Literature DB >> 33944616

Top Ten Tips Palliative Clinicians Should Know About Evidence-Based Advocacy.

William E Rosa1,2, Katherine I Pettus2, Liliana De Lima2, Allison Silvers3, Stacie Sinclair3, Lukas Radbruch2,4.   

Abstract

The escalating global burden of serious health-related suffering makes the need for funded policies that integrate palliative care (PC) into the continuum of services more urgent than ever. Palliative specialists are uniquely positioned to merge their clinical expertise with empirical evidence to advocate for improved PC delivery. There is a vital feedback loop between advocacy and clinical practice that palliative specialists can leverage to influence key stakeholders and decision makers and bridge PC policy deficits. Sustained interdisciplinary partnerships are critical to evidence-based PC advocacy that addresses resource gaps, social injustice, and unmet and disparate needs. Although PC advocacy may appear optional or even frivolous at times, it is an essential skill for any practitioner working to improve care for seriously ill individuals and their families. This article highlights 10 pragmatic tips that palliative specialists can use to advocate for policy changes that enhance PC access and equity at institutional, local, national, and global levels.

Entities:  

Keywords:  evidence-based advocacy; palliative care policy; serious health-related suffering; training and professional development; universal access; value of palliative care

Mesh:

Year:  2021        PMID: 33944616      PMCID: PMC8418524          DOI: 10.1089/jpm.2021.0182

Source DB:  PubMed          Journal:  J Palliat Med        ISSN: 1557-7740            Impact factor:   2.947


  18 in total

1.  Examining Interventions Designed to Support Shared Decision Making and Subsequent Patient Outcomes in Palliative Care: A Systematic Review of the Literature.

Authors:  Dawon Baik; Hwayoung Cho; Ruth M Masterson Creber
Journal:  Am J Hosp Palliat Care       Date:  2018-06-20       Impact factor: 2.500

2.  The inaugural United States World Hospice and Palliative Care Day Celebration: A virtual coming together.

Authors:  William E Rosa; Shila Pandey; Andrew S Epstein; Stephen R Connor; Judith E Nelson
Journal:  Palliat Support Care       Date:  2021-04

3.  Palliative care: an essential facet of universal health coverage.

Authors:  Felicia Knaul; Afsan Bhadelia; Rifat Atun; Liliana De Lima; Lukas Radbruch
Journal:  Lancet Glob Health       Date:  2019-11       Impact factor: 26.763

4.  Recommendations to Leverage the Palliative Nursing Role During COVID-19 and Future Public Health Crises.

Authors:  William E Rosa; Tamryn F Gray; Kimberly Chow; Patricia M Davidson; J Nicholas Dionne-Odom; Viola Karanja; Judy Khanyola; Julius D N Kpoeh; Joseph Lusaka; Samuel T Matula; Polly Mazanec; Patricia J Moreland; Shila Pandey; Amisha Parekh de Campos; Salimah H Meghani
Journal:  J Hosp Palliat Nurs       Date:  2020-08       Impact factor: 1.918

5.  LGBTQ+ Inclusive Palliative Care in the Context of COVID-19: Pragmatic Recommendations for Clinicians.

Authors:  William E Rosa; Alic Shook; Kimberly D Acquaviva
Journal:  J Pain Symptom Manage       Date:  2020-05-11       Impact factor: 3.612

6.  The escalating global burden of serious health-related suffering: projections to 2060 by world regions, age groups, and health conditions.

Authors:  Katherine E Sleeman; Maja de Brito; Simon Etkind; Kennedy Nkhoma; Ping Guo; Irene J Higginson; Barbara Gomes; Richard Harding
Journal:  Lancet Glob Health       Date:  2019-05-22       Impact factor: 26.763

7.  The burden of serious health-related suffering among cancer decedents: Global projections study to 2060.

Authors:  Katherine E Sleeman; Barbara Gomes; Maja de Brito; Omar Shamieh; Richard Harding
Journal:  Palliat Med       Date:  2020-09-18       Impact factor: 4.762

8.  The experience of uncertainty for patients, families and healthcare providers in post-stroke palliative and end-of-life care: a qualitative meta-synthesis.

Authors:  Teresa Connolly; Heather Coats; Kristen DeSanto; Jacqueline Jones
Journal:  Age Ageing       Date:  2021-02-26       Impact factor: 10.668

9.  The Impact of a Home-Based Palliative Care Program in an Accountable Care Organization.

Authors:  Dana Lustbader; Mitchell Mudra; Carole Romano; Ed Lukoski; Andy Chang; James Mittelberger; Terry Scherr; David Cooper
Journal:  J Palliat Med       Date:  2016-08-30       Impact factor: 2.947

10.  Palliative Care Advocacy: Why Does It Matter?

Authors:  Katherine Irene Pettus; Liliana de Lima
Journal:  J Palliat Med       Date:  2020-03-09       Impact factor: 2.947

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  4 in total

1.  American Academy of Nursing Expert Panel consensus statement on nursing's roles in ensuring universal palliative care access.

Authors:  William E Rosa; Harleah G Buck; Allison P Squires; Sharon L Kozachik; Huda Abu-Saad Huijer; Marie Bakitas; Juli McGowan Boit; Patricia K Bradley; Pamela Z Cacchione; Garrett K Chan; Nigel Crisp; Constance Dahlin; Pat Daoust; Patricia M Davidson; Sheila Davis; Myrna A A Doumit; Regina M Fink; Keela A Herr; Pamela S Hinds; Tonda L Hughes; Viola Karanja; Deborah J Kenny; Cynthia R King; Hester C Klopper; Ann R Knebel; Ann E Kurth; Elizabeth A Madigan; Pamela Malloy; Marianne Matzo; Polly Mazanec; Salimah H Meghani; Todd B Monroe; Patricia J Moreland; Judith A Paice; J Craig Phillips; Cynda H Rushton; Judith Shamian; Mona Shattell; Julia A Snethen; Connie M Ulrich; Dorothy Wholihan; Lucia D Wocial; Betty R Ferrell
Journal:  Nurs Outlook       Date:  2021-10-25       Impact factor: 3.250

2.  International consensus-based policy recommendations to advance universal palliative care access from the American Academy of Nursing Expert Panels.

Authors:  William E Rosa; Harleah G Buck; Allison P Squires; Sharon L Kozachik; Huda Abu-Saad Huijer; Marie Bakitas; Juli McGowan Boit; Patricia K Bradley; Pamela Z Cacchione; Garrett K Chan; Nigel Crisp; Constance Dahlin; Pat Daoust; Patricia M Davidson; Sheila Davis; Myrna A A Doumit; Regina M Fink; Keela A Herr; Pamela S Hinds; Tonda L Hughes; Viola Karanja; Deborah J Kenny; Cynthia R King; Hester C Klopper; Ann R Knebel; Ann E Kurth; Elizabeth A Madigan; Pamela Malloy; Marianne Matzo; Polly Mazanec; Salimah H Meghani; Todd B Monroe; Patricia J Moreland; Judith A Paice; J Craig Phillips; Cynda H Rushton; Judith Shamian; Mona Shattell; Julia A Snethen; Connie M Ulrich; Dorothy Wholihan; Lucia D Wocial; Betty R Ferrell
Journal:  Nurs Outlook       Date:  2021-10-06       Impact factor: 3.250

3.  Can You Hear Us Now? Equity in Global Advocacy for Palliative Care.

Authors:  William E Rosa; Ebtesam Ahmed; Mwate Joseph Chaila; Abidan Chansa; Maria Adelaida Cordoba; Rumana Dowla; Nahla Gafer; Farzana Khan; Eve Namisango; Luisa Rodriguez; Felicia Marie Knaul; Katherine I Pettus
Journal:  J Pain Symptom Manage       Date:  2022-07-16       Impact factor: 5.576

4.  The 2nd Annual US Celebration of World Hospice and Palliative Care Day: A virtual coming together to support equity in palliative care access.

Authors:  William E Rosa; Shila Pandey; Andrew S Epstein; Stephen R Connor; Laurie J Andersen; Allison J Applebaum; Liz Blackler; Lauren Akua Koranteng; William S Breitbart; Judith E Nelson
Journal:  Palliat Support Care       Date:  2022-06
  4 in total

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