Abraham Gallegos1, Rebecca Dudovitz2, Christopher Biely2, Paul J Chung3, Tumaini R Coker4, Elizabeth Barnert2, Alma D Guerrero2, Peter G Szilagyi5, Bergen B Nelson6. 1. Department of Pediatrics, UCLA Mattel Children's Hospital and Children's Discovery & Innovation Institute, David Geffen School of Medicine at University of California (A Gallegos, R Dudovitz, C Biely, PJ Chung, E Barnert, AD Guerrero, PG Szilagyi, ), Los Angeles, Calif; UCLA NRSA T32 Primary Care Research Fellowship, University of California, Los Angeles (A Gallegos, PG Szilagyi, PJ Chung), Calif. Electronic address: abrahamgallegos@mednet.ucla.edu. 2. Department of Pediatrics, UCLA Mattel Children's Hospital and Children's Discovery & Innovation Institute, David Geffen School of Medicine at University of California (A Gallegos, R Dudovitz, C Biely, PJ Chung, E Barnert, AD Guerrero, PG Szilagyi, ), Los Angeles, Calif. 3. Department of Pediatrics, UCLA Mattel Children's Hospital and Children's Discovery & Innovation Institute, David Geffen School of Medicine at University of California (A Gallegos, R Dudovitz, C Biely, PJ Chung, E Barnert, AD Guerrero, PG Szilagyi, ), Los Angeles, Calif; Kaiser Permanente Bernard J. Tyson School of Medicine (PJ Chung), Pasadena, Calif; Department of Health Policy and Management, Fielding School of Public Health, University of California (PJ Chung), Los Angeles, Calif. 4. Department of Pediatrics, University of Washington and Seattle Children's Research Institute (TR Coker), Seattle, Wash. 5. Department of Pediatrics, UCLA Mattel Children's Hospital and Children's Discovery & Innovation Institute, David Geffen School of Medicine at University of California (A Gallegos, R Dudovitz, C Biely, PJ Chung, E Barnert, AD Guerrero, PG Szilagyi, ), Los Angeles, Calif; UCLA NRSA T32 Primary Care Research Fellowship, University of California, Los Angeles (A Gallegos, PG Szilagyi, PJ Chung), Calif. 6. Children's Hospital of Richmond at Virginia Commonwealth University (BB Nelson), Richmond, Va.
Abstract
BACKGROUND AND OBJECTIVE: Racial disparities in diagnosis and receipt of services for early childhood developmental delay (DD) are well known but studies have had difficulties distinguishing contributing patient, healthcare system, and physician factors from underlying prevalence. We examine rates of physician diagnoses of DD by preschool and kindergarten entry controlling for a child's objective development via scoring on validated developmental assessment along with other child characteristics. METHODS: We used data from the preschool and kindergarten entry waves of the Early Childhood Longitudinal Study, Birth Cohort. Dependent variables included being diagnosed with DD by a medical provider and receipt of developmental services. Logistic regression models tested whether a child's race was associated with both outcomes during preschool and kindergarten while controlling for the developmental assessments, as well as other contextual factors. RESULTS: Among 7950 children, 6.6% of preschoolers and 7.5% of kindergarteners were diagnosed with DD. Of preschool children with DD, 66.5% were receiving developmental services, while 69.1% of kindergarten children with DD were receiving services. Children who were Black, Asian, spoke a primary language other than English and had no health insurance were less likely to be diagnosed with DD despite accounting for cognitive ability. Black and Latinx children were less likely to receive services. CONCLUSIONS: Racial minority children are less likely to be diagnosed by their pediatric provider with DD and less likely to receive services despite accounting for a child's objective developmental assessment. The pediatric primary care system is an important target for interventions to reduce these disparities.
BACKGROUND AND OBJECTIVE: Racial disparities in diagnosis and receipt of services for early childhood developmental delay (DD) are well known but studies have had difficulties distinguishing contributing patient, healthcare system, and physician factors from underlying prevalence. We examine rates of physician diagnoses of DD by preschool and kindergarten entry controlling for a child's objective development via scoring on validated developmental assessment along with other child characteristics. METHODS: We used data from the preschool and kindergarten entry waves of the Early Childhood Longitudinal Study, Birth Cohort. Dependent variables included being diagnosed with DD by a medical provider and receipt of developmental services. Logistic regression models tested whether a child's race was associated with both outcomes during preschool and kindergarten while controlling for the developmental assessments, as well as other contextual factors. RESULTS: Among 7950 children, 6.6% of preschoolers and 7.5% of kindergarteners were diagnosed with DD. Of preschool children with DD, 66.5% were receiving developmental services, while 69.1% of kindergarten children with DD were receiving services. Children who were Black, Asian, spoke a primary language other than English and had no health insurance were less likely to be diagnosed with DD despite accounting for cognitive ability. Black and Latinx children were less likely to receive services. CONCLUSIONS: Racial minority children are less likely to be diagnosed by their pediatric provider with DD and less likely to receive services despite accounting for a child's objective developmental assessment. The pediatric primary care system is an important target for interventions to reduce these disparities.
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