| Literature DB >> 34151980 |
Rupa S Valdez1,2,3, Don E Detmer1, Philip Bourne4, Katherine K Kim5, Robin Austin6, Anna McCollister7, Courtney C Rogers2, Karen C Waters-Wicks3,8,9.
Abstract
The COVID-19 pandemic has once again highlighted the ubiquity and persistence of health inequities along with our inability to respond to them in a timely and effective manner. There is an opportunity to address the limitations of our current approaches through new models of informatics-enabled research and clinical practice that shift the norm from small- to large-scale patient engagement. We propose augmenting our approach to address health inequities through informatics-enabled citizen science, challenging the types of questions being asked, prioritized, and acted upon. We envision this democratization of informatics that builds upon the inclusive tradition of community-based participatory research (CBPR) as a logical and transformative step toward improving individual, community, and population health in a way that deeply reflects the needs of historically marginalized populations.Entities:
Keywords: citizen science; health equity; health informatics; patient engagement; precision health
Year: 2021 PMID: 34151980 DOI: 10.1093/jamia/ocab088
Source DB: PubMed Journal: J Am Med Inform Assoc ISSN: 1067-5027 Impact factor: 4.497