Bryan A Sisk1, Ginny Schulz2, Erica C Kaye3, Justin N Baker4, Jennifer W Mack5, James M DuBois6. 1. Department of Pediatrics, Washington University School of Medicine, St. Louis, MO, USA. Electronic address: siskb@wustl.edu. 2. Department of Pediatrics, Washington University School of Medicine, St. Louis, MO, USA. 3. Department of Oncology, St. Jude Children's Research Hospital, Memphis, TN, USA. 4. Department of Oncology, St. Jude Children's Research Hospital, Memphis, TN, USA; Division of Quality of Life and Palliative Care, St. Jude Children's Research Hospital, Memphis, TN, USA. 5. Pediatric Oncology and Division of Population Sciences, Dana-Farber Cancer Institute, Boston, Massachusetts, USA. 6. Department of Medicine, Washington University School of Medicine, St. Louis, MO, USA.
Abstract
OBJECTIVES: To describe the tensions experienced by clinicians and psychosocial professionals that affect communication in pediatric oncology. METHODS: Ten focus groups with nurses, nurse practitioners, physicians, and psychosocial professionals at 2 US institutions. We analyzed transcripts using thematic analysis, assessing tensions experienced when communicating with parents. RESULTS: We identified 5 themes of tensions, defined as challenges experienced when clinicians and psychosocial professionals are trying to achieve multiple conflicting goals or obligations while communicating: (1) Supporting parental hopes while providing honest opinions and information; (2) disclosing all possible outcomes while avoiding the creation of new worries or uncertainties; (3) building relationships while maintaining personal boundaries; (4) disclosing sensitive information while adhering to professional role and perceived authority; (5) validating parental beliefs or decisions while fulfilling obligation for honesty. Some tensions represented conflicts between different communication goals. Others represented conflicts between a communication goal and another obligation. CONCLUSION: Clinicians and psychosocial professionals experience tensions that affect communication with parents in pediatric oncology. Some tensions might be addressed with interventions or education. Others will require further analysis to provide sufficient guidance to clinicians. PRACTICE IMPLICATIONS: Unaddressed tensions might lead to poor communication and clinician burnout. Future work should explore solutions to these tensions.
OBJECTIVES: To describe the tensions experienced by clinicians and psychosocial professionals that affect communication in pediatric oncology. METHODS: Ten focus groups with nurses, nurse practitioners, physicians, and psychosocial professionals at 2 US institutions. We analyzed transcripts using thematic analysis, assessing tensions experienced when communicating with parents. RESULTS: We identified 5 themes of tensions, defined as challenges experienced when clinicians and psychosocial professionals are trying to achieve multiple conflicting goals or obligations while communicating: (1) Supporting parental hopes while providing honest opinions and information; (2) disclosing all possible outcomes while avoiding the creation of new worries or uncertainties; (3) building relationships while maintaining personal boundaries; (4) disclosing sensitive information while adhering to professional role and perceived authority; (5) validating parental beliefs or decisions while fulfilling obligation for honesty. Some tensions represented conflicts between different communication goals. Others represented conflicts between a communication goal and another obligation. CONCLUSION: Clinicians and psychosocial professionals experience tensions that affect communication with parents in pediatric oncology. Some tensions might be addressed with interventions or education. Others will require further analysis to provide sufficient guidance to clinicians. PRACTICE IMPLICATIONS: Unaddressed tensions might lead to poor communication and clinician burnout. Future work should explore solutions to these tensions.
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