Literature DB >> 33728981

Family-level impact of genetic testing: integrating health economics and ethical, legal, and social implications.

Hadley Stevens Smith1, Amy L McGuire1, Eve Wittenberg2, Tara A Lavelle3.   

Abstract

Tweetable abstract Health economics and ELSI can be better integrated to consider the family impacts of genetic and genomic testing.

Entities:  

Keywords:  ELSI; cascade screening; clinical implementation; cost–effectiveness; evaluation; family; patient-centered

Mesh：

Year:  2021        PMID： 33728981      PMCID： PMC8488502          DOI： 10.2217/pme-2021-0016

Source DB:  PubMed          Journal:  Per Med        ISSN： 1741-0541            Impact factor:   2.512


  17 in total

1.  Spillover Effects on Caregivers' and Family Members' Utility: A Systematic Review of the Literature.

Authors:  Eve Wittenberg; Lyndon P James; Lisa A Prosser
Journal:  Pharmacoeconomics       Date:  2019-04       Impact factor: 4.981

Review 2.  Family Spillover Effects in Pediatric Cost-Utility Analyses.

Authors:  Tara A Lavelle; Brittany N D'Cruz; Babak Mohit; Wendy J Ungar; Lisa A Prosser; Kate Tsiplova; Montserrat Vera-Llonch; Pei-Jung Lin
Journal:  Appl Health Econ Health Policy       Date:  2019-04       Impact factor: 2.561

3.  Defining personal utility in genomics: A Delphi study.

Authors:  J N Kohler; E Turbitt; K L Lewis; B S Wilfond; L Jamal; H L Peay; L G Biesecker; B B Biesecker
Journal:  Clin Genet       Date:  2017-04-19       Impact factor: 4.438

4.  Variation in the spillover effects of illness on parents, spouses, and children of the chronically ill.

Authors:  Tara A Lavelle; Eve Wittenberg; Kara Lamarand; Lisa A Prosser
Journal:  Appl Health Econ Health Policy       Date:  2014-04       Impact factor: 2.561

5.  Normative and conceptual ELSI research: what it is, and why it's important.

Authors:  Lisa S Parker; Pamela L Sankar; Joy Boyer; J D Jean McEwen; David Kaufman
Journal:  Genet Med       Date:  2018-07-04       Impact factor: 8.822

6.  Recommendations for Conduct, Methodological Practices, and Reporting of Cost-effectiveness Analyses: Second Panel on Cost-Effectiveness in Health and Medicine.

Authors:  Gillian D Sanders; Peter J Neumann; Anirban Basu; Dan W Brock; David Feeny; Murray Krahn; Karen M Kuntz; David O Meltzer; Douglas K Owens; Lisa A Prosser; Joshua A Salomon; Mark J Sculpher; Thomas A Trikalinos; Louise B Russell; Joanna E Siegel; Theodore G Ganiats
Journal:  JAMA       Date:  2016-09-13       Impact factor: 56.272

Review 7.  Assessing the Costs and Cost-Effectiveness of Genomic Sequencing.

Authors:  Kurt D Christensen; Dmitry Dukhovny; Uwe Siebert; Robert C Green
Journal:  J Pers Med       Date:  2015-12-10

8.  Parental Perspectives on Whole Exome Sequencing in Pediatric Cancer: A Typology of Perceived Utility.

Authors:  Janet Malek; Melody J Slashinski; Jill O Robinson; Amanda M Gutierrez; D Williams Parsons; Sharon E Plon; Laurence B McCullough; Amy L McGuire
Journal:  JCO Precis Oncol       Date:  2017-05-31

Review 9.  Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group.

Authors:  Stacy W Gray; Yolanda Martins; Lindsay Z Feuerman; Barbara A Bernhardt; Barbara B Biesecker; Kurt D Christensen; Steven Joffe; Christine Rini; David Veenstra; Amy L McGuire
Journal:  Genet Med       Date:  2014-03-13       Impact factor: 8.822

10.  Cost-effectiveness of Population-Wide Genomic Screening for Hereditary Breast and Ovarian Cancer in the United States.

Authors:  Gregory F Guzauskas; Shawn Garbett; Zilu Zhou; Scott J Spencer; Hadley S Smith; Jing Hao; Dina Hassen; Susan R Snyder; John A Graves; Josh F Peterson; Marc S Williams; David L Veenstra
Journal:  JAMA Netw Open       Date:  2020-10-01
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  2 in total

1.  Perceived utility and disutility of genomic sequencing for pediatric patients: Perspectives from parents with diverse sociodemographic characteristics.

Authors:  Meghan C Halley; Jennifer L Young; Liliana Fernandez; Jennefer N Kohler; Jonathan A Bernstein; Matthew T Wheeler; Holly K Tabor
Journal:  Am J Med Genet A       Date:  2022-01-03       Impact factor: 2.802

2.  Approaching discussions about genetics with palliative patients and their families: a qualitative exploration with genetic health professionals.

Authors:  Stephanie White; Erin Turbitt; Jane L Phillips; Chris Jacobs
Journal:  Eur J Hum Genet       Date:  2022-09-05       Impact factor: 5.351
  2 in total

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