| Literature DB >> 34025466 |
Ines Testoni1,2, Claudia Azzola1, Noemi Tribbia1, Gianmarco Biancalani1, Erika Iacona1, Hod Orkibi2, Bracha Azoulay2.
Abstract
In Italy, in the very first phase of the COVID-19 pandemic there was a dramatic rise in mortality. However, families were forbidden because of lockdown regulations to be with their loved ones at their deathbeds or to hold funerals. This qualitative study examined bereavement experiences among family members, how they processed their grief, and how they used social networks in particular by uploading photographs during the working-through of bereavement. The sample was composed of 40 individuals aged 23-63 (80% women) from different Italian cities severely impacted by the virus, including a subgroup from the province of Bergamo, which was the city with the highest mortality rate during that time. All interviews were conducted by phone, Skype, or Zoom. Then, the transcriptions underwent a thematic analysis using Atlas.ti. The main themes that emerged were: abandonment anger and guilt, dehumanized disappeared, derealization and constant rumination, and social support and the importance of sharing photos on Facebook. Importantly, the use of social networks proved to be a valuable source of support and photographs were a powerful tool in facilitating the process of mourning by encouraging narration and sharing. Grief had a complex profile: on the one hand, it was traumatic and characterized by all the risk factors causing mourners to experience prolonged grief, but on the other, some features were similar to ambiguous loss (that occurs without closure and clear understanding) because of the impossibility to be with their relatives in their final moments. The possible relationships between ambiguous loss, the use of internet, and the risk of prolonged grief are discussed.Entities:
Keywords: COVID-19; ambiguous loss; facebook; photography; prolonged grief; traumatic loss
Year: 2021 PMID: 34025466 PMCID: PMC8138554 DOI: 10.3389/fpsyt.2021.620583
Source DB: PubMed Journal: Front Psychiatry ISSN: 1664-0640 Impact factor: 4.157
Results.
| 1. Abandonment: anger and guilt | (a) Feeling abandonment by the health services | 34 | The healthcare system failed to respect the right to care of its citizens. It did not respect the right of every citizen to be treated. My father told me on the last day that I spoke to him that “we have been abandoned,” and I think this is true, not because of the doctors but because of those above them who were unable to handle the emergency. The physicians and nurses are not guilty because it was a terrible experience for them too, and many of them died because they didn't even know what was happening. Both my parents fell ill and were not protected. |
| (b) Desire of revenge | 17 | At that moment I was not thinking about the lack of family but about my mother, who had passed with no one near her to watch over her and certainly did not deserve to die in that inhuman way. They covered her with a sheet and zipped up a black body bag. That's all. It is not the right way to treat a human being who dies in this way. | |
| (c) Sense of abandonment their loved | 19 | First of all, what makes us all suffer is the fact that we could not be near her, holding her hand in her last moments. I feel stupid saying this, but I suffer because I feel I abandoned my mother at the most important moment and inside, I imagine her dying alone. When I was finally able to go to her grave, I apologized to her and explained that I was not allowed to be near her when she died. | |
| 2. Dehumanized disappeared | (a) Non-acceptance of reality | 30 | What doesn't allow me to accept reality, like all those who have had an experience similar to mine, is the fact that I abandoned my mother. My mother in this way has become just a number in the daily statistics on the lethality of the virus. I could not see her again. It is as if she had disappeared. |
| (b) Lack of humanity | 16 | It is incredible, but I could not be next to my father during his illness, he died alone, even afterwards I had no opportunity to say goodbye to him. He was treated like a piece of dead meat, he was taken naked, without clothes, they washed him down with disinfectant and he was put in a black bag. It was heart-breaking, these are all things that give me no peace and make me think that my father was just a piece of meat. | |
| (c) Lack of funeral ceremonies | 17 | I can't get over what happened. Not being able to hold a funeral for my brother made everything difficult for me. A funeral, whether religious or not, is a moment that unites the bereaved who gather and process the sense of loss and take stock of the reality of the end. | |
| (d) Derealization | 30 | Like others with whom I share experiences on Facebook, it often seems like a dream to me too. I still don't really realize what happened. I know he died, rationally, but I can't close the circle without having seen him and without being able to accompany him. It seems to me that everything could go back to the way it was before. He is going to come through the door and that I can wake up from this nightmare. | |
| 3. Derealization and constant rumination | (a) Need for clarity | 13 | It is all too unclear. It is not clear what happened. I'm waiting for the medical records to see, to be able to make sense of it and give me concrete explanations. |
| (b) Constant rumination | 23 | At first I found it hard to believe it because it seemed impossible that it could happen like this. So I started brooding, saying “But no, it's not possible, it can't be like this, what went wrong? It can't have been like that.” And the more I think about it, the angrier I get, it's really difficult to manage because the pain of not being able to see my father for 5 weeks, and in the end not being able to be with him when he died is still unbearable and I keep thinking about it. | |
| (c) Insomnia | 14 | We are all afraid of getting sick, of infecting others and afraid that everything, when we get back to normal, will be forgotten. We were up all night waiting for calls from the hospital. Even now it is difficult to fall asleep. | |
| 4. Social support and the importance of sharing photos on Facebook | (a) - Religion source of support - Religion as an impediment | 7 | The dialogue with God helped me. Religion supported me. At times like this, you either lose faith or gain faith. |
| 6 | Anger makes me think that my father is now just dust. What God can allow all this? What plan does God have for all this to happen? By now I believe that if a God exists, He is a Nazi. Tonight there will be a mass for my father, but right now I have to say.what do I care? | ||
| (b) Support from Social Network | 29 | I liked sharing this photo because here my mother was lively, she smiled, she could move. It was her wedding anniversary, we had prepared a small cocktail party and she was happy, my mother loved to eat, she ate to sample and enjoy. Remembering her like that gave me relief and helps me to think of her as happy. | |
| (c) Importance of sharing photos on Facebook | 15 | I tried to show the anguish through photography. This angel looks out the window. An angel should be in heaven, instead he stands here, looking out the window. I mean we are the angels who are on Earth and the angels who are in heaven are the stars that illuminate us at night. |