Literature DB >> 33898603

Technology-driven methodologies to collect qualitative data among youth to inform HIV prevention and care interventions.

Kristi E Gamarel1,2, Rob Stephenson2,3, Lisa Hightow-Weidman4.   

Abstract

The use of technology as a platform for delivering HIV prevention interventions provides an efficient opportunity to reach those at risk for HIV with targeted and timely prevention and treatment messages. Technology-delivered HIV interventions are becoming increasingly popular and include interventions that use mobile text messaging and mobile phone apps or deliver prevention messages through telehealth platforms. Community-centered approaches of intervention development can help address the potential gap between science and practice by ensuring that interventions are appropriate and driven by community needs and desires. Common approaches to gaining community input rely on qualitative data gathered through in-person focus group discussions (FGD), in-depth interviews (IDI) and youth advisory boards (YABs). While these proven methodologies have strengths, youth engagement can be limited by structural barriers (e.g., lack of transportation, inconvenient timing) and reluctance to participate due to stigma or discomfort with group settings. This results in a number of biases that limit the quality of face-to-face qualitative data collection, i.e., social desirability bias or selection biases created by differential likelihood of recruitment and attendance. As an increasing number of HIV prevention and care interventions are successfully delivered online, innovative approaches to youth engagement in virtual spaces can also be applied across the intervention lifespan to increase the quality and validity of formative data. In this paper, we describe a range of qualitative data collection techniques that can be used via online platforms to collect qualitative data, and we outline their relative advantages over face-to-face FGD or IDI. We use four case studies to highlight the methodologies and findings and provide recommendations for researchers moving forward. 2021 mHealth. All rights reserved.

Entities:  

Keywords:  HIV prevention; intervention development; mHealth; qualitative research

Year:  2021        PMID: 33898603      PMCID: PMC8063018          DOI: 10.21037/mhealth-2020-5

Source DB:  PubMed          Journal:  Mhealth        ISSN: 2306-9740


  46 in total

1.  Methods of data collection in qualitative research: interviews and focus groups.

Authors:  P Gill; K Stewart; E Treasure; B Chadwick
Journal:  Br Dent J       Date:  2008-03-22       Impact factor: 1.626

2.  Medical Apps for Smartphones.

Authors:  Mark Terry
Journal:  Telemed J E Health       Date:  2010 Jan-Feb       Impact factor: 3.536

3.  Lessons learned using Web conference technology for online focus group interviews.

Authors:  Carol A Tuttas
Journal:  Qual Health Res       Date:  2014-09-05

4.  Sensitive Health Topics With Underserved Patient Populations: Methodological Considerations for Online Focus Group Discussions.

Authors:  Sari L Reisner; Renee K Randazzo; Jaclyn M White Hughto; Sarah Peitzmeier; L Zachary DuBois; Dana J Pardee; Elliot Marrow; Sarah McLean; Jennifer Potter
Journal:  Qual Health Res       Date:  2017-05-04

5.  Following the trail of an HIV-prevention Web site enhanced for mobile cell phone text messaging delivery.

Authors:  Judith B Cornelius; Michael G Cato; Jennifer L Toth; Philip M Bard; Michael W Moore; Ann White
Journal:  J Assoc Nurses AIDS Care       Date:  2011-05-07       Impact factor: 1.354

Review 6.  Mobile phone applications for the care and prevention of HIV and other sexually transmitted diseases: a review.

Authors:  Kathryn E Muessig; Emily C Pike; Sara Legrand; Lisa B Hightow-Weidman
Journal:  J Med Internet Res       Date:  2013-01-04       Impact factor: 5.428

Review 7.  Perceived barriers and facilitators to mental health help-seeking in young people: a systematic review.

Authors:  Amelia Gulliver; Kathleen M Griffiths; Helen Christensen
Journal:  BMC Psychiatry       Date:  2010-12-30       Impact factor: 3.630

8.  Quantitative evaluation of an innovation contest to enhance a sexual health campaign in China.

Authors:  Ye Zhang; Songyuan Tang; Katherine Li; Lai Sze Tso; Barry L Bayus; David Glidden; Bin Yang; Heping Zheng; Chongyi Wei; Joseph Tucker; Weiming Tang
Journal:  BMC Infect Dis       Date:  2019-02-04       Impact factor: 3.090

9.  The Development and Testing of a Relationship Skills Intervention to Improve HIV Prevention Uptake Among Young Gay, Bisexual, and Other Men Who Have Sex With Men and Their Primary Partners (We Prevent): Protocol for a Randomized Controlled Trial.

Authors:  Kristi E Gamarel; Lynae A Darbes; Lisa Hightow-Weidman; Patrick Sullivan; Rob Stephenson
Journal:  JMIR Res Protoc       Date:  2019-01-02

10.  Use of Web Conferencing Technology for Conducting Online Focus Groups Among Young People With Lived Experience of Suicidal Thoughts: Mixed Methods Research.

Authors:  Jin Han; Michelle Torok; Nyree Gale; Quincy Jj Wong; Aliza Werner-Seidler; Sarah E Hetrick; Helen Christensen
Journal:  JMIR Ment Health       Date:  2019-10-04
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