Literature DB >> 34141306

Cultural affordance, social relationships, and narratives of independence: Understanding the meaning of social care for adults with intellectual disabilities from minority ethnic groups in the UK.

Michael Larkin1, Gemma Unwin2, Malvika Iyer2, Ioanna Tsimopoulou2, Sofia Zahid2, Kulsoom Malik2, Biza Stenfert Kroese2, John L Rose2.   

Abstract

Objectives: To explore the perspective of adults with intellectual disabilities from minority ethnic groups, on their relationship with social care services.
Methods: Thirty-two adults took part in semi-structured interviews. Transcripts were analyzed within a Pluralist framework, adopting the structure of Template Analysis and then drawing on phenomenological, narrative, and discursive approaches.
Results: Our participants were generally positive about the services which they received, which they evaluated primarily in terms of their continuing good relationship(s) with specific workers. Our respondents were sophisticated users of cultural resources and identities; the concept of 'cultural affordance' may be useful alternative to 'cultural competence'. We discuss three distinctive narratives about independence (Stability; Progress; Resistance). Each highlights the importance of maintaining connectedness to others, and the crucial role played by ownership of decision-making. Conclusions: We have developed a set of resources which service providers (and researchers) can use with people with intellectual disabilities, in order to support mutual understanding, service planning and delivery. © The British Society of Developmental Disabilities 2018.

Entities:  

Keywords:  culture; ethnicity; independence; interviews; pluralist; relationships; social care

Year:  2018        PMID: 34141306      PMCID: PMC8115450          DOI: 10.1080/20473869.2018.1469807

Source DB:  PubMed          Journal:  Int J Dev Disabil        ISSN: 2047-3869


  5 in total

Review 1.  Ethnic factors in mental health service utilisation among people with intellectual disability in high-income countries: systematic review.

Authors:  G Durà-Vilà; M Hodes
Journal:  J Intellect Disabil Res       Date:  2011-08-30

Review 2.  Using qualitative methods in research with people who have intellectual disabilities.

Authors:  Nigel Beail; Katie Williams
Journal:  J Appl Res Intellect Disabil       Date:  2014-02-04

3.  Experiences of mental health services by people with intellectual disabilities from different ethnic groups: a Delphi consultation.

Authors:  S Bonell; L Underwood; V Radhakrishnan; J McCarthy
Journal:  J Intellect Disabil Res       Date:  2011-11-02

Review 4.  Eliciting perceptions of satisfaction with services and supports from persons with intellectual disability and developmental disabilities: a review of the literature.

Authors:  S R Copeland; R Luckasson; R Shauger
Journal:  J Intellect Disabil Res       Date:  2014-01-17

5.  Cultural Affordances: Scaffolding Local Worlds Through Shared Intentionality and Regimes of Attention.

Authors:  Maxwell J D Ramstead; Samuel P L Veissière; Laurence J Kirmayer
Journal:  Front Psychol       Date:  2016-07-26
  5 in total

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