Kimberly A Pyke-Grimm1, Beth Fisher2, Amy Haskamp3, Cynthia J Bell4, Amy R Newman5. 1. Nurse Scientist, Department of Nursing Research and Evidence-Based Practice, Lucile Packard Children's Hospital Stanford, Palo Alto, CA; Clinical Assistant Professor, Division of Hematology/Oncology, Department of Pediatrics, Lucile Packard Children's Hospital Stanford, Palo Alto, CA. Electronic address: KPykeGrimm@stanfordchildrens.org. 2. Clinical Assistant Professor, Clemson University School of Nursing, Greenville, SC; Pediatric Nurse Practitioner Acute Care/Primary Care, Aflac Center for Cancer and Blood Disorders, Children's Healthcare of Atlanta, Atlanta, GA. 3. Pediatric Palliative Care, Riley Hospital for Children at IU Health Hospital, Indianapolis, IN. 4. Associate Professor, College of Nursing, Wayne State University, Detroit, MI. 5. Assistant Professor, College of Nursing, Marquette University, Milwaukee, WI; Nurse Scientist, Department of Nursing Research & Evidence-Based Practice, Children's Wisconsin, Milwaukee, WI.
Abstract
OBJECTIVES: To describe palliative, concurrent, and hospice care in pediatric oncology in the United States (US), we present a clinical scenario illustrating palliative and hospice care, including eligibility for concurrent care, insurance coverage and billing, barriers to accessing quality pediatric palliative and hospice care, and implications for oncology nursing practice. DATA SOURCES: Peer-reviewed articles, clinical practice guidelines, professional organizations, and expert clinical opinion examining pediatric oncology, palliative care, and hospice care. CONCLUSION: Understanding the goals of palliative and hospice care and the differences between them is important in providing holistic, goal-directed care. IMPLICATIONS FOR NURSING PRACTICE: Oncology nurses play a pivotal role in supporting the goals of pediatric palliative care and hospice care and in educating patients and their families. Nurses form trusting relationships with pediatric oncology patients and their families and are in a position to advocate for best palliative care practices as disease progresses to end of life, including when appropriate concurrent care or hospice.
OBJECTIVES: To describe palliative, concurrent, and hospice care in pediatric oncology in the United States (US), we present a clinical scenario illustrating palliative and hospice care, including eligibility for concurrent care, insurance coverage and billing, barriers to accessing quality pediatric palliative and hospice care, and implications for oncology nursing practice. DATA SOURCES: Peer-reviewed articles, clinical practice guidelines, professional organizations, and expert clinical opinion examining pediatric oncology, palliative care, and hospice care. CONCLUSION: Understanding the goals of palliative and hospice care and the differences between them is important in providing holistic, goal-directed care. IMPLICATIONS FOR NURSING PRACTICE: Oncology nurses play a pivotal role in supporting the goals of pediatric palliative care and hospice care and in educating patients and their families. Nurses form trusting relationships with pediatric oncology patients and their families and are in a position to advocate for best palliative care practices as disease progresses to end of life, including when appropriate concurrent care or hospice.