Anna Loussouarn1,2, Anita Devlin3, Thomas Bast4, Grégoire Benoist5, François Corrard6, Helen Cross7, Alessandro Ferretti8, Fernando Garcia-Sala Viguer9, Renzo Guerrini10, Joerg Klepper11, Thomas Meissner12, Mathieu Milh13, Violeta Poltorak14, Umberto Raucci15, Victoria San Antonio-Arce16, Adrian Sie17, Patricia Smeyers18, Nicola Specchio8, Alastair Sutcliffe19, Adeline Trauffler20, Blandine Dozières-Puyravel21,22, Stéphane Auvin23,24. 1. APHP. Service de Neurologie Pédiatrique, Hôpital Robert Debré, Paris, France. anna.loussouarn@aphp.fr. 2. Université de Paris, INSERM NeuroDiderot, Paris, France. anna.loussouarn@aphp.fr. 3. Great North Children's Hospital Newcastle-upon-Tyne & Translational & Clinical Research Institute Newcastle University, Newcastle, UK. 4. Klinik für Kinder und Jugendliche, Epilepsiezentrum Kork, Kork, Germany. 5. APHP. Service de Pédiatrique, Hôpital Ambroise Paré, Boulogne Billancourt, France. 6. ACTIV, Créteil, France & AFPA, Saint Germain en Laye, France. 7. UCL NIHR BRC Great Ormond Street Institute of Child Health & Great Ormond Street Hospital for Children, London, WCiN 1EH, UK. 8. Rare and Complex Epilepsy Unit, Department of Neuroscience, Bambino Gesu Children's Hospital, IRCCS, Member of European Reference Network EpiCARE, Rome, Italy. 9. Clinica Pediatrica Garcia-Sala, Valencia, Spain. 10. Neuroscience Department, Children's Hospital Anna Meyer-University of Florence, Florence, Italy. 11. Children's Hospital Aschaffenburg-Alzenau, Aschaffenburg, Germany. 12. Department of General, Paediatrics and Neonatology and Pediatric Cardiology, University Children's Hospital Düsseldorf, Düsseldorf, Germany. 13. APHM, Service de Neurologie Pédiatrique, Hopital de la Timone, Marseille, France. 14. Línea Pediátrica Manso, Institut Català de la Salut, Universitat Autònoma de Barcelona, Barcelona, Spain. 15. Pediatric Emergency Department, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy. 16. Freiburg Epilepsy Center, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg im Breisgau, Germany. 17. University of Glasgow, University Hospital Wisahw, NHS, Lanarkshire, Glasgow, UK. 18. Neuropediatria y Unidad Multidisciplinar Epilepsia, Valencia, Spain. 19. UCL, Great Ormond Street Institute of Child Health, London, UK. 20. Clinique de l'Epilepsie de l'enfant et de l'adolescent, Service de Neurologie Pédiatrique, Hôpital Roger Salengro, CHRU de Lille, Lille, France. 21. APHP. Service de Neurologie Pédiatrique, Hôpital Robert Debré, Paris, France. 22. Université de Paris, INSERM NeuroDiderot, Paris, France. 23. APHP. Service de Neurologie Pédiatrique, Hôpital Robert Debré, Paris, France. stephane.auvin@aphp.fr. 24. Université de Paris, INSERM NeuroDiderot, Paris, France. stephane.auvin@aphp.fr.
Abstract
Febrile seizures (FS) are usually self-limiting and cause no morbidity. Nevertheless they represent very traumatic events for families. There is a need to identify key messages that reassure carers and help to prevent inappropriate, anxiety-driven behaviors associated with "fever phobia." No recommendations have been proposed to date regarding the content of such messages. Using a Delphi process, we have established a consensus regarding the information to be shared with families following a FS. Twenty physicians (child neurologists and pediatricians) from five European countries participated in a three-step Delphi process between May 2018 and October 2019. In the first step, each expert was asked to give 10 to 15 free statements about FS. In the second and third steps, statements were scored and selected according to the expert ranking of importance. A list of key messages for families has emerged from this process, which offer reassurance about FS based on epidemiology, underlying mechanisms, and the emergency management of FS should they recur. Interestingly, there was a high level of agreement between child neurologists and general pediatricians. Conclusion: We propose key messages to be communicated with families in the post-FS clinic setting. What is Known: • Febrile seizures (FS) are traumatic events for families. • No guidelines exist on what information to share with parents following a FS. What is New: • A Delphi process involving child neurologists and pediatricians provides consensual statement about information to deliver after a febrile seizure. • We propose key messages to be communicated with families in the post-FS clinic setting.
Febrile seizures (FS) are usually self-limiting and cause no morbidity. Nevertheless they represent very traumatic events for families. There is a need to identify key messages that reassure carers and help to prevent inappropriate, anxiety-driven behaviors associated with "fever phobia." No recommendations have been proposed to date regarding the content of such messages. Using a Delphi process, we have established a consensus regarding the information to be shared with families following a FS. Twenty physicians (child neurologists and pediatricians) from five European countries participated in a three-step Delphi process between May 2018 and October 2019. In the first step, each expert was asked to give 10 to 15 free statements about FS. In the second and third steps, statements were scored and selected according to the expert ranking of importance. A list of key messages for families has emerged from this process, which offer reassurance about FS based on epidemiology, underlying mechanisms, and the emergency management of FS should they recur. Interestingly, there was a high level of agreement between child neurologists and general pediatricians. Conclusion: We propose key messages to be communicated with families in the post-FS clinic setting. What is Known: • Febrile seizures (FS) are traumatic events for families. • No guidelines exist on what information to share with parents following a FS. What is New: • A Delphi process involving child neurologists and pediatricians provides consensual statement about information to deliver after a febrile seizure. • We propose key messages to be communicated with families in the post-FS clinic setting.
Authors: Caterina M Clericetti; Gregorio P Milani; Mario G Bianchetti; Giacomo D Simonetti; Emilio F Fossali; Alessandra M Balestra; Marie-Ange Bozzini; Carlo Agostoni; Sebastiano A G Lava Journal: Acta Paediatr Date: 2019-02-27 Impact factor: 2.299
Authors: M van Stuijvenberg; S de Vos; G C Tjiang; E W Steyerberg; G Derksen-Lubsen; H A Moll Journal: Acta Paediatr Date: 1999-06 Impact factor: 2.299