Literature DB >> 34098745

Pragmatic adaptations of telehealth-delivered caregiver coaching for children with autism in the context of COVID-19: Perspectives from the United States and South Africa.

Lauren Franz1,2,3, Jill Howard1,2, Marisa Viljoen3, Linmarie Sikich1,2, Tara Chandrasekhar1,2, Scott H Kollins1, Lawrence Lee1,2, Minkateko Ndlovu3, Maura Sabatos-DeVito1,2, Noleen Seris3, Nokuthula Shabalala3, Marina Spanos1,2, Petrus J de Vries3, Geraldine Dawson1,2.   

Abstract

LAY ABSTRACT: COVID-19 caused many autism spectrum disorder caregiver-coaching studies to move to telehealth. Telehealth can increase the diversity of people who take part in research. This matters because most autism spectrum disorder studies have included people who have resources, are White, and live in North America and Europe. When study participants are similar, it is hard to understand which interventions can help different types of people who live in different parts of the world. While telehealth may allow more people to take part in research, it needs to "fit" the local context and consider the "digital divide" because many people around the world have no access to computers and the Internet. This short report describes changes to two research studies that include caregiver coaching based on the Early Start Denver Model in the United States and South Africa. We describe how the local context, including technology and Internet access, guided the telehealth approach. By doing so, we highlight ways to make telehealth available to more people around the world. The pandemic can help us understand how telehealth can "fit" diverse places and support high-quality research. It is important that study changes are tracked and we assess how well the changes work. COVID-19 telehealth changes to caregiver coaching can result in new ways to reach more people around the world.

Entities:  

Keywords:  adaptation; autism spectrum disorder; caregiver coaching; digital divide; telehealth

Mesh:

Year:  2021        PMID: 34098745      PMCID: PMC8651809          DOI: 10.1177/13623613211022585

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  10 in total

1.  COVID-19 and Autism Research: Perspectives from Around the Globe.

Authors:  David G Amaral; Petrus J de Vries
Journal:  Autism Res       Date:  2020-06       Impact factor: 5.216

2.  Considerations in implementing evidence-based early autism spectrum disorder interventions in community settings.

Authors:  Aubyn C Stahmer; Sarah Dababnah; Sarah R Rieth
Journal:  Pediatr Med       Date:  2019-05-29

3.  The importance of context in early autism intervention: A qualitative South African study.

Authors:  Jessy Guler; Petrus J de Vries; Noleen Seris; Nokuthula Shabalala; Lauren Franz
Journal:  Autism       Date:  2017-09-15

4.  Digitization of healthcare organizations: The digital health landscape and information theory.

Authors:  Michelle Helena van Velthoven; Carlos Cordon; Goutam Challagalla
Journal:  Int J Med Inform       Date:  2019-01-11       Impact factor: 4.046

5.  Randomized, controlled trial of an intervention for toddlers with autism: the Early Start Denver Model.

Authors:  Geraldine Dawson; Sally Rogers; Jeffrey Munson; Milani Smith; Jamie Winter; Jessica Greenson; Amy Donaldson; Jennifer Varley
Journal:  Pediatrics       Date:  2009-11-30       Impact factor: 7.124

6.  The Feasibility and Effectiveness of PASS Plus, A Lay Health Worker Delivered Comprehensive Intervention for Autism Spectrum Disorders: Pilot RCT in a Rural Low and Middle Income Country Setting.

Authors:  Gauri Divan; Vivek Vajaratkar; Percy Cardozo; Shilpa Huzurbazar; Mamta Verma; Elizabeth Howarth; Richard Emsley; Carol Taylor; Vikram Patel; Jonathan Green
Journal:  Autism Res       Date:  2018-08-10       Impact factor: 5.216

7.  Advancing a conceptual model of evidence-based practice implementation in public service sectors.

Authors:  Gregory A Aarons; Michael Hurlburt; Sarah McCue Horwitz
Journal:  Adm Policy Ment Health       Date:  2011-01

8.  Naturalistic Developmental Behavioral Interventions: Empirically Validated Treatments for Autism Spectrum Disorder.

Authors:  Laura Schreibman; Geraldine Dawson; Aubyn C Stahmer; Rebecca Landa; Sally J Rogers; Gail G McGee; Connie Kasari; Brooke Ingersoll; Ann P Kaiser; Yvonne Bruinsma; Erin McNerney; Amy Wetherby; Alycia Halladay
Journal:  J Autism Dev Disord       Date:  2015-08

9.  The FRAME: an expanded framework for reporting adaptations and modifications to evidence-based interventions.

Authors:  Shannon Wiltsey Stirman; Ana A Baumann; Christopher J Miller
Journal:  Implement Sci       Date:  2019-06-06       Impact factor: 7.327

10.  The Digital Divide in Technologies for Autism: Feasibility Considerations for Low- and Middle-Income Countries.

Authors:  Aubrey J Kumm; Marisa Viljoen; Petrus J de Vries
Journal:  J Autism Dev Disord       Date:  2021-06-13
  10 in total
  2 in total

1.  Psychosocial and Behavioral Effects of the COVID-19 Pandemic on Children and Adolescents with Autism and Their Families: Overview of the Literature and Initial Data from a Multinational Online Survey.

Authors:  Helene Kreysa; Dana Schneider; Andrea Erika Kowallik; Samaneh Sadat Dastgheib; Cem Doğdu; Gabriele Kühn; Jenny Marianne Ruttloff; Stefan R Schweinberger
Journal:  Healthcare (Basel)       Date:  2022-04-12

Review 2.  A Review of Parent-Implemented Early Start Denver Model for Children with Autism Spectrum Disorder.

Authors:  Rong-An Jhuo; Szu-Yin Chu
Journal:  Children (Basel)       Date:  2022-02-18
  2 in total

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