| Literature DB >> 34138835 |
Mark É Czeisler, Elizabeth A Rohan, Stephanie Melillo, Jennifer L Matjasko, Lara DePadilla, Chirag G Patel, Matthew D Weaver, Alexandra Drane, Sarah S Winnay, Emily R Capodilupo, Rebecca Robbins, Joshua F Wiley, Elise R Facer-Childs, Laura K Barger, Charles A Czeisler, Mark E Howard, Shantha M W Rajaratnam.
Abstract
Early during the COVID-19 pandemic, nearly two thirds of unpaid caregivers of adults reported adverse mental or behavioral health symptoms, compared with approximately one third of noncaregivers† (1). In addition, 27% of parents of children aged <18 years reported that their mental health had worsened during the pandemic (2). To examine mental health during the COVID-19 pandemic among U.S. adults on the basis of their classification as having a parenting role (i.e., unpaid persons caring for children and adolescents aged <18 years, referred to as children in this report) or being an unpaid caregiver of adults (i.e., persons caring for adults aged ≥18 years),§ CDC analyzed data from cross-sectional surveys that were administered during December 2020 and February-March 2021 for The COVID-19 Outbreak Public Evaluation (COPE) Initiative.¶ Respondents were categorized as parents only, caregivers of adults only, parents-caregivers (persons in both roles), or nonparents/noncaregivers (persons in neither role). Adjusted odds ratios (aORs) for any adverse mental health symptoms, particularly suicidal ideation, were higher among all respondents who were parents, caregivers of adults, or both compared with respondents who were nonparents/noncaregivers and were highest among persons in both roles (parents-caregivers) (any adverse mental health symptoms: aOR = 5.1, 95% confidence interval [CI] = 4.1-6.2; serious suicidal ideation: aOR = 8.2, 95% CI = 6.5-10.4). These findings highlight that parents and caregivers, especially those balancing roles both as parents and caregivers, experienced higher levels of adverse mental health symptoms during the COVID-19 pandemic than adults without these responsibilities. Caregivers who had someone to rely on for support had lower odds of experiencing any adverse mental health symptoms. Additional measures are needed to improve mental health among parents, caregivers, and parents-caregivers.Entities:
Mesh:
Year: 2021 PMID: 34138835 PMCID: PMC8220951 DOI: 10.15585/mmwr.mm7024a3
Source DB: PubMed Journal: MMWR Morb Mortal Wkly Rep ISSN: 0149-2195 Impact factor: 17.586
Demographic characteristics of respondents, by parent/caregiver role — The COVID-19 Outbreak Public Evaluation Initiative, United States, December 2020 and February–March 2021
| Characteristic | Weighted no. (%)* | |||||
|---|---|---|---|---|---|---|
| Total | Nonparents/ Noncaregivers | Parents only, caregivers of adults only, and parents-caregivers† | Parents only | Caregivers of adults only | Parents-caregivers | |
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| Female |
| 3,144 (52.3) | 1,995 (45.0) | 510 (58.2) | 611 (52.2) | 874 (36.6) |
| Male |
| 2,827 (47.1) | 2,400 (54.1) | 360 (41.2) | 552 (47.2) | 1,487 (62.2) |
| Transgender |
| 26 (0.4) | 32 (0.7) | — | — | 26 (1.1) |
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| 18–24 |
| 549 (9.1) | 699 (15.7) | 91 (10.5) | 145 (12.4) | 462 (19.3) |
| 25–44 |
| 1,377 (22.9) | 2,227 (50.2) | 426 (48.6) | 393 (33.6) | 1,409 (58.9) |
| 45–64 |
| 2,293 (38.2) | 1,126 (25.4) | 266 (30.4) | 427 (36.5) | 433 (18.1) |
| ≥65 |
| 1,789 (29.8) | 384 (8.6) | 92 (10.5) | 205 (17.5) | 87 (3.7) |
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| White, non-Hispanic |
| 3,660 (60.9) | 2,637 (59.5) | 550 (62.9) | 711 (60.7) | 1,376 (57.6) |
| Black, non-Hispanic |
| 766 (12.7) | 531 (12.0) | 103 (11.8) | 135 (11.5) | 293 (12.2) |
| Asian, non-Hispanic |
| 408 (6.8) | 181 (4.1) | 43 (4.9) | 67 (5.7) | 71 (3.0) |
| Other, multiple races, non-Hispanic¶ |
| 220 (3.7) | 162 (3.6) | 36 (4.2) | 61 (5.2) | 64 (2.7) |
| Hispanic, any race |
| 955 (15.9) | 925 (20.9) | 142 (16.3) | 196 (16.8) | 587 (24.5) |
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| Employed |
| 2,645 (44.0) | 3,167 (71.4) | 518 (59.2) | 654 (55.9) | 1,995 (83.4) |
| ≤40 hrs, <20% remote |
| 970 (16.1) | 531 (12.0) | 153 (17.5) | 179 (15.3) | 199 (8.3) |
| ≤40 hrs, 20%–80% remote |
| 448 (7.5) | 761 (17.2) | 102 (11.7) | 144 (12.3) | 515 (21.5) |
| ≤40 hrs, >80% remote |
| 490 (8.2) | 387 (8.7) | 76 (8.7) | 82 (7.0) | 228 (9.5) |
| >40 hrs, <20% remote |
| 341 (5.7) | 227 (5.1) | 66 (7.6) | 79 (6.8) | 81 (3.4) |
| >40 hrs, 20%–80% remote |
| 224 (3.7) | 896 (20.2) | 80 (9.1) | 117 (10.0) | 699 (29.2) |
| >40 hrs, >80% remote |
| 172 (2.9) | 366 (8.3) | 41 (4.7) | 53 (4.6) | 272 (11.4) |
| Unemployed |
| 1,160 (19.3) | 632 (14.2) | 208 (23.8) | 215 (18.4) | 208 (8.7) |
| Retired |
| 2,010 (33.5) | 508 (11.4) | 124 (14.2) | 265 (22.7) | 119 (5.0) |
| Student |
| 193 (3.2) | 129 (2.9) | 24 (2.8) | 36 (3.0) | 69 (2.9) |
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| <3 mos |
| — | 993 (22.4) | 183 (20.9) | 357 (30.5) | 454 (19.0) |
| 4–12 mos |
| — | 1,368 (30.8) | 180 (20.5) | 264 (22.6) | 924 (38.6) |
| >1 yr |
| — | 2,075 (46.8) | 513 (58.6) | 549 (46.9) | 1,013 (42.4) |
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| <10 |
| — | — | 145 (16.5) | — | 261 (10.9) |
| 10–20 |
| — | — | 207 (23.7) | — | 377 (15.8) |
| 21–40 |
| — | — | 211 (24.1) | — | 570 (23.8) |
| 41–60 |
| — | — | 92 (10.5) | — | 374 (15.7) |
| >60 |
| — | — | 220 (25.2) | — | 808 (33.8) |
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| <10 |
| — | — | — | 317 (27.1) | 239 (10.0) |
| 10–20 |
| — | — | — | 363 (31.0) | 457 (19.1) |
| 21–40 |
| — | — | — | 229 (19.6) | 606 (25.4) |
| 41–60 |
| — | — | — | 80 (6.8) | 352 (14.7) |
| >60 |
| — | — | — | 182 (15.6) | 737 (30.8) |
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| Age-related health decline |
| — | — | — | 477 (40.8) | 587 (24.5) |
| Cognitive impairments |
| — | — | — | 188 (16.1) | 339 (14.2) |
| Chronic health condition |
| — | — | — | 303 (25.9) | 662 (27.7) |
| Acute health condition |
| — | — | — | 118 (10.1) | 405 (16.9) |
| Mental health or substance use condition |
| — | — | — | 162 (13.9) | 573 (24.0) |
| Active case of COVID-19 |
| — | — | — | 96 (8.2) | 659 (27.5) |
| Risk for severe COVID-19 |
| — | — | — | 190 (16.3) | 637 (26.6) |
| Other |
| — | — | — | 165 (14.1) | 155 (6.5) |
* Weighted numbers and percentages might not sum to expected values because of rounding.
† Parents and unpaid caregivers of adults were self-identified. Parents were defined as persons who had provided unpaid care to relatives or friends aged <18 years to help them take care of themselves at any time in the last 3 months. Unpaid caregivers of adults were defined as persons who had provided unpaid care to relatives or friends aged ≥18 years to help them take care of themselves at any time in the last 3 months. Respondents answered questions about parenting and caregiving separately. Respondents were categorized as parents only, caregivers (of adults) only, parents-caregivers (persons in both roles), or nonparents/noncaregivers. Whether adults in parenting roles were biologic or legal parents or guardians of the children for whom they were providing care is not known, nor is it known whether adults were legal dependents of their caregivers. This column includes all parents, caregivers of adults, and parents-caregivers listed in the next three columns. Weighted numbers and percentages might not sum to expected values because of rounding. Unweighted numbers and percentages for key demographic variables were as follows: survey wave (December 2020: 5,188 [49.7%]; February–March 2021: 5,256 [50.3%]), gender (female: 5,429 [52.0%]; male: 4,958 [47.5%]; transgender: 35 [0.3%]; none of these: 22 [0.2%]), age group (18–24 years: 867 [8.3%]; 25–44 years: 3,681 [35.2%]; 45–64 years: 2,994 [28.7%]; ≥65 years: 2,902 [27.8%]), and race/ethnicity (non-Hispanic White: 7,737 [74.1%]; non-Hispanic Black: 1,058 [10.1%]; non-Hispanic Asian: 529 [5.1%]; non-Hispanic other or multiple races: 353 [3.4%]; Hispanic or Latino: any race or races, 767 [7.3%]).
§ Respondents who chose “none of these” are not shown because of small numbers (total respondents: weighted n = 20, caregivers: weighted n = 10). Cells with counts <10 are not shown for privacy reasons.
¶ Includes respondents who identified as non-Hispanic and as more than one race or as American Indian or Alaska Native, Native Hawaiian or Other Pacific Islander, or all other races.
** Caregivers of adults could select multiple answers.
Prevalence of and adjusted odds ratios for adverse mental health symptoms, by parent/caregiver role and reason for providing care for adults — The COVID-19 Outbreak Public Evaluation Initiative, United States, December 2020 and February–March 2021
| Caregiver role and reason for providing care | Symptoms | |||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Total | Anxiety or depression* | COVID-19 TSRD† | Past-month passive suicidal ideation§ | Past-month serious suicidal ideation§ | Any of these symptoms | |||||||
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| Nonparent/
Noncaregiver |
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| 1,327 (22.1) | (20.8–23.4) | 1,209 (20.1) | (18.8–21.4) | 580 (9.6) | (8.7–10.7) | 269 (4.5) | (3.8–5.3) | 1,925 (32.0) | (30.6–33.5) |
| Parent only, caregiver of adults only, or parent-caregiver |
|
| 2,453 (55.3) | (53.4–57.2) | 2,387 (53.8) | (51.9–55.7) | 1,741 (39.3) | (37.4–41.1) | 1,428 (32.2) | (30.4–34.0) | 3,076 (69.3) | (67.6–71.0) |
| Parent only |
|
| 315 (35.9) | (32.2–39.8) | 304 (34.8) | (31.0–38.7) | 162 (18.5) | (15.2–22.2) | 79 (9.0) | (6.9–11.4) | 443 (50.6) | (46.6–54.6) |
| Caregiver of adults only |
|
| 454 (38.8) | (35.2–42.5) | 425 (36.3) | (32.8–40.0) | 187 (16.0) | (13.5–18.7) | 118 (10.1) | (8.1–12.4) | 591 (50.5) | (46.8–54.2) |
| Parent-caregiver |
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| 1,685 (70.5) | (67.9–72.9) | 1,658 (69.3) | (66.8–71.8) | 1,392 (58.2) | (55.6–60.9) | 1,232 (51.5) | (48.8–54.2) | 2,043 (85.4) | (83.5–87.2) |
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| Parent only |
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| 1.4 (1.1–1.7) | 1.5 (1.2–1.9) | 1.5 (1.2–2.0) | 1.6 (1.1–2.2) | 1.5 (1.2–1.8) | |||||
| Adult caregiver only |
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| 1.9 (1.6–2.3) | 1.8 (1.5–2.2) | 1.3 (1.0–1.7) | 1.7 (1.2–2.3) | 1.8 (1.5–2.1) | |||||
| Parent-caregiver |
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| 3.7 (3.1–4.5) | 3.6 (3.1–4.3) | 5.8 (4.8–7.1) | 8.2 (6.5–10.4) | 5.1 (4.1–6.2) | |||||
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| Age-related health decline |
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| 1.8 (1.4–2.3) | 1.8 (1.5–2.3) | 1.4 (1.1–1.8) | 1.8 (1.3–2.3) | 1.9 (1.5–2.4) | |||||
| Cognitive challenges |
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| 2.0 (1.5–2.7) | 2.0 (1.5–2.6) | 2.3 (1.7–3.0) | 3.1 (2.2–4.4) | 2.2 (1.7–2.8) | |||||
| Chronic health condition |
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| 2.8 (2.2–3.5) | 1.9 (1.6–2.4) | 2.8 (2.2–3.5) | 3.3 (2.5–4.3) | 2.3 (1.8–2.9) | |||||
| Acute health condition |
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| 2.7 (1.9–3.7) | 2.8 (2.1–3.7) | 2.4 (1.8–3.2) | 3.6 (2.6–4.9) | 3.0 (2.1–4.3) | |||||
| Mental health or substance use condition |
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| 3.7 (2.8–5.0) | 3.7 (2.8–4.8) | 3.0 (2.3–3.9) | 3.8 (2.9–5.0) | 5.0 (3.7–6.9) | |||||
| Active case of COVID-19 |
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| 3.8 (2.7–5.1) | 3.1 (2.3–4.1) | 4.2 (3.2–5.6) | 5.5 (4.1–7.5) | 4.4 (3.0–6.4) | |||||
| Risk for severe COVID-19 |
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| 3.4 (2.6–4.4) | 2.8 (2.2–3.6) | 3.5 (2.8–4.5) | 4.7 (3.6–6.1) | 3.9 (3.0–5.2) | |||||
| Other |
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| 1.6 (1.1–2.5) | 1.4 (1.0–1.9) | 1.2 (0.8–1.9) | 2.4 (1.6–3.6) | 1.5 (1.0–2.2) | |||||
Abbreviations: aOR = adjusted odds ratio; ASD = acute stress disorder; CI = confidence interval; CII = Caregiving Intensity Index; GAD-2 = two-item Generalized Anxiety Disorder scale; IES-6 = six-item Impact of Event scale; PHQ-2 = two-item Patient Health Questionnaire; PHQ-4 = four-item Patient Health Questionnaire; PTSD = posttraumatic stress disorder; TSRD = trauma- and stressor-related disorder.
* Symptoms of anxiety and depression were assessed via PHQ-4. Those who scored ≥3 out of 6 on the GAD-2 or PHQ-2 subscales were considered symptomatic for anxiety or depression symptoms.
† Disorders classified as TSRDs in the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, include PTSD, ASD, and adjustment disorders, among others. Symptoms of a TSRD attributed to the COVID-19 pandemic were assessed via IES-6 to screen for overlapping symptoms of PTSD, ASD, and adjustment disorders. The COVID-19 pandemic was specified as the traumatic exposure to record peritraumatic and posttraumatic symptoms associated with the range of stressors introduced by the COVID-19 pandemic. Those who scored ≥1.75 out of 4 were considered symptomatic.
§ Passive suicidal ideation was assessed using an item from the Columbia-Suicide Severity Rating Scale adapted to refer to the past 30 days: “At any time in the past 30 days, have you wished you were dead or wished you could go to sleep and not wake up?” Serious suicidal ideation was assessed using an item from the National Survey on Drug Use and Health adapted to refer to the past 30 days: “At any time in the past 30 days, did you seriously think about trying to kill yourself?”
¶ Weighted numbers and percentages might not sum to expected values because of rounding.
** Parents and unpaid caregivers of adults were self-identified. For this analysis, parents were defined as persons who had provided unpaid care to relatives or friends aged <18 years to help them take care of themselves at any time in the last 3 months. Unpaid caregivers of adults were defined as persons who had provided unpaid care to relatives or friends aged ≥18 years to help them take care of themselves at any time in the last 3 months. Respondents answered questions about these two roles separately. Respondents were categorized as parents only, caregivers of adults only, parents-caregivers (persons in both roles), or nonparents/noncaregivers. Whether adults in parenting roles were biologic or legal parents or guardians of the children for whom they were providing care is not known, nor is it known whether adults were legal dependents of their caregivers.
†† Referent: nonparent/noncaregiver. Weighted multivariable logistic regression models were used to estimate aORs for each adverse mental health symptom, with survey wave, gender, age group, race/ethnicity, sexual orientation, disability status, education attainment, region, urbanicity, and employment (work hours per week and remote work percentage) as covariates. P values <0.05 were considered statistically significant. Models with all unpaid caregiver statuses included 10,017 respondents because persons who answered “prefer not to say” for sexual orientation or disability status and those who reported invalid zip codes were excluded. Models with unpaid caregivers of adults included 3,155 respondents; respondents were excluded for the same reasons.
§§ Referent: not providing care to an adult for this reason. This referent group includes all adults not providing care for the listed reason, including those who were nonparents/noncaregivers, parents only, and caregivers of adults who were providing care for different reasons.
FIGUREFactors* associated with adverse mental health symptoms among unpaid caregivers of adults and parents-caregivers — The COVID-19 Outbreak Public Evaluation Initiative, United States, December 2020 and February–March 2021
Abbreviations: ASD = acute stress disorder; CII = Caregiving Intensity Index; GAD-2 = two-item Generalized Anxiety Disorder scale; IES-6 = six-item Impact of Event scale; PHQ-2 = two-item Patient Health Questionnaire; PHQ-4 = four-item Patient Health Questionnaire; PTSD = posttraumatic stress disorder; TSRD = trauma- and stressor-related disorder.
* Caregiving statements were taken from the ARCHANGELS short-form CII, a copyrighted instrument available for use only with permission.
† Adjusted odds ratios, with 95% confidence intervals indicated by error bars, were estimated using weighted multivariable logistic regression models. The primary model is adjusted for survey wave, gender, age group, race/ethnicity, sexual orientation, disability status, education attainment, region, urbanicity, and employment (including work hours per week and remote work percentage), parental status (i.e., whether caregivers were parents-caregivers), duration of caregiving, hours of caregiving per week, and person receiving care. Additional separate models were analyzed for each CII item that was based on perceived levels of agreement with statements regarding caregiving-related financial strain, family strife, preparedness, support, confidence, personal freedom, positive feelings, and resentment.
§ The presence of one or more of the following was considered an adverse mental health symptom: anxiety symptoms, depression symptoms, COVID-19 TSRD symptoms, passive suicidal ideation, or having seriously considered suicide in the past 30 days. Symptoms of anxiety and depression were assessed via PHQ-4. Those who scored ≥3 out of 6 on the GAD-2 and PHQ-2 subscales were considered symptomatic for these respective conditions. Disorders classified as TSRDs in the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition, include PTSD, ASD, and adjustment disorders, among others. Symptoms of a TSRD attributed to the COVID-19 pandemic were assessed via IES-6 to screen for overlapping symptoms of PTSD, ASD, and adjustment disorders. The COVID-19 pandemic was specified as the traumatic exposure to record peritraumatic and posttraumatic symptoms associated with the range of stressors introduced by the COVID-19 pandemic. Those who scored ≥1.75 out of 4 were considered symptomatic. Passive suicidal ideation was assessed using an item from the Columbia-Suicide Severity Rating Scale adapted to refer to the past 30 days: “At any time in the past 30 days, have you wished you were dead or wished you could go to sleep and not wake up?” Serious suicidal ideation was assessed using an item from the National Survey on Drug Use and Health, adapted to refer to the past 30 days: “At any time in the past 30 days, did you seriously think about trying to kill yourself?”
¶ Parents and unpaid caregivers of adults were self-identified. Unpaid caregivers of adults were defined as persons who had provided unpaid care to relatives or friends aged ≥18 years to help them take care of themselves at any time in the last 3 months. Parents were defined as persons who had provided unpaid care to relatives or friends aged <18 years to help them take care of themselves at any time in the last 3 months. Parents-caregivers had both roles. All unpaid caregivers of adults were included in this analysis, including caregivers of adults only (i.e., not parents) and parents-caregivers.