Literature DB >> 33858946

Genetic information, insurance and a pluralistic approach to justice.

Jonathan Pugh1.   

Abstract

The use of genetic testing has prompted the question of whether insurance companies should be able to use predictive genetic test results (GTRs) in their risk classification of clients. While some jurisdictions have passed legislation to prohibit this practice, the UK has instead adopted a voluntary code of practice that merely restricts the ways in which insurance companies may use GTRs. Critics have invoked various theories of justice to argue that this approach is unfair. However, as well as sometimes relying on somewhat idealised assumptions, these analyses have tended to invoke theories that have wide-ranging and highly revisionary implications for insurance. Moreover, they fail to adequately engage with a conception of justice that plausibly undergirds the status quo approach to insurance in the UK. I argue that it is a mistake to simply invoke a single contestable theory in seeking to develop sound policy on the use of GTRs in insurance. To that end, in this paper, I outline three plausible principles of justice that policy on this issue ought to balance: A principle of equity, a principle of equal access and a principle of need. In doing so, I shall offer a pluralist justice-based argument in support of the spirit, if not the precise letter, of the UK approach. © Author(s) (or their employer(s)) 2021. No commercial re-use. See rights and permissions. Published by BMJ.

Entities:  

Keywords:  distributive justice; genethics; genetic information; genetic screening/testing

Year:  2021        PMID: 33858946      PMCID: PMC8257549          DOI: 10.1136/medethics-2020-106913

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  8 in total

Review 1.  Genetic information and testing in insurance and employment: technical, social and ethical issues.

Authors:  Béatrice Godard; Sandy Raeburn; Marcus Pembrey; Martin Bobrow; Peter Farndon; Ségolène Aymé
Journal:  Eur J Hum Genet       Date:  2003-12       Impact factor: 4.246

2.  Should genetic information be disclosed to insurers? Yes.

Authors:  Søren Holm
Journal:  BMJ       Date:  2007-06-09

Review 3.  Genetic testing and the future of disability insurance: ethics, law & policy.

Authors:  Susan M Wolf; Jeffrey P Kahn
Journal:  J Law Med Ethics       Date:  2007       Impact factor: 1.718

4.  Is genetic information relevantly different from other kinds of non-genetic information in the life insurance context?

Authors:  P J Malpas
Journal:  J Med Ethics       Date:  2008-07       Impact factor: 2.903

Review 5.  Reassessing insurers' access to genetic information: genetic privacy, ignorance, and injustice.

Authors:  Eli Feiring
Journal:  Bioethics       Date:  2008-04-11       Impact factor: 1.898

6.  Time to End the Use of Genetic Test Results in Life Insurance Underwriting.

Authors:  Mark A Rothstein
Journal:  J Law Med Ethics       Date:  2018-09       Impact factor: 1.718

Review 7.  Incidence of adult Huntington's disease in the UK: a UK-based primary care study and a systematic review.

Authors:  Nancy S Wexler; Laura Collett; Alice R Wexler; Michael D Rawlins; Sarah J Tabrizi; Ian Douglas; Liam Smeeth; Stephen J Evans
Journal:  BMJ Open       Date:  2016-02-23       Impact factor: 2.692

8.  Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data.

Authors:  Anna Middleton; Richard Milne; Heidi Howard; Emilia Niemiec; Lauren Robarts; Christine Critchley; Dianne Nicol; Barbara Prainsack; Jerome Atutornu; Danya F Vears; James Smith; Claire Steed; Paul Bevan; Erick R Scott; Jason Bobe; Peter Goodhand; Erika Kleiderman; Adrian Thorogood; Katherine I Morley
Journal:  Eur J Hum Genet       Date:  2019-11-29       Impact factor: 4.246

  8 in total

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