Ada Hui1, Stefan Rennick-Egglestone1, Donna Franklin2, Rianna Walcott3, Joy Llewellyn-Beardsley1, Fiona Ng1, James Roe4, Caroline Yeo1, Emilia Deakin1, Sarah Brydges5, Patricia Penas Moran6, Rose McGranahan7, Kristian Pollock8, Graham Thornicroft9, Mike Slade1. 1. School of Health Sciences, Institute of Mental Health, University of Nottingham, Nottingham, United Kingdom. 2. NEON Lived Experience Advisory Panel, Nottingham, United Kingdom. 3. Department of Digital Humanities, King's College London, London, United Kingdom. 4. National Institute for Health Research, ARC East Midlands, University of Nottingham, Nottingham, United Kingdom. 5. School of Pharmacy, University of Nottingham, Nottingham, United Kingdom. 6. Department of Personality, Assessment and Psychological Treatment, University of Deusto, Bilbo, Spain. 7. Unit of Social and Community Psychiatry, Queen Mary University of London, London, United Kingdom. 8. School of Health Sciences, University of Nottingham, Nottingham, United Kingdom. 9. Centre for Global Mental Health and Centre for Implementation Science, Health Service and Population Research Department, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, United Kingdom.
Abstract
BACKGROUND: Institutional injustice refers to structures that create disparities in resources, opportunities and representation. Marginalised people experience institutional injustice, inequalities and discrimination through intersecting personal characteristics and social circumstances. This study aimed to investigate sources of institutional injustice and their effects on marginalised people with experience of mental health problems. METHODS: Semi-structured interviews were conducted with 77 individuals from marginalised groups with experience of mental health problems, including psychosis, Black, Asian and minority ethnic (BAME) populations, complex needs and lived experience as a work requirement. These were analysed inductively enabling sensitising concepts to emerge. FINDINGS: Three processes of institutional injustice were identified: not being believed because of social status and personal backgrounds; not being heard where narratives did not align with dominant discourses, and not being acknowledged where aspects of identity were disregarded. Harmful outcomes included disengagement from formal institutions through fear and mistrust, tensions and reduced affiliation with informal institutions when trying to consolidate new ways of being, and damaging impacts on mental health and wellbeing through multiple oppression. CONCLUSIONS: Institutional injustice perpetuates health inequalities and marginalised status. Master status, arising from dominant discourses and heuristic bias, overshadow the narratives and experiences of marginalised people. Cultural competency has the potential to improve heuristic availability through social understandings of narrative and experience, whilst coproduction and narrative development through approaches such as communities of practice might offer meaningful avenues for authentic expression.
BACKGROUND: Institutional injustice refers to structures that create disparities in resources, opportunities and representation. Marginalised people experience institutional injustice, inequalities and discrimination through intersecting personal characteristics and social circumstances. This study aimed to investigate sources of institutional injustice and their effects on marginalised people with experience of mental health problems. METHODS: Semi-structured interviews were conducted with 77 individuals from marginalised groups with experience of mental health problems, including psychosis, Black, Asian and minority ethnic (BAME) populations, complex needs and lived experience as a work requirement. These were analysed inductively enabling sensitising concepts to emerge. FINDINGS: Three processes of institutional injustice were identified: not being believed because of social status and personal backgrounds; not being heard where narratives did not align with dominant discourses, and not being acknowledged where aspects of identity were disregarded. Harmful outcomes included disengagement from formal institutions through fear and mistrust, tensions and reduced affiliation with informal institutions when trying to consolidate new ways of being, and damaging impacts on mental health and wellbeing through multiple oppression. CONCLUSIONS: Institutional injustice perpetuates health inequalities and marginalised status. Master status, arising from dominant discourses and heuristic bias, overshadow the narratives and experiences of marginalised people. Cultural competency has the potential to improve heuristic availability through social understandings of narrative and experience, whilst coproduction and narrative development through approaches such as communities of practice might offer meaningful avenues for authentic expression.
Authors: Joy Llewellyn-Beardsley; Stefan Rennick-Egglestone; Kristian Pollock; Yasmin Ali; Emma Watson; Donna Franklin; Caroline Yeo; Fiona Ng; Rose McGranahan; Mike Slade; Alison Edgley Journal: Qual Health Res Date: 2022-08-18