Carly Robinson1, Elizabeth Hibbert2, Anthony J Bastin3, Joel Meyer4, Ashley Montgomery-Yates5, Tara Quasim1,6, Andrew Slack4, Mark E Mikkelsen7, Theodore J Iwashyna8,9, Kimberley J Haines2,10, Carla M Sevin11, Joanne McPeake1,6, Leanne M Boehm12,13. 1. Glasgow Royal Infirmary, NHS Greater Glasgow and Clyde, Glasgow, United Kingdom. 2. Department of Physiotherapy, Western Health, Melbourne, VIC, Australia. 3. Department of Perioperative Medicine, St Bartholomew's Hospital, Barts Health NHS Trust, London, United Kingdom. 4. Guy's & St Thomas' NHS Foundation Trust, London, United Kingdom. 5. Division of Pulmonary, Critical Care and Sleep Medicine, University of Kentucky, Lexington, KY. 6. School of Medicine, Dentistry and Nursing, University of Glasgow, Glasgow, United Kingdom. 7. Division of Pulmonary, Allergy, and Critical Care Medicine, Hospital of the University of Pennsylvania, Philadelphia, PA. 8. Department of Medicine, Division of Pulmonary and Critical Care, University of Michigan, Ann Arbor, MI. 9. Center for Clinical Management Research, VA Ann Arbor Healthcare System, Ann Arbor, MI. 10. School of Physiotherapy, The University of Melbourne, VIC, Australia. 11. Department of Medicine, Division of Allergy, Pulmonary, and Critical Care Medicine, Vanderbilt University Medical Center, Nashville, TN. 12. School of Nursing, Vanderbilt University, Nashville, TN. 13. Cognitive Impairment, Brain dysfunction, and Survivorship (CIBS) Center at Vanderbilt, Nashville, TN.
Abstract
Many clinicians have implemented follow-up and aftercare to support patients following ICU. Some of this care is supported and facilitated by peer volunteers. There is limited contemporary work that has explicitly explored volunteer roles within ICU recovery services or the experience of volunteers undertaking these roles. We sought to explore the experience of survivors of critical illness, as volunteers, involved in ICU recovery services and understand their motivation for undertaking these roles. DESIGN: Qualitative exploration using in-depth semistructured interviews. The study design used an inductive content analysis process. We also documented the roles that were adopted by volunteers in each site involved in the study. SETTING: Patients and caregivers were sampled from seven sites across three continents. PATIENTS AND SUBJECTS: Patients and caregivers who had adopted peer-volunteering roles were undertaken. INTERVENTIONS: None. MEASUREMENTS AND MAIN RESULTS: Twelve patient and caregiver peer volunteers were interviewed. Four key themes were identified. These themes related to the experience of volunteers within ICU recovery services and their motivation for undertaking these roles: 1) self-belief and acceptance, 2) developing peer support, 3) social roles and a sense of purpose, and 4) giving back. Overwhelmingly, participants were positive about the role of the volunteer in the critical care setting. CONCLUSIONS: Peer volunteers undertake a variety of roles in ICU recovery services and during recovery more generally. These roles appear to be of direct benefit to those in these roles. Future research is needed to develop these roles and fully understand the potential impact on the service, including the impact on other patients.
Many clinicians have implemented follow-up and aftercare to support patients following ICU. Some of this care is supported and facilitated by peer volunteers. There is limited contemporary work that has explicitly explored volunteer roles within ICU recovery services or the experience of volunteers undertaking these roles. We sought to explore the experience of survivors of critical illness, as volunteers, involved in ICU recovery services and understand their motivation for undertaking these roles. DESIGN: Qualitative exploration using in-depth semistructured interviews. The study design used an inductive content analysis process. We also documented the roles that were adopted by volunteers in each site involved in the study. SETTING: Patients and caregivers were sampled from seven sites across three continents. PATIENTS AND SUBJECTS: Patients and caregivers who had adopted peer-volunteering roles were undertaken. INTERVENTIONS: None. MEASUREMENTS AND MAIN RESULTS: Twelve patient and caregiver peer volunteers were interviewed. Four key themes were identified. These themes related to the experience of volunteers within ICU recovery services and their motivation for undertaking these roles: 1) self-belief and acceptance, 2) developing peer support, 3) social roles and a sense of purpose, and 4) giving back. Overwhelmingly, participants were positive about the role of the volunteer in the critical care setting. CONCLUSIONS: Peer volunteers undertake a variety of roles in ICU recovery services and during recovery more generally. These roles appear to be of direct benefit to those in these roles. Future research is needed to develop these roles and fully understand the potential impact on the service, including the impact on other patients.
Authors: Joanne McPeake; Leanne M Boehm; Elizabeth Hibbert; Rita N Bakhru; Anthony J Bastin; Brad W Butcher; Tammy L Eaton; Wendy Harris; Aluko A Hope; James Jackson; Annie Johnson; Janet A Kloos; Karen A Korzick; Pamela MacTavish; Joel Meyer; Ashley Montgomery-Yates; Tara Quasim; Andrew Slack; Dorothy Wade; Mary Still; Giora Netzer; Ramona O Hopkins; Mark E Mikkelsen; Theodore J Iwashyna; Kimberley J Haines; Carla M Sevin Journal: Crit Care Explor Date: 2020-04-29
Authors: Dorothy M Wade; David C Howell; John A Weinman; Rebecca J Hardy; Michael G Mythen; Chris R Brewin; Susana Borja-Boluda; Claire F Matejowsky; Rosalind A Raine Journal: Crit Care Date: 2012-10-15 Impact factor: 9.097
Authors: Oliver J Schofield-Robinson; Sharon R Lewis; Andrew F Smith; Joanne McPeake; Phil Alderson Journal: Cochrane Database Syst Rev Date: 2018-11-02