Literature DB >> 33683017

Balancing External Validity and Concern for Psychosocial Harms in Translational Genetic Research.

Jessica Mozersky1, Michelle N Meyer2, Alanna Kulchak Rahm3, Sean M O'Dell4, Adam Buchanan5.   

Abstract

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Year:  2021        PMID： 33683017      PMCID： PMC8194321          DOI： 10.1002/eahr.500086

Source DB:  PubMed          Journal:  Ethics Hum Res        ISSN： 2578-2355


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  22 in total

1.  Translational and clinical science--time for a new vision.

Authors:  Elias A Zerhouni
Journal:  N Engl J Med       Date:  2005-10-12       Impact factor: 91.245

2.  On What We Have Learned and Still Need to Learn about the Psychosocial Impacts of Genetic Testing.

Authors:  Erik Parens; Paul S Appelbaum
Journal:  Hastings Cent Rep       Date:  2019-05       Impact factor: 2.683

3.  The meaning of translational research and why it matters.

Authors:  Steven H Woolf
Journal:  JAMA       Date:  2008-01-09       Impact factor: 56.272

4.  Reconceptualizing harms and benefits in the genomic age.

Authors:  Anya E R Prince; Benjamin E Berkman
Journal:  Per Med       Date:  2018-09-27       Impact factor: 2.512

5.  Cascade screening based on genetic testing is cost-effective: evidence for the implementation of models of care for familial hypercholesterolemia.

Authors:  Zanfina Ademi; Gerald F Watts; Jing Pang; Eric J G Sijbrands; Frank M van Bockxmeer; Peter O'Leary; Elizabeth Geelhoed; Danny Liew
Journal:  J Clin Lipidol       Date:  2014-06-12       Impact factor: 4.766

6.  Essential elements of genetic cancer risk assessment, counseling, and testing: updated recommendations of the National Society of Genetic Counselors.

Authors:  Bronson D Riley; Julie O Culver; Cécile Skrzynia; Leigha A Senter; June A Peters; Josephine W Costalas; Faith Callif-Daley; Sherry C Grumet; Katherine S Hunt; Rebecca S Nagy; Wendy C McKinnon; Nancie M Petrucelli; Robin L Bennett; Angela M Trepanier
Journal:  J Genet Couns       Date:  2011-12-02       Impact factor: 2.537

7.  Psychosocial Adjustment and Perceived Risk Among Adolescent Girls From Families With BRCA1/2 or Breast Cancer History.

Authors:  Angela R Bradbury; Linda Patrick-Miller; Lisa A Schwartz; Brian L Egleston; Dare Henry-Moss; Susan M Domchek; Mary B Daly; Lisa Tuchman; Cynthia Moore; Paula K Rauch; Rebecca Shorter; Kelsey Karpink; Colleen Burke Sands
Journal:  J Clin Oncol       Date:  2016-08-22       Impact factor: 44.544

8.  American Society of Clinical Oncology Policy Statement Update: Genetic and Genomic Testing for Cancer Susceptibility.

Authors:  Mark E Robson; Angela R Bradbury; Banu Arun; Susan M Domchek; James M Ford; Heather L Hampel; Stephen M Lipkin; Sapna Syngal; Dana S Wollins; Noralane M Lindor
Journal:  J Clin Oncol       Date:  2015-08-31       Impact factor: 44.544

Review 9.  Effects of genetic risk information on children's psychosocial wellbeing: a systematic review of the literature.

Authors:  Christopher H Wade; Benjamin S Wilfond; Colleen M McBride
Journal:  Genet Med       Date:  2010-06       Impact factor: 8.822

10.  Pediatric reporting of genomic results study (PROGRESS): a mixed-methods, longitudinal, observational cohort study protocol to explore disclosure of actionable adult- and pediatric-onset genomic variants to minors and their parents.

Authors:  Juliann M Savatt; Jennifer K Wagner; Steven Joffe; Alanna Kulchak Rahm; Marc S Williams; Angela R Bradbury; F Daniel Davis; Julie Hergenrather; Yirui Hu; Melissa A Kelly; H Lester Kirchner; Michelle N Meyer; Jessica Mozersky; Sean M O'Dell; Josie Pervola; Andrea Seeley; Amy C Sturm; Adam H Buchanan
Journal:  BMC Pediatr       Date:  2020-05-15       Impact factor: 2.125
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