Literature DB >> 33941045

Cognitive assessment in multiple sclerosis clinical care: A qualitative evaluation of stakeholder perceptions and preferences.

Hannah Elwick1, Laura Smith1, Jacqueline R Mhizha-Murira1, Gogem Topcu1, Paul Leighton1, Avril Drummond2, Nikos Evangelou1, Roshan das Nair1,3.   

Abstract

There is a growing consensus that cognitive assessments should form part of routine clinical care in Multiple Sclerosis (MS). However, what remains unclear is which assessments are preferred by "stakeholders" (including people with MS, family members, charity volunteers, clinicians, and healthcare commissioners), in which contexts, and in which formats. Therefore, the aim of this study was to collect and synthesize stakeholders' perceptions of the assessments that are acceptable and feasible for routine administration in the UK healthcare system.We interviewed 44 stakeholders and held one focus group (n = 5). We asked stakeholders about their experience with cognitive impairment and assessment and their views on how cognitive assessment could be implemented within routine clinical care.Using framework analysis, we summarized three themes: the current cognitive screening situation; the suitability of commonly used assessments; and feasibility aspects, including modality and location of testing. All participants acknowledged that cognitive impairment could have a significant impact on the quality of life, but that assessment and monitoring are not routinely performed in clinics. Barriers and enablers were described, and most participants reported that brief, routine screening with tests such as symbol substitution was acceptable. Electronic, self-administration of cognitive screening would be beneficial in minimizing clinic attendance and staff time.

Entities:  

Keywords:  Multiple Sclerosis; cognitive assessment; neuropsychology; qualitative

Mesh:

Year:  2021        PMID: 33941045     DOI: 10.1080/09602011.2021.1899942

Source DB:  PubMed          Journal:  Neuropsychol Rehabil        ISSN: 0960-2011            Impact factor:   2.928


  1 in total

1.  Neuropsychological evaluation and rehabilitation in multiple sclerosis (NEuRoMS): protocol for a mixed-methods, multicentre feasibility randomised controlled trial.

Authors:  Gogem Topcu; Laura Smith; Jacqueline R Mhizha-Murira; Nia Goulden; Zoë Hoare; Avril Drummond; Deborah Fitzsimmons; Nikos Evangelou; Klaus Schmierer; Emma C Tallantyre; Paul Leighton; Kimberley Allen-Philbey; Andrea Stennett; Paul Bradley; Clare Bale; James Turton; Roshan das Nair
Journal:  Pilot Feasibility Stud       Date:  2022-06-11
  1 in total

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