Literature DB >> 33935475

Rethinking Research Ethics for Latinos: The Policy Paradox of Health Reform and the Role of Social Justice.

Lisa Cacari-Stone1, Magdalena Avila2.   

Abstract

This article discusses the paradox of exclusion/inclusion: U.S. health policy prohibits Latinos who fall under certain classifications from accessing health services and insurance yet permits them to be "human subjects" in health research. We aim to advance the discussion of health research ethics post the Tuskegee syphilis experiment in Latinos by (a) tracing the impacts of policy exclusion and the social context of anti-Latino sentiment on Latinos' low participation rates in health research and inequitable access to treatment modalities; (b) challenging researchers to address social sources of vulnerabilities; and (c) offering recommendations on adapting a social justice ethical stance to address these challenges, which are part of the Tuskegee Study legacy.

Entities:  

Keywords:  Latino health; Tuskegee; health care reform; research ethics; social justice

Year:  2012        PMID: 33935475      PMCID: PMC8086703          DOI: 10.1080/10508422.2012.729995

Source DB:  PubMed          Journal:  Ethics Behav        ISSN: 1050-8422


  25 in total

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Authors:  Doug Brugge; Alison Cole
Journal:  Sci Eng Ethics       Date:  2003-10       Impact factor: 3.525

2.  The foreignness of germs: the persistent association of immigrants and disease in American society.

Authors:  Howard Markel; Alexandra Minna Stern
Journal:  Milbank Q       Date:  2002       Impact factor: 4.911

3.  Predictors of awareness of clinical trials and feelings about the use of medical information for research in a nationally representative US sample.

Authors:  Margaret Brown; Anne Moyer
Journal:  Ethn Health       Date:  2010-06       Impact factor: 2.772

Review 4.  Effective recruitment and retention of minority research participants.

Authors:  Antronette K Yancey; Alexander N Ortega; Shiriki K Kumanyika
Journal:  Annu Rev Public Health       Date:  2006       Impact factor: 21.981

5.  Community-based applied research with Latino immigrant families: informing practice and research according to ethical and social justice principles.

Authors:  Ana Baumann; Melanie Domenech Rodríguez; José Rubén Parra-Cardona
Journal:  Fam Process       Date:  2011-06

6.  A legacy of distrust: African Americans and medical research.

Authors:  V N Gamble
Journal:  Am J Prev Med       Date:  1993 Nov-Dec       Impact factor: 5.043

7.  Understanding community-based processes for research ethics review: a national study.

Authors:  Nancy Shore; Ruta Brazauskas; Elaine Drew; Kristine A Wong; Lisa Moy; Andrea Corage Baden; Kirsten Cyr; Jocelyn Ulevicus; Sarena D Seifer
Journal:  Am J Public Health       Date:  2010-12-16       Impact factor: 9.308

8.  Social support among Latina immigrant women: bridge persons as mediators of cervical cancer screening.

Authors:  Melanie R Wasserman; Deborah E Bender; Shoou-Yih Lee; Joseph P Morrissey; Ted Mouw; Edward C Norton
Journal:  J Immigr Minor Health       Date:  2006-01

9.  Physician performance and racial disparities in diabetes mellitus care.

Authors:  Thomas D Sequist; Garrett M Fitzmaurice; Richard Marshall; Shimon Shaykevich; Dana Gelb Safran; John Z Ayanian
Journal:  Arch Intern Med       Date:  2008-06-09

10.  Cultural competency training and performance reports to improve diabetes care for black patients: a cluster randomized, controlled trial.

Authors:  Thomas D Sequist; Garrett M Fitzmaurice; Richard Marshall; Shimon Shaykevich; Amy Marston; Dana Gelb Safran; John Z Ayanian
Journal:  Ann Intern Med       Date:  2010-01-05       Impact factor: 25.391

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  2 in total

Review 1.  Awakening: The Unveiling of Historically Unaddressed Social Inequities During the COVID-19 Pandemic in the United States.

Authors:  Michele P Andrasik; Alika K Maunakea; Linda Oseso; Carlos E Rodriguez-Diaz; Stephaun Wallace; Karina Walters; Michi Yukawa
Journal:  Infect Dis Clin North Am       Date:  2022-02-01       Impact factor: 5.905

2.  Acceptability, feasibility, and ethics of saliva collection in community-based research with Mexican-origin mixed-status families during high immigration enforcement.

Authors:  Airín Denise Martínez; Lillian Ruelas-Thompson
Journal:  BMC Public Health       Date:  2022-09-05       Impact factor: 4.135

  2 in total

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