Michael Larkin1, Gemma Unwin2, Malvika Iyer2, Ioanna Tsimopoulou2, Sofia Zahid2, Kulsoom Malik2, Biza Stenfert Kroese2, John L Rose2.
Abstract
Objectives: To explore the perspective of adults with intellectual disabilities from minority ethnic groups, on their relationship with social care services.
Methods: Thirty-two adults took part in semi-structured interviews. Transcripts were analyzed within a Pluralist framework, adopting the structure of Template Analysis and then drawing on phenomenological, narrative, and discursive approaches.
Results: Our participants were generally positive about the services which they received, which they evaluated primarily in terms of their continuing good relationship(s) with specific workers. Our respondents were sophisticated users of cultural resources and identities; the concept of 'cultural affordance' may be useful alternative to 'cultural competence'. We discuss three distinctive narratives about independence (Stability; Progress; Resistance). Each highlights the importance of maintaining connectedness to others, and the crucial role played by ownership of decision-making. Conclusions: We have developed a set of resources which service providers (and researchers) can use with people with intellectual disabilities, in order to support mutual understanding, service planning and delivery. © The British Society of Developmental Disabilities 2018.
Objectives: To explore the perspective of adults with intellectual disabilities from minority ethnic groups, on their relationship with social care services.
Methods: Thirty-two adults took part in semi-structured interviews. Transcripts were analyzed within a Pluralist framework, adopting the structure of Template Analysis and then drawing on phenomenological, narrative, and discursive approaches.
Results: Our participants were generally positive about the services which they received, which they evaluated primarily in terms of their continuing good relationship(s) with specific workers. Our respondents were sophisticated users of cultural resources and identities; the concept of 'cultural affordance' may be useful alternative to 'cultural competence'. We discuss three distinctive narratives about independence (Stability; Progress; Resistance). Each highlights the importance of maintaining connectedness to others, and the crucial role played by ownership of decision-making. Conclusions: We have developed a set of resources which service providers (and researchers) can use with people with intellectual disabilities, in order to support mutual understanding, service planning and delivery. © The British Society of Developmental Disabilities 2018.
Entities:
Keywords:
culture; ethnicity; independence; interviews; pluralist; relationships; social care
Year: 2018
PMID: 34141306 PMCID: PMC8115450 DOI: 10.1080/20473869.2018.1469807
Source DB: PubMed Journal: Int J Dev Disabil ISSN: 2047-3869