| Literature DB >> 33802540 |
Wen-Huei Chou1, Ya-Ling Ko2, Xiang-Yu Huang1.
Abstract
This study aimed to develop an interactive app for occupational therapy interventions for middle-aged and elderly family caregivers by integrating life review and narrative therapy. The results indicated that the interventions improved the mood of individuals, but the improvement in the quality of life was less significant due to the multiple facets of life. The interface design of the interactive app had good operating characteristics and was above average in terms of learnability and usability. Overall, the intervention program positively improved participants' psychological aspect, which was in line with the purpose of the life review. Thus, a focus group put forward specific suggestions on the contextual construction of life review, the intelligent development of guiding questions, scenario simulation, and the introduction of creative collaboration functions, which could be used as a reference for subsequent content adjustment and interface design.Entities:
Keywords: caregiver; interaction design; life review; narrative therapy; occupational therapy
Year: 2021 PMID: 33802540 PMCID: PMC8001727 DOI: 10.3390/healthcare9030275
Source DB: PubMed Journal: Healthcare (Basel) ISSN: 2227-9032
Research focus and key elements for the implementation of life review activities.
| Research Focus | Key Aspects | Key Elements |
|---|---|---|
| 1. Establish the implementation structure of the life review method | 1. Core aspect of the life review method | 1. Affect the psychological conditions of the target group and achieve self-integration; |
| 2. Key factors affecting the conduct of life review | 1. Physical and psychological assessment between the activity facilitator and the target group; | |
| 3. Basis for evaluation of the effectiveness of implementing life review activities | 1. After guidance, reconsider one’s own role and life experience, reconcile with oneself, and develop new perceptions and perspectives to guide the individual to face the future; | |
| 2. Implementation status and essentials of intervention activities | 1. Guiding method of life review | 1. Emphasis is placed on the participants’ narration of profound experiences (which may be non-linear) that have influenced them; |
| 2. Operation and precautions for life review | 1. It is recommended to conduct the activity in the morning and each activity should not exceed 2 h; | |
| 3. Combine the operating effects of different aids | Different from traditional hand-written works and drawings on paper, life review guidance and operation mode are translated and applied with the aid of digital technologies to avoid time and space limitations. |
Topic design and content of life review units.
| Main Topic | Unit Topic | Content |
|---|---|---|
| 1. Rebuild the meaning of self-role | 1. The most memorable growth experience | Describe the most influential people and things in your growth process |
| 2. The turning point in your life | Talk about the highs and lows in your life course | |
| 2. Relationship integration | 1. Family memoirs | Reminiscence of your family in photos, images, and paintings |
| 2. My caregiving journey | Describe your relationship with the cared for and how it happened. | |
| 3. Satisfaction puzzle | Imagine what elements of life can be put together to satisfy yourself? | |
| 3. Release conflicts and dissatisfaction | 1. The lost beauty | Describe an event in your life that you regret? How would the same event be repaired and changed if it were to happen again? |
| 2. The happiness equation | Describe the memories of your life that make you feel happy | |
| 3. My dream house | Describe a vision of your future and the goals you want to achieve |
Figure 1Functional structure of the i-Review interactive app.
Figure 2The interface of the i-Review interactive app.
Baseline data of participants.
| No | Sex | Age (Years) | Relationship with the Cared for | Disease of the Cared for | Length of Caregiving (Years) | Employment Status of Caregivers | |
|---|---|---|---|---|---|---|---|
| Before Caregiving | After Caregiving | ||||||
| 1 | M | 48 | Mother and son | Stroke | 8 | Employed | Unemployed |
| 2 | F | 62 | Ex-wife | Stroke | 1 | Employed | To be employed |
| 3 | M | 58 | Husband and wife | Stroke | 5 | Employed | Unemployed |
| 4 | F | 68 | Husband and wife | Brain injury | 4 | Retired | Retired |
| 5 | F | 40 | Husband and wife | Stroke | 2 | Employed | To be employed |
| 6 | M | 48 | Mother and son | Myelopathy | 1 | Employed | Unemployed |
| 7 | M | 68 | Husband and wife | Stroke | 4 | Retired | Retired |
| 8 | F | 41 | Husband and wife | Stroke | 3 | Unemployed | Unemployed |
| 9 | F | 49 | Husband and wife | Stroke | 2 | Employed | Unemployed |
| 10 | F | 48 | Mother-in-law/daughter-in-law | Stroke | 1 | Employed | To be employed |
| 11 | F | 40 | Mother and daughter | Carbon monoxide poisoning | 1 | Employed | To be employed |
| 12 | F | 56 | Mother and son | Cerebral palsy | 20 | Unemployed | Unemployed |
Wilcoxon signed ranked test with Baker Depression Inventory-II (BDI-II) Second Edition.
| N | Pre-Test | Post-Test | Paired Samples | |||
|---|---|---|---|---|---|---|
| M | SE | M | SE | Z | ||
| 12 | 11.92 | 10.352 | 8.83 | 7.907 | −2.075 | 0.038 * |
* p-value < 0.05.
Wilcoxon signed ranked Test with WHOQOL-BREF Taiwan version items (N = 12).
| Domain | Item | Pre-Test | Post-Test | ||||
|---|---|---|---|---|---|---|---|
| M | SE | S | SE | ||||
| overall | 1 | General QOL | 3.17 | 0.72 | 3.25 | 0.75 | 0.564 |
| 2 | General health | 3.25 | 0.62 | 3.33 | 0.78 | 0.564 | |
| Physical | 3 | Pain and discomfort * | 3.83 | 0.83 | 4.33 | 0.78 | 0.190 |
| 4 | Dependence on medicinal substances and medical aids * | 4.50 | 0.52 | 4.50 | 0.67 | 1.000 | |
| 10 | Energy and fatigue | 3.25 | 0.62 | 3.33 | 0.65 | 0.705 | |
| 15 | Mobility | 3.42 | 1.24 | 3.42 | 1.24 | 0.915 | |
| 16 | Sleep and rest | 2.92 | 0.90 | 3.25 | 0.97 | 0.234 | |
| 17 | Activities of daily living | 3.50 | 0.67 | 3.42 | 1.00 | 0.763 | |
| 18 | Work capacity | 3.50 | 0.67 | 3.50 | 0.52 | 1.000 | |
| psychological | 5 | Positive feelings | 2.08 | 0.79 | 2.42 | 0.90 | 0.206 |
| 6 | Spirituality, religion and personal beliefs | 3.08 | 1.00 | 3.25 | 0.75 | 0.480 | |
| 7 | Thinking, learning, memory, and concentration | 2.75 | 0.75 | 3.00 | 0.85 | 0.366 | |
| 11 | Bodily image and appearance | 3.08 | 0.51 | 3.17 | 0.58 | 0.564 | |
| 19 | Self-esteem | 3.33 | 0.65 | 3.33 | 0.65 | 1.000 | |
| 26 | Negative feelings * | 3.17 | 0.94 | 3.67 | 0.65 | 0.034 * | |
| social relationship | 20 | Personal relationships | 3.50 | 0.80 | 3.58 | 0.67 | 0.655 |
| 21 | Sexual activity | 3.17 | 0.94 | 3.42 | 0.67 | 0.180 | |
| 22 | Social support | 3.75 | 0.87 | 3.50 | 0.90 | 0.257 | |
| 27 | Being Respected | 3.33 | 0.89 | 2.91 | 0.79 | 0.025 * | |
| Environment | 8 | Physical safety and security | 3.08 | 1.08 | 3.17 | 0.83 | 0.655 |
| 9 | Physical environment | 3.50 | 0.52 | 3.50 | 0.52 | 1.000 | |
| 12 | Financial resources | 2.83 | 1.27 | 3.08 | 1.00 | 0.317 | |
| 13 | Information and skills | 3.17 | 0.72 | 3.25 | 0.97 | 0.655 | |
| 14 | leisure activities | 2.17 | 0.94 | 2.83 | 1.03 | 0.071 | |
| 23 | Home environment | 3.50 | 0.67 | 3.42 | 0.90 | 0.705 | |
| 24 | health service | 3.83 | 0.58 | 3.92 | 0.79 | 0.655 | |
| 25 | Transportation | 3.83 | 0.72 | 3.67 | 0.49 | 0.317 | |
| 28 | Eating | 3.42 | 1.16 | 3.58 | 1.00 | 0.608 | |
item * = reverse coding. * p-value < 0.05.
Wilcoxon Signed Ranked Test of Domains in Pre- and Post-tests.
| Domain | Pre-Test | Post-Test | |||
|---|---|---|---|---|---|
| M | SE | S | SE | ||
| Physical | 14.24 | 1.81 | 14.71 | 2.13 | 0.656 |
| psychological | 11.67 | 2.28 | 12.56 | 1.97 | 0.070 |
| social relationship | 13.75 | 2.14 | 13.42 | 1.88 | 0.157 |
| Environment | 13.04 | 2.28 | 13.52 | 2.25 | 0.178 |
Evaluation and test results of the interactive app using System Usability Scale (SUS).
| N | Evaluation Index | M | Max. | Min. |
|---|---|---|---|---|
| 12 | Total scale score | 74.4 | 90 | 62.5 |
| Total learnability score | 73.9 | 100 | 37.5 | |
| Total usability score | 73.7 | 90.625 | 62.5 |