Literature DB >> 34143346

The economic burden of amyotrophic lateral sclerosis: a systematic review.

K Achtert1, L Kerkemeyer2.   

Abstract

OBJECTIVES: This systematic review aimed to comprehensively collect and summarise the current body of knowledge regarding the cost-of-illness of amyotrophic lateral sclerosis, to identify cost-driving factors of the disease and to consider the development of costs over the course of disease. Further, the review sought to assess the methodological quality of the selected studies.
METHODS: A systematic review was performed using the databases MEDLINE, Embase, Cochrane Library and PsycINFO. Studies examining the economic burden of amyotrophic lateral sclerosis on a patient or national level written in English or German published from the year 2001 onwards were included. Additional searches were conducted. Study characteristics and results were extracted and compared.
RESULTS: In summary, 20 studies were included in this review. Most studies investigated costs per patient, amounting to total costs between €9741€ to €114,605. Six studies confirmed a rise in costs with disease progression, peaking close to the death of a patient. National costs for amyotrophic lateral sclerosis varied between €149 million and €1329 million.
CONCLUSION: Most of these studies suggest the economic burden of amyotrophic lateral sclerosis to be considerable. However, further research is needed to establish a cost-effective health policy in consideration of disease severities.

Entities:  

Keywords:  Amyotrophic lateral sclerosis; Cost-of-illness; Economic burden; Healthcare costs; Motor neuron disease; Systematic review

Year:  2021        PMID: 34143346     DOI: 10.1007/s10198-021-01328-7

Source DB:  PubMed          Journal:  Eur J Health Econ        ISSN: 1618-7598


  55 in total

1.  Adult onset motor neuron disease: worldwide mortality, incidence and distribution since 1950.

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Journal:  J Neurol Neurosurg Psychiatry       Date:  1992-12       Impact factor: 10.154

Review 2.  The epidemiology of ALS and the role of population-based registries.

Authors:  Ettore Beghi; Giancarlo Logroscino; Adriano Chiò; Orla Hardiman; Douglas Mitchell; Robert Swingler; Bryan J Traynor
Journal:  Biochim Biophys Acta       Date:  2006-09-29

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Review 4.  Amyotrophic Lateral Sclerosis.

Authors:  Robert H Brown; Ammar Al-Chalabi
Journal:  N Engl J Med       Date:  2017-07-13       Impact factor: 91.245

5.  El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis. Subcommittee on Motor Neuron Diseases/Amyotrophic Lateral Sclerosis of the World Federation of Neurology Research Group on Neuromuscular Diseases and the El Escorial "Clinical limits of amyotrophic lateral sclerosis" workshop contributors.

Authors:  B R Brooks
Journal:  J Neurol Sci       Date:  1994-07       Impact factor: 3.181

6.  Long-term survival in amyotrophic lateral sclerosis: a population-based study.

Authors:  Elisabetta Pupillo; Paolo Messina; Giancarlo Logroscino; Ettore Beghi
Journal:  Ann Neurol       Date:  2014-02-24       Impact factor: 10.422

7.  Incidence of amyotrophic lateral sclerosis in Europe.

Authors:  Giancarlo Logroscino; Bryan J Traynor; Orla Hardiman; Adriano Chiò; Douglas Mitchell; Robert J Swingler; Andrea Millul; Emma Benn; Ettore Beghi
Journal:  J Neurol Neurosurg Psychiatry       Date:  2009-08-25       Impact factor: 10.154

Review 8.  Descriptive epidemiology of amyotrophic lateral sclerosis: new evidence and unsolved issues.

Authors:  G Logroscino; B J Traynor; O Hardiman; A Chio'; P Couratier; J D Mitchell; R J Swingler; E Beghi
Journal:  J Neurol Neurosurg Psychiatry       Date:  2008-01       Impact factor: 10.154

Review 9.  Global epidemiology of amyotrophic lateral sclerosis: a systematic review of the published literature.

Authors:  A Chiò; G Logroscino; B J Traynor; J Collins; J C Simeone; L A Goldstein; L A White
Journal:  Neuroepidemiology       Date:  2013-07-11       Impact factor: 3.282

Review 10.  Amyotrophic lateral sclerosis.

Authors:  Lokesh C Wijesekera; P Nigel Leigh
Journal:  Orphanet J Rare Dis       Date:  2009-02-03       Impact factor: 4.123

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