Literature DB >> 34187468

Recruiting people facing social disadvantage: the experience of the Free Meds study.

Pauline Norris1, Kimberly Cousins2, Marianna Churchward3, Shirley Keown4, Mariana Hudson5, Leina Isno2, Leilani Pereira2, Jacques Klavs6, Lucy Linqing Tang6, Hanne Roberti6, Alesha Smith6.   

Abstract

BACKGROUND: Researching access to health services, and ways to improve equity, frequently requires researchers to recruit people facing social disadvantage. Recruitment can be challenging, and there is limited high quality evidence to guide researchers. This paper describes experiences of recruiting 1068 participants facing social disadvantage for a randomised controlled trial of prescription charges, and provides evidence on the advantages and disadvantages of recruitment methods.
METHODS: Those living in areas of higher social deprivation, taking medicines for diabetes, taking anti-psychotic medicines, or with COPD were eligible to participate in the study. Several strategies were trialled to meet recruitment targets. We initially attempted to recruit participants in person, and then switched to a phone-based system, eventually utilising a market research company to deal with incoming calls. We used a range of strategies to publicise the study, including pamphlets in pharmacies and medical centres, media (especially local newspapers) and social media.
RESULTS: Enrolling people on the phone was cheaper on average than recruiting in person, but as we refined our approach over time, the cost of the latter dropped significantly. In person recruitment had many advantages, such as enhancing our understanding of potential participants' concerns. Forty-nine percent of our participants are Māori, which we attribute to having Māori researchers on the team, recruiting in areas of high Māori population, team members' existing links with Māori health providers, and engaging and working with Māori providers.
CONCLUSIONS: Recruiting people facing social disadvantage requires careful planning and flexible recruitment strategies. Support from organisations trusted by potential participants is essential. REGISTRATION: The Free Meds study is registered with the Australian and New Zealand Clinical Trials Registry ( ACTRN12618001486213 ).

Entities:  

Keywords:  Health services research; Maori; New Zealand; Prescription charges; Social disadvantage; Study recruitment

Year:  2021        PMID: 34187468     DOI: 10.1186/s12939-021-01483-6

Source DB:  PubMed          Journal:  Int J Equity Health        ISSN: 1475-9276


  13 in total

1.  Affordability of medicines and patients' cost-reducing behaviour: empirical evidence based on SUR estimates from Italy and the UK.

Authors:  Vincenzo Atella; Ellen Schafheutle; Peter Noyce; Karen Hassell
Journal:  Appl Health Econ Health Policy       Date:  2005       Impact factor: 2.561

2.  Development of New Zealand's deprivation index (NZDep) and its uptake as a national policy tool.

Authors:  Clare E Salmond; Peter Crampton
Journal:  Can J Public Health       Date:  2012-05-09

3.  Inclusion of indigenous and ethnic minority populations in intervention trials: challenges and strategies in a New Zealand supermarket study.

Authors:  C Ni Mhurchu; T Blakely; M Funaki-Tahifote; C McKerchar; J Wilton; S Chua; Y Jiang
Journal:  J Epidemiol Community Health       Date:  2009-07-01       Impact factor: 3.710

4.  Hospitalizations and deaths among adults with cardiovascular disease who underuse medications because of cost: a longitudinal analysis.

Authors:  Michele Heisler; Hwajung Choi; Allison B Rosen; Sandeep Vijan; Mohammed Kabeto; Kenneth M Langa; John D Piette
Journal:  Med Care       Date:  2010-02       Impact factor: 2.983

5.  National trends in psychotropic medication polypharmacy in office-based psychiatry.

Authors:  Ramin Mojtabai; Mark Olfson
Journal:  Arch Gen Psychiatry       Date:  2010-01

Review 6.  Prescription drug cost sharing: associations with medication and medical utilization and spending and health.

Authors:  Dana P Goldman; Geoffrey F Joyce; Yuhui Zheng
Journal:  JAMA       Date:  2007-07-04       Impact factor: 56.272

7.  Recruitment and retention of the Hardest-to-Reach families in community-based asthma interventions.

Authors:  Hillary Goldman; Maria Fagnano; Tamara T Perry; Ariel Weisman; Amanda Drobnica; Jill S Halterman
Journal:  Clin Trials       Date:  2018-08-13       Impact factor: 2.486

8.  Recruiting equal numbers of indigenous and non-indigenous participants to a 'polypill' randomized trial.

Authors:  Vanessa Selak; Sue Crengle; C Raina Elley; Angela Wadham; Matire Harwood; Natasha Rafter; Chris Bullen; Avinesh Pillai; Bruce Arroll; Anthony Rodgers
Journal:  Int J Equity Health       Date:  2013-06-22

Review 9.  Recruitment and retention of participants in randomised controlled trials: a review of trials funded and published by the United Kingdom Health Technology Assessment Programme.

Authors:  Stephen J Walters; Inês Bonacho Dos Anjos Henriques-Cadby; Oscar Bortolami; Laura Flight; Daniel Hind; Richard M Jacques; Christopher Knox; Ben Nadin; Joanne Rothwell; Michael Surtees; Steven A Julious
Journal:  BMJ Open       Date:  2017-03-20       Impact factor: 2.692

10.  Effectiveness of recruitment to a smartphone-delivered nutrition intervention in New Zealand: analysis of a randomised controlled trial.

Authors:  Ekaterina Volkova; Jo Michie; Callie Corrigan; Gerhard Sundborn; Helen Eyles; Yannan Jiang; Cliona Ni Mhurchu
Journal:  BMJ Open       Date:  2017-07-02       Impact factor: 2.692

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