Jennifer L Young1, Julie Mak2, Talia Stanley3, Michelle Bass4, Mildred K Cho5,6, Holly K Tabor6. 1. Stanford Center for Biomedical Ethics, Stanford University, CA, USA. youngjl@stanford.edu. 2. Helen Diller Family Comprehensive Cancer Center, University of California San Francisco, CA, USA. 3. Stanford Center for Biomedical Ethics, Stanford University, CA, USA. 4. Countway Library of Medicine, Harvard Medical School, MA, USA. 5. Department of Pediatrics, Stanford University, CA, USA. 6. Department of Medicine, Stanford University, CA, USA.
Abstract
PURPOSE: Asian Americans have been understudied in the literature on genetic and genomic services. The current study systematically identified, evaluated, and summarized findings from relevant qualitative and quantitative studies on genetic health care for Asian Americans. METHODS: A search of five databases (1990 to 2018) returned 8,522 unique records. After removing duplicates, abstract/title screening, and full text review, 47 studies met inclusion criteria. Data from quantitative studies were converted into "qualitized data" and pooled together with thematic data from qualitative studies to produce a set of integrated findings. RESULTS: Synthesis of results revealed that (1) Asian Americans are under-referred but have high uptake for genetic services, (2) linguistic/communication challenges were common and Asian Americans expected more directive genetic counseling, and (3) Asian Americans' family members were involved in testing decisions, but communication of results and risk information to family members was lower than other racial groups. CONCLUSION: This study identified multiple barriers to genetic counseling, testing, and care for Asian Americans, as well as gaps in the research literature. By focusing on these barriers and filling these gaps, clinical genetic approaches can be tailored to meet the needs of diverse patient groups, particularly those of Asian descent.
PURPOSE: Asian Americans have been understudied in the literature on genetic and genomic services. The current study systematically identified, evaluated, and summarized findings from relevant qualitative and quantitative studies on genetic health care for Asian Americans. METHODS: A search of five databases (1990 to 2018) returned 8,522 unique records. After removing duplicates, abstract/title screening, and full text review, 47 studies met inclusion criteria. Data from quantitative studies were converted into "qualitized data" and pooled together with thematic data from qualitative studies to produce a set of integrated findings. RESULTS: Synthesis of results revealed that (1) Asian Americans are under-referred but have high uptake for genetic services, (2) linguistic/communication challenges were common and Asian Americans expected more directive genetic counseling, and (3) Asian Americans' family members were involved in testing decisions, but communication of results and risk information to family members was lower than other racial groups. CONCLUSION: This study identified multiple barriers to genetic counseling, testing, and care for Asian Americans, as well as gaps in the research literature. By focusing on these barriers and filling these gaps, clinical genetic approaches can be tailored to meet the needs of diverse patient groups, particularly those of Asian descent.
Authors: Nadia S Islam; Simona C Kwon; Laura C Wyatt; Charmaine Ruddock; Carol R Horowitz; Carlos Devia; Chau Trinh-Shevrin Journal: Am J Public Health Date: 2015-04-23 Impact factor: 9.308
Authors: Shalini Ahuja Tendulkar; Renée Cammarata Hamilton; Chieh Chu; Lisa Arsenault; Kevin Duffy; Van Huynh; Mei Hung; Eric Lee; Shwuling Jane; Elisa Friedman Journal: J Immigr Minor Health Date: 2012-10