Literature DB >> 33776602

Engaging Carers in Co-Design: Development of the Carer Readiness Tool.

Sian White1, Natalie Hart1, Suzanne Lewis1.   

Abstract

INTRODUCTION: The Carer Support Unit (CSU) of the Central Coast Local Health District (CCLHD), NSW, Australia, developed, trialled and implemented a Carer Readiness Tool (CRT) to help carers gauge their readiness to care at home, highlight to hospital staff areas for additional support for carers, and provide evidence of carer engagement in discharge planning. DESCRIPTION: A rigorous co-design process was followed with carer consultation at key milestones in development of the CRT. The tool was piloted in two cancer/chronic renal disease inpatient units commencing November 2019. DISCUSSION: The CRT was well-received by carers who appreciated the opportunity to complete the tool in their own time, not in front of the patient. Positive feedback was received from clinicians, including the breadth of the CRT's content which contributed to better discharge planning. The need to manually incorporate a hard copy form into the electronic medical record is a limitation of the CRT.
CONCLUSION: The CRT is context-specific and fit for purpose. During the development of the CRT, the project team focused on the face validity and usefulness of the tool. The next stage of the project will be formal evaluation of the tool to measure its impact. Copyright:
© 2021 The Author(s).

Entities:  

Keywords:  cancer patients; carer readiness; co-design; discharge planning; informal caregivers

Year:  2021        PMID: 33776602      PMCID: PMC7977025          DOI: 10.5334/ijic.5527

Source DB:  PubMed          Journal:  Int J Integr Care            Impact factor:   5.120


  12 in total

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Authors:  Heidi J Silver; Nancy S Wellman; Daisy Galindo-Ciocon; Paulette Johnson
Journal:  J Am Diet Assoc       Date:  2004-01

2.  Mutuality and preparedness as predictors of caregiver role strain.

Authors:  P G Archbold; B J Stewart; M R Greenlick; T Harvath
Journal:  Res Nurs Health       Date:  1990-12       Impact factor: 2.228

3.  'Seamless care? Just a list would have helped!' Older people and their carer's experiences of support with medication on discharge home from hospital.

Authors:  Denise A Knight; Diane Thompson; Elspeth Mathie; Angela Dickinson
Journal:  Health Expect       Date:  2011-08-12       Impact factor: 3.377

Review 4.  A metasynthesis study of family caregivers' transition experiences caring for community-dwelling persons with advanced cancer at the end of life.

Authors:  Wendy Duggleby; Jamie Tycholiz; Lorraine Holtslander; Peter Hudson; Cheryl Nekolaichuk; Mehrnoush Mirhosseini; Jasneet Parmar; Thane Chambers; Angele Alook; Jennifer Swindle
Journal:  Palliat Med       Date:  2016-10-25       Impact factor: 4.762

5.  The Family Caregiver Activation in Transitions (FCAT) Tool: A New Measure of Family Caregiver Self-Efficacy.

Authors:  Eric A Coleman; Kelly L Ground; Andrew Maul
Journal:  Jt Comm J Qual Patient Saf       Date:  2015-11

Review 6.  Caregiver Integration During Discharge Planning for Older Adults to Reduce Resource Use: A Metaanalysis.

Authors:  Juleen Rodakowski; Philip B Rocco; Maqui Ortiz; Barbara Folb; Richard Schulz; Sally C Morton; Sally Caine Leathers; Lu Hu; A Everette James
Journal:  J Am Geriatr Soc       Date:  2017-04-03       Impact factor: 5.562

7.  Helping lay carers of people with advanced cancer and their GPs to talk: an exploration of Australian users' views of a simple carer health checklist.

Authors:  Letitia Burridge; Geoffrey Mitchell; Moyez Jiwa; Afaf Girgis
Journal:  Health Soc Care Community       Date:  2015-12-23

8.  Is cancer care dependant on informal carers?

Authors:  Rebecca E Olson
Journal:  Aust Health Rev       Date:  2012-08       Impact factor: 1.990

9.  Home alone: patient and carer uncertainty surrounding discharge with continuing clinical care needs.

Authors:  Maureen Boughton; Lesley Halliday
Journal:  Contemp Nurse       Date:  2009-08       Impact factor: 1.787

10.  Hospital postdischarge intervention trialled with family caregivers of older people in Western Australia: potential translation into practice.

Authors:  Samar M Aoun; Roswitha Stegmann; Susan Slatyer; Keith D Hill; Richard Parsons; Rachael Moorin; Mary Bronson; Debbie Walsh; Christine Toye
Journal:  BMJ Open       Date:  2018-11-08       Impact factor: 2.692

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  1 in total

1.  Supporting family carers in Ireland: the role of the general practitioner.

Authors:  Mary Cronin; Sinead McGilloway
Journal:  Ir J Med Sci       Date:  2022-06-15       Impact factor: 2.089

  1 in total

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