Literature DB >> 33902751

Patient oriented research in mental health: matching laboratory to life and beyond in Canada.

Jenessa N Johnston1, Lisa Ridgway2, Sarah Cary-Barnard3, Josh Allen1, Carla L Sanchez-Lafuente1, Brady Reive1, Lisa E Kalynchuk1, Hector J Caruncho4.   

Abstract

As patient-oriented research gains popularity in clinical research, the lack of patient input in foundational science grows more evident. Research has shown great utility in active partnerships between patient partners and scientists, yet many researchers are still hesitant about listening to the voices of those with lived experience guide and shape their experiments. Mental health has been a leading area for patient movements such as survivor-led research, however the stigma experienced by these patients creates difficulties not present in other health disciplines. The emergence of COVID-19 has also created unique circumstances that need to be addressed. Through this lens, we have taken experiences from our patient partners, students, and primary investigator to create recommendations for the better facilitation of patient-oriented research in foundational science in Canada. With these guidelines, from initial recruitment and leading to sustaining meaningful partnerships, we hope to encourage other researchers that patient-oriented research is necessary for the future of mental health research and foundational science.

Entities:  

Keywords:  Knowledge transfer; Laboratory preclinical research; Mental health; Patient partners; Patient-oriented research

Year:  2021        PMID: 33902751     DOI: 10.1186/s40900-021-00266-1

Source DB:  PubMed          Journal:  Res Involv Engagem        ISSN: 2056-7529


  19 in total

1.  The next step in guideline development: incorporating patient preferences.

Authors:  Murray Krahn; Gary Naglie
Journal:  JAMA       Date:  2008-07-23       Impact factor: 56.272

2.  Translational research: crossing the valley of death.

Authors:  Declan Butler
Journal:  Nature       Date:  2008-06-12       Impact factor: 49.962

3.  The experiential knowledge of patients: a new resource for biomedical research?

Authors:  J Francisca Caron-Flinterman; Jacqueline E W Broerse; Joske F G Bunders
Journal:  Soc Sci Med       Date:  2004-12-21       Impact factor: 4.634

4.  Shared decision making for in-patients with schizophrenia.

Authors:  J Hamann; B Langer; V Winkler; R Busch; R Cohen; S Leucht; W Kissling
Journal:  Acta Psychiatr Scand       Date:  2006-10       Impact factor: 6.392

5.  Collaborating with individuals with lived experience to adapt CANMAT clinical depression guidelines into a patient treatment guide: The CHOICE-D co-design process.

Authors:  Trehani M Fonseka; Janice T Pong; Andrew Kcomt; Sidney H Kennedy; Sagar V Parikh
Journal:  J Eval Clin Pract       Date:  2019-11-14       Impact factor: 2.431

6.  Shared decision making and long-term outcome in schizophrenia treatment.

Authors:  Johannes Hamann; Rudolf Cohen; Stefan Leucht; Raymonde Busch; Werner Kissling
Journal:  J Clin Psychiatry       Date:  2007-07       Impact factor: 4.384

7.  Setting research priorities for patients on or nearing dialysis.

Authors:  Braden Manns; Brenda Hemmelgarn; Erin Lillie; Sally Crowe P G Dip; Annette Cyr; Michael Gladish; Claire Large; Howard Silverman; Brenda Toth; Wim Wolfs; Andreas Laupacis
Journal:  Clin J Am Soc Nephrol       Date:  2014-05-15       Impact factor: 8.237

8.  Patient-centered medicine and patient-oriented research: improving health outcomes for individual patients.

Authors:  José A Sacristán
Journal:  BMC Med Inform Decis Mak       Date:  2013-01-08       Impact factor: 2.796

9.  Defining Priorities for Future Research: Results of the UK Kidney Transplant Priority Setting Partnership.

Authors:  Simon R Knight; Leanne Metcalfe; Katriona O'Donoghue; Simon T Ball; Angela Beale; William Beale; Rachel Hilton; Keith Hodkinson; Graham W Lipkin; Fiona Loud; Lorna P Marson; Peter J Morris
Journal:  PLoS One       Date:  2016-10-24       Impact factor: 3.240

10.  Dementia priority setting partnership with the James Lind Alliance: using patient and public involvement and the evidence base to inform the research agenda.

Authors:  Sarah Kelly; Louise Lafortune; Nicola Hart; Katherine Cowan; Mark Fenton; Carol Brayne
Journal:  Age Ageing       Date:  2015-11       Impact factor: 10.668

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  1 in total

1.  Considerations for supporting meaningful stakeholder engagement in global mental health research.

Authors:  Jill K Murphy
Journal:  Epidemiol Psychiatr Sci       Date:  2022-07-20       Impact factor: 7.818

  1 in total

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