Literature DB >> 33866608

Taming Time: Configuring Cancer Patients as Research Subjects.

Ivana Bogicevic1, Mette N Svendsen1.   

Abstract

This article explores how incurable cancer patients in the affluent Danish welfare state are recruited to clinical trials. We show that patients' impending death constitutes their potential for being configured as research subjects. To produce valuable data, patients who enroll in trials and health care professionals must engage in daily "time practices" that prolong the threshold between life and death. When death becomes inevitable, the limit of configuring dying cancer patients as research subjects is reached. Navigating this temporal logic, health care professionals balance the boundary between patients' instrumental worth as research subjects and their intrinsic worth as dying cancer patients. Whereas previous studies have critically uncovered how clinical trials operate at socioeconomic margins, we point to the ways in which clinical trials operate through temporal margins. We argue that clinical trials are dependent on configuring marginal societal spaces and marginal bodies from which to produce knowledge.
© 2021 by the American Anthropological Association.

Entities:  

Keywords:  cancer; clinical trials; human subjects; research ethics; temporality

Year:  2021        PMID: 33866608     DOI: 10.1111/maq.12647

Source DB:  PubMed          Journal:  Med Anthropol Q        ISSN: 0745-5194


  1 in total

1.  Personalising clinical pathways in a London breast cancer service.

Authors:  William Viney; Sophie Day; Jane Bruton; Kelly Gleason; Charlotte Ion; Saima Nazir; Helen Ward
Journal:  Sociol Health Illn       Date:  2022-02-10
  1 in total

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