Literature DB >> 33870755

A Longitudinal Perspective on User Uptake of an Electronic Personal Health Record for Diabetes, With Respect To Patient Demographics.

Nicholas T Conway1,2, Michael Bluett2,3, Cathy Shields2, Andrew Taylor4, Deborah J Wake5,6, Scott G Cunningham2.   

Abstract

INTRODUCTION: The growing prevalence of diabetes has increased the need for scalable technologies to improve outcomes. My Diabetes My Way (MDMW) is an electronic personal health record (ePHR) available to all people with diabetes in Scotland since 2010, associated with improved clinical outcomes among users. MDMW pulls data from a national clinician-facing informatics platform and provides self-management and educational information. This study aims to describe MDMW user demographics through time with respect to the national diabetes population, with a view to addressing potential health inequalities.
METHODS: Aggregate data were obtained retrospectively from the MDMW database and annual Scottish Diabetes Survey (SDS) from 2010 to 2020. Variables included diabetes type, sex, age, socioeconomic status, ethnicity, and glycemic control. Prevalence of MDMW uptake was calculated using corresponding SDS data as denominators. Comparisons between years and demographic sub-groups were made using Chi- Squared tests.
RESULTS: Overall uptake of MDMW has steadily increased since implementation. By 2020, of all people with T1D or T2D in Scotland, 13% were fully enrolled to MDMW (39,881/312,326). There was proportionately greater numbers of users in younger, more affluent demographic groups (with a clear social gradient) with better glycemic control. As uptake has increased through time, so too has the observed gaps between different demographic sub-groups.
CONCLUSIONS: The large number of MDMW users is encouraging, but remains a minority of people with diabetes in Scotland. There is a risk that innovations like MDMW can widen health inequalities and it is incumbent upon healthcare providers to identify strategies to prevent this.

Entities:  

Keywords:  diabetes mellitus; electronic health records; health records; healthcare disparities; personal; type 1; type 2

Mesh:

Year:  2021        PMID: 33870755      PMCID: PMC8442201          DOI: 10.1177/19322968211005734

Source DB:  PubMed          Journal:  J Diabetes Sci Technol        ISSN: 1932-2968


  11 in total

1.  User Experiences of an Electronic Personal Health Record for Diabetes.

Authors:  Nicholas Thomas Conway; Brian Allardice; Deborah Jane Wake; Scott Gordon Cunningham
Journal:  J Diabetes Sci Technol       Date:  2018-12-26

2.  Social disparities in internet patient portal use in diabetes: evidence that the digital divide extends beyond access.

Authors:  Urmimala Sarkar; Andrew J Karter; Jennifer Y Liu; Nancy E Adler; Robert Nguyen; Andrea López; Dean Schillinger
Journal:  J Am Med Inform Assoc       Date:  2011-01-24       Impact factor: 4.497

3.  Bridging the digital divide: mobile access to personal health records among patients with diabetes.

Authors:  Ilana Graetz; Jie Huang; Richard J Brand; John Hsu; Cyrus K Yamin; Mary E Reed
Journal:  Am J Manag Care       Date:  2018-01       Impact factor: 2.229

Review 4.  A Systematic Review of Reviews Evaluating Technology-Enabled Diabetes Self-Management Education and Support.

Authors:  Deborah A Greenwood; Perry M Gee; Kathy J Fatkin; Malinda Peeples
Journal:  J Diabetes Sci Technol       Date:  2017-05-31

5.  Diabetic retinopathy: more patients, less laser: a longitudinal population-based study in Tayside, Scotland.

Authors:  James H Vallance; Peter J Wilson; Graham P Leese; Ritchie McAlpine; Caroline J MacEwen; John D Ellis
Journal:  Diabetes Care       Date:  2008-03-17       Impact factor: 19.112

Review 6.  Social Health Inequalities and eHealth: A Literature Review With Qualitative Synthesis of Theoretical and Empirical Studies.

Authors:  Karine Latulippe; Christine Hamel; Dominique Giroux
Journal:  J Med Internet Res       Date:  2017-04-27       Impact factor: 5.428

Review 7.  Understanding factors affecting patient and public engagement and recruitment to digital health interventions: a systematic review of qualitative studies.

Authors:  Siobhan O'Connor; Peter Hanlon; Catherine A O'Donnell; Sonia Garcia; Julie Glanville; Frances S Mair
Journal:  BMC Med Inform Decis Mak       Date:  2016-09-15       Impact factor: 2.796

8.  My Diabetes My Way: supporting online diabetes self-management: progress and analysis from 2016.

Authors:  Scott Gordon Cunningham; Massimo Brillante; Brian Allardice; Nicholas Conway; Ritchie Robert McAlpine; Deborah Jane Wake
Journal:  Biomed Eng Online       Date:  2019-02-08       Impact factor: 2.819

9.  Glycaemic control trends in people with type 1 diabetes in Scotland 2004-2016.

Authors:  Colette Mair; Wahyu Wulaningsih; Anita Jeyam; Stuart McGurnaghan; Luke Blackbourn; Brian Kennon; Graham Leese; Robert Lindsay; Rory J McCrimmon; John McKnight; John R Petrie; Naveed Sattar; Sarah H Wild; Nicholas Conway; Ian Craigie; Kenneth Robertson; Louise Bath; Paul M McKeigue; Helen M Colhoun
Journal:  Diabetologia       Date:  2019-05-18       Impact factor: 10.122

Review 10.  Precision Medicine in Diabetes: A Consensus Report From the American Diabetes Association (ADA) and the European Association for the Study of Diabetes (EASD).

Authors:  Wendy K Chung; Karel Erion; Jose C Florez; Andrew T Hattersley; Marie-France Hivert; Christine G Lee; Mark I McCarthy; John J Nolan; Jill M Norris; Ewan R Pearson; Louis Philipson; Allison T McElvaine; William T Cefalu; Stephen S Rich; Paul W Franks
Journal:  Diabetes Care       Date:  2020-07       Impact factor: 19.112

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