Maria Bäck1,2,3, Margret Leosdottir4,5, Emil Hagström6,7, Anna Norhammar8, Emma Hag9, Tomas Jernberg10, Lars Wallentin6,7, Bertil Lindahl6,7, Kristina Hambraeus11. 1. Department of Health, Medicine and Caring Sciences, Unit of Physiotherapy, Linköping University, 581 83 Linköping, Sweden. 2. Department of Molecular and Clinical Medicine, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, 405 30 Gothenburg, Sweden. 3. Department of Physiotherapy, Sahlgrenska University Hospital, Vita Stråket 13, 413 45 Gothenburg, Sweden. 4. Department of Clinical Sciences Malmö, Faculty of Medicine, Lund University, 205 02 Malmö, Sweden. 5. Department of Cardiology, Skane University Hospital, Jan Waldenströms gata 35, 214 28 Malmö, Sweden. 6. Department of Medical Sciences, Uppsala University, 751 85 Uppsala, Sweden. 7. Uppsala Clinical Research Centre, Uppsala University, Dag Hammarskjölds väg 38, 751 85 Uppsala, Sweden. 8. Department of Medicine K2, Unit of Cardiology, Karolinska Institutet, Karolinska University Hospital, Solna, 17176 Stockholm and Capio S:t Görans hospital, Stockholm, Sweden. 9. Department of Internal Medicine, County Hospital Ryhov, 551 11 Jönköping, Sweden. 10. Department of Clinical Sciences, Danderyd Hospital, Karolinska Institute, 182 88 Stockholm, Sweden. 11. Department of Cardiology, Falu Hospital, Åsgatan 41, 791 71 Falun, Sweden.
Abstract
AIMS: The quality registry SWEDEHEART covers data across the patient pathway after an acute myocardial infarction (MI), from hospital care to secondary prevention. Although cardiac rehabilitation (CR) is strongly recommended after an MI, there is still heterogeneity regarding standards, uptake, and adherence rates. The aim of the SWEDEHEART-CR registry is to provide continuous information on secondary prevention and CR performance to support the audit and development of evidence-based practice. To facilitate quality improvement and research initiatives, a description of the characteristics and development of the SWEDEHEART-CR registry is needed. METHODS AND RESULTS: The SWEDEHEART-CR registry starts with data obtained during hospital care and then collects data at out-patient visits 2 months and 1-year after discharge, and at start and end of an exercise-based CR programme. The registry data covers comorbidities, biochemistry, blood pressure, anthropometric variables, medication, psychosocial- and lifestyle variables, readmissions, patient-reported outcome measures, attendance in CR-related programmes, and physical fitness variables. Over 100 000 patients with MI have been included in the SWEDEHEART-CR registry since its start in 2005. From initially covering 35 centres (47%) and 2200 patients annually (27%), SWEDEHEART-CR has developed to a nation-wide registry with 75 centres (100%) and 8800 patients annually (80%) in 2020. CONCLUSION: The SWEDEHEART-CR registry includes a high proportion of the national MI population entering a CR programme and is a powerful tool for quality audit, improvement, and research. The registry provides insights into the characteristics, treatment, and outcomes of evidence-based secondary preventive practice, ultimately leading to better cardiovascular health. Published on behalf of the European Society of Cardiology.
AIMS: The quality registry SWEDEHEART covers data across the patient pathway after an acute myocardial infarction (MI), from hospital care to secondary prevention. Although cardiac rehabilitation (CR) is strongly recommended after an MI, there is still heterogeneity regarding standards, uptake, and adherence rates. The aim of the SWEDEHEART-CR registry is to provide continuous information on secondary prevention and CR performance to support the audit and development of evidence-based practice. To facilitate quality improvement and research initiatives, a description of the characteristics and development of the SWEDEHEART-CR registry is needed. METHODS AND RESULTS: The SWEDEHEART-CR registry starts with data obtained during hospital care and then collects data at out-patient visits 2 months and 1-year after discharge, and at start and end of an exercise-based CR programme. The registry data covers comorbidities, biochemistry, blood pressure, anthropometric variables, medication, psychosocial- and lifestyle variables, readmissions, patient-reported outcome measures, attendance in CR-related programmes, and physical fitness variables. Over 100 000 patients with MI have been included in the SWEDEHEART-CR registry since its start in 2005. From initially covering 35 centres (47%) and 2200 patients annually (27%), SWEDEHEART-CR has developed to a nation-wide registry with 75 centres (100%) and 8800 patients annually (80%) in 2020. CONCLUSION: The SWEDEHEART-CR registry includes a high proportion of the national MI population entering a CR programme and is a powerful tool for quality audit, improvement, and research. The registry provides insights into the characteristics, treatment, and outcomes of evidence-based secondary preventive practice, ultimately leading to better cardiovascular health. Published on behalf of the European Society of Cardiology.
Authors: Sophia Humphries; John Wallert; Katarina Mars; Claes Held; Robin Hofmann; Erik M G Olsson Journal: Eur Heart J Acute Cardiovasc Care Date: 2022-06-22