been reported. How the disease has affected next of kin, as well as staff involved in the care of patients with covid-19, is also largely unknown. The overall aim of this study is therefore three-fold: (1) to describe and evaluate predictors of patient recovery, the type of rehabilitation received and patients' experiences of specialized rehabilitation following COVID-19 infection; (2) to study how next of kin experienced the hospital care of their relative and their experiences of the psychosocial support they received as well as their psychological wellbeing; (3) to describe experiences of caring for patients with COVID-19 and evaluate psychological wellbeing, coping mechanisms and predictors for development of psychological distress over time in health care staff. METHODS: This observational longitudinal study consists of three cohorts; patients, next of kin, and health care staff. The assessments for the patients consist of physical tests (lung function, muscle strength, physical capacity) and questionnaires (communication and swallowing, nutritional status, hearing, activities of daily living, physical activity, fatigue, cognition) longitudinally at 3, 6 and 12 months. Patient records auditing (care, rehabilitation) will be done retrospectively at 12 months. Patients (3, 6 and 12 months), next of kin (6 months) and health care staff (baseline, 3, 6, 9 and 12 months) will receive questionnaires regarding, health-related quality of life, depression, anxiety, sleeping disorders, and post-traumatic stress. Staff will also answer questionnaires about burnout and coping strategies. Interviews will be conducted in all three cohorts. DISCUSSION: This study will be able to answer different research questions from a quantitative and qualitative perspective, by describing and evaluating long-term consequences and their associations with recovery, as well as exploring patients', next of kins' and staffs' views and experiences of the disease and its consequences. This will form a base for a deeper and better understanding of the consequences of the disease from different perspectives as well as helping the society to better prepare for a future pandemic.
BACKGROUND: The knowledge of the long-term consequences of covid-19 is limited. In patients, symptoms such as fatigue, decreased physical, psychological, and cognitive function, and nutritional problems have been reported. How the disease has affected next of kin, as well as staff involved in the care of patients with covid-19, is also largely unknown. The overall aim of this study is therefore three-fold: (1) to describe and evaluate predictors of patient recovery, the type of rehabilitation received and patients' experiences of specialized rehabilitation following COVID-19infection; (2) to study how next of kin experienced the hospital care of their relative and their experiences of the psychosocial support they received as well as their psychological wellbeing; (3) to describe experiences of caring for patients with COVID-19 and evaluate psychological wellbeing, coping mechanisms and predictors for development of psychological distress over time in health care staff. METHODS: This observational longitudinal study consists of three cohorts; patients, next of kin, and health care staff. The assessments for the patients consist of physical tests (lung function, muscle strength, physical capacity) and questionnaires (communication and swallowing, nutritional status, hearing, activities of daily living, physical activity, fatigue, cognition) longitudinally at 3, 6 and 12 months. Patient records auditing (care, rehabilitation) will be done retrospectively at 12 months. Patients (3, 6 and 12 months), next of kin (6 months) and health care staff (baseline, 3, 6, 9 and 12 months) will receive questionnaires regarding, health-related quality of life, depression, anxiety, sleeping disorders, and post-traumatic stress. Staff will also answer questionnaires about burnout and coping strategies. Interviews will be conducted in all three cohorts. DISCUSSION: This study will be able to answer different research questions from a quantitative and qualitative perspective, by describing and evaluating long-term consequences and their associations with recovery, as well as exploring patients', next of kins' and staffs' views and experiences of the disease and its consequences. This will form a base for a deeper and better understanding of the consequences of the disease from different perspectives as well as helping the society to better prepare for a future pandemic.
Authors: Aakriti Gupta; Mahesh V Madhavan; Kartik Sehgal; Nandini Nair; Shiwani Mahajan; Tejasav S Sehrawat; Behnood Bikdeli; Neha Ahluwalia; John C Ausiello; Elaine Y Wan; Daniel E Freedberg; Ajay J Kirtane; Sahil A Parikh; Mathew S Maurer; Anna S Nordvig; Domenico Accili; Joan M Bathon; Sumit Mohan; Kenneth A Bauer; Martin B Leon; Harlan M Krumholz; Nir Uriel; Mandeep R Mehra; Mitchell S V Elkind; Gregg W Stone; Allan Schwartz; David D Ho; John P Bilezikian; Donald W Landry Journal: Nat Med Date: 2020-07-10 Impact factor: 53.440
Authors: Robert G Maunder; William J Lancee; Kenneth E Balderson; Jocelyn P Bennett; Bjug Borgundvaag; Susan Evans; Christopher M B Fernandes; David S Goldbloom; Mona Gupta; Jonathan J Hunter; Linda McGillis Hall; Lynn M Nagle; Clare Pain; Sonia S Peczeniuk; Glenna Raymond; Nancy Read; Sean B Rourke; Rosalie J Steinberg; Thomas E Stewart; Susan VanDeVelde-Coke; Georgina G Veldhorst; Donald A Wasylenki Journal: Emerg Infect Dis Date: 2006-12 Impact factor: 6.883
Authors: Rodolfo Rossi; Valentina Socci; Francesca Pacitti; Giorgio Di Lorenzo; Antinisca Di Marco; Alberto Siracusano; Alessandro Rossi Journal: JAMA Netw Open Date: 2020-05-01