| Literature DB >> 34179380 |
Sainfer Aliyu1, Jasmine L Travers2, Allison A Norful3, Michael Clarke1, Krista Schroeder4.
Abstract
Diagnosis and hospitalization for COVID-19 are disproportionately higher among black persons. The purpose of this study was to explore the lived experience of being diagnosed with COVID-19 among black patients. Semistructured one-on-one interviews with black patients diagnosed with COVID-19 were conducted. Data were analyzed using conventional content analysis and a directed content approach. Fifteen patients participated and 3 themes were identified: Panic amidst a COVID-19 diagnosis, Feeling the repercussion of the diagnosis, and Personal assessment of risks within one's individual environment. Fear of dying, inadequate health benefits, financial issues, and worries about spreading the virus to loved ones were acknowledged by the patients as critical areas of concerns. Majority of the patients looked to God as the ultimate way of surviving COVID-19. However, none of the patients reported receiving support for spiritual needs from health care providers. This is the first study to investigate the lived experience of being diagnosed with COVID-19 among black patients. Our results highlight several factors that put this group at increased risk for COVID-19 and where additional strategies are needed to address these inadequacies. Integrating public health interventions to reduce socioeconomic barriers and integrating spirituality into clinical care could improve patient care delivery.Entities:
Keywords: COVID-19; black patients; coronavirus; interviews; patient experience; qualitative studies
Year: 2021 PMID: 34179380 PMCID: PMC8205343 DOI: 10.1177/2374373521996963
Source DB: PubMed Journal: J Patient Exp ISSN: 2374-3735
Participant Characteristics.
| Characteristic | n (%) |
|---|---|
| Male gender | 8 (53) |
| Age | |
| 18-30 | 1 (7) |
| 31-45 | 4 (26.5) |
| 46-60 | 3 (20) |
| 61-75 | 3 (20) |
| >75 | 4 (26.5) |
| Race | |
| Black | 15 (100) |
| Uninsured | 6 (40) |
| Comorbid conditions | |
| None | 2 (13) |
| 1-3 | 3 (20) |
| >3 | 10 (67) |
| Highest level of education | |
| High school diploma | 8 (53) |
| College degree | 7 (47) |
| Employment | |
| Employed | 8 (53) |
| Retired | 6 (40) |
| Unemployed | 1 (7) |
| Source of admission | |
| Private home | 14 (93) |
| Nursing home | 1 (7) |
Exemplar Quotes Reflecting the Lived Experience of COVID-19 Among Black Patients.
| Description of themes | Exemplar quotes |
|---|---|
| Panic amidst a COVID-19 diagnosis: | Patients described feelings about contracting the
virus. |
| Older and sicker patients felt it was inevitable that COVID-19
would kill them. | |
| Feeling the repercussion of the
diagnosis: | Some participants expressed it was difficult to describe
COVID-19 symptoms. |
| Few patients had no “classic” COVID-19 signs as described on the
news. | |
| Patients dug deeper into their faith as a means of coping with
the pandemic. One woman described her transcendent experience
through discovering a deeper connection with
spirituality. | |
| Emotional fatigue was a common feeling shared by many. Patients
shared the health care–provider–patient relationship was
valuable to their psychological well-being. | |
| Personal assessment of risks within one’s individual
environment: | A few patients believed that they were exposed to COVID-19 while
at work. While many had no job security, this was not the case
for one of the patients–He expressed gratitude after hearing
from his work colleague. |
| There was increasing worries among patients with failing health.
A woman described her concerns about her church family no longer
being able to care for her. | |
| Inadequate protocols and lack of social distancing policies were
mentioned as means of spreading the virus in the
workplace. | |
| Few patients were dissatisfied with long hospital wait-times.
There was a sense of being ignored as well as a feeling of unmet
standards of care. | |
| Most patients reported a good experience when getting tested for
COVID-19. One man described his interaction with the emergency
department nurses, including the nurse who performed the
test. |