| Literature DB >> 33820789 |
Shaneice Fletcher-Hildebrand1, Hubert Alimezelli2, Tracey Carr2, Karen Lawson1, Anum Ali2, Gary Groot3.
Abstract
INTRODUCTION: Housing instability and homelessness are significant barriers to medical treatment for people living with HIV/AIDS. For these individuals, lack of stable housing and stigma is associated with insufficient access to care, poor adherence to medication and higher cost burdens to the healthcare system. This protocol reports on the efforts to evaluate Sanctum V.1.0, a hospice and transitional care home for adults with HIV/AIDS in Saskatoon, Saskatchewan, Canada. The current project was developed out of a need to identify how Sanctum V.1.0 produces varying programme outcomes to assist in endeavours to replicate the programme in other geographic locations. METHODS AND ANALYSIS: A realist evaluation will be conducted to explore how and why Sanctum V.1.0 is successful or unsuccessful, in which circumstances and for whom. Rather than explore the degree to which a programme is effective, realist evaluations seek to uncover mechanisms that explain processual links between programme inputs and outcomes. The completed first phase of the project involved the development of an initial realist programme theory. Phases 2 and 3 will consist of methods to test, refine and validate the initial theory using various data sources. ETHICS AND DISSEMINATION: Ethics approval was obtained from the institutional review board at the University of Saskatchewan on 2 July 2020. Results will be disseminated according to stakeholders' desires. © Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.Entities:
Keywords: HIV & AIDS; health services administration & management; public health
Mesh:
Year: 2021 PMID: 33820789 PMCID: PMC8030488 DOI: 10.1136/bmjopen-2020-044522
Source DB: PubMed Journal: BMJ Open ISSN: 2044-6055 Impact factor: 2.692
Programmes offered at Sanctum 1.0
| Sanctum Care Group Programme | Description of Programme |
| Sanctum 1.0 | A HIV hospice and transitional care home for adults who are HIV positive and deemed as high-risk due to such factors as unstable housing or substance addictions. |
| Sanctum 1.5 | A prenatal care home for pregnant women who are HIV positive and deemed high risk. |
| Beehive | Apartments that Sanctum 1.0 residents can transition to after 3 months if they desire continued supportive living. |
| HART | A group of support workers who assist PLHIV who are admitted to the hospital or access emergency rooms. |
PLHIV, people living with HIV/AIDS.
Figure 1Research process informed by Pawson and Tilley.
List of initial contexts, mechanisms and outcomes gleaned from phase 1 data sources
| Element | Social-ecological model level | ||
| Micro | Meso | Macro | |
| Contexts | Demographics (eg, HIV/AIDS status, Indigenous ethnicity, unstable housing, criminal justice involvement, low income, low education level) | Positive interactions with staff and peer mentors Harm reduction philosophy Patient-oriented approach Focus on clients’ control over their health and end-of-life dignity Holistic care plans Non-judgmental environment | HIV-related stigma Community partnerships Funding Geographic location of residence (near multiple resources) |
| Mechanisms | Comfort Empowerment Stability Motivation Self-efficacy Self-worth Belonging Alleviation from chaotic lifestyle Stress reduction Safety Independence Feelings unsafe Feeling isolated | Trusting relationships Supportive relationships Social integration | Alleviation from social inequity in the community |
| Short-term | Intermediate-term | Long-term | |
| Outcomes | Knowledge of safe injection drug use Knowledge of wraparound support services Knowledge of health treatments Increased sense of belonging Increased sense of safety | Practice safe injection drug use, thereby minimising risky behaviour Confidence and empowerment to manage conditions, thereby improving autonomous self-care Adherence to medical treatments, thereby improving medical indicators of health | Improved mental and physical health Increased quality of life Decrease in hospital readmissions and emergency room visits Decrease cost burden on healthcare system |
Figure 2Sanctum 1.0 programme logic model
Figure 3Sanctum 1.0 initial realist programme theory.