Literature DB >> 33677996

Time to Engage Young People in HIV Cure Research.

Parya Saberi1, Chadwick K Campbell1, Manuel Venegas2, Karine Dubé3.   

Abstract

Antiretroviral treatments successfully suppress and control HIV but cannot eliminate the virus. In recent years, much research has gone into developing a cure for HIV. This research comes with significant risks and limited clinical benefits to study participants. Little is known about the knowledge, willingness, motivations, and barriers of participating in HIV cure-related research. This is particularly true among young people living with HIV (YLWH), despite those <30 years having the highest HIV infection rates in the United States. YLWH have experienced a different phase of the HIV epidemic from their older counterparts. To guide HIV cure research development, more resources need to be directed toward understanding the perspectives of YLWH and meaningfully involving them in research. As the field of HIV cure research continues to grow and innovate, it is critical that we proactively engage YLWH as they will soon be at the forefront of decision making toward ending the HIV epidemic.

Entities:  

Keywords:  HIV cure; engagement; social and behavioral research; youth and young adults

Mesh:

Substances:

Year:  2021        PMID: 33677996      PMCID: PMC8785756          DOI: 10.1089/AID.2020.0268

Source DB:  PubMed          Journal:  AIDS Res Hum Retroviruses        ISSN: 0889-2229            Impact factor:   2.205


  19 in total

1.  Factors Associated With Retention Among Non-Perinatally HIV-Infected Youth in the HIV Research Network.

Authors:  Charles Farmer; Baligh R Yehia; John A Fleishman; Richard Rutstein; W Christopher Mathews; Ank Nijhawan; Richard D Moore; Kelly A Gebo; Allison L Agwu
Journal:  J Pediatric Infect Dis Soc       Date:  2014-10-19       Impact factor: 3.164

2.  Engaging, recruiting, and retaining black men who have sex with men in research studies: don't underestimate the importance of staffing--lessons learned from HPTN 061, the BROTHERS study.

Authors:  Manya Magnus; Julie Franks; Sam Griffith; Michael P Arnold; Krista Goodman; Darrell P Wheeler
Journal:  J Public Health Manag Pract       Date:  2014 Nov-Dec

3.  "We Need to Deploy Them Very Thoughtfully and Carefully": Perceptions of Analytical Treatment Interruptions in HIV Cure Research in the United States-A Qualitative Inquiry.

Authors:  Karine Dubé; David Evans; Lynda Dee; Laurie Sylla; Jeff Taylor; Asheley Skinner; Bryan J Weiner; Sandra B Greene; Stuart Rennie; Joseph D Tucker
Journal:  AIDS Res Hum Retroviruses       Date:  2017-07-10       Impact factor: 2.205

Review 4.  Towards an HIV cure: a global scientific strategy.

Authors:  Steven G Deeks; Brigitte Autran; Ben Berkhout; Monsef Benkirane; Scott Cairns; Nicolas Chomont; Tae-Wook Chun; Melissa Churchill; Michele Di Mascio; Christine Katlama; Alain Lafeuillade; Alan Landay; Michael Lederman; Sharon R Lewin; Frank Maldarelli; David Margolis; Martin Markowitz; Javier Martinez-Picado; James I Mullins; John Mellors; Santiago Moreno; Una O'Doherty; Sarah Palmer; Marie-Capucine Penicaud; Matija Peterlin; Guido Poli; Jean-Pierre Routy; Christine Rouzioux; Guido Silvestri; Mario Stevenson; Amalio Telenti; Carine Van Lint; Eric Verdin; Ann Woolfrey; John Zaia; Françoise Barré-Sinoussi
Journal:  Nat Rev Immunol       Date:  2012-07-20       Impact factor: 53.106

5.  The Dose Response: Perceptions of People Living with HIV in the United States on Alternatives to Oral Daily Antiretroviral Therapy.

Authors:  Karine Dubé; Shadi Eskaf; David Evans; John Sauceda; Parya Saberi; Brandon Brown; Dawn Averitt; Krista Martel; Maria Meija; Danielle Campbell; Liz Barr; John Kanazawa; Kelly Perry; Hursch Patel; Stuart Luter; Tonia Poteat; Judith D Auerbach; David A Wohl
Journal:  AIDS Res Hum Retroviruses       Date:  2019-12-04       Impact factor: 2.205

6.  The HIV Care Cascade Measured Over Time and by Age, Sex, and Race in a Large National Integrated Care System.

Authors:  Michael Alan Horberg; Leo Bartemeier Hurley; Daniel Benjamin Klein; William James Towner; Peter Kadlecik; Diana Antoniskis; Miguel Mogyoros; Philip Sigmund Brachman; Carol Louise Remmers; Rebecca Claire Gambatese; Jackie Blank; Courtney Georgiana Ellis; Michael Jonah Silverberg
Journal:  AIDS Patient Care STDS       Date:  2015-11       Impact factor: 5.078

Review 7.  Review: an urgent need for research on factors impacting adherence to and retention in care among HIV-positive youth and adolescents from key populations.

Authors:  Priya Lall; Sin How Lim; Norliana Khairuddin; Adeeba Kamarulzaman
Journal:  J Int AIDS Soc       Date:  2015-02-26       Impact factor: 5.396

8.  Recruitment and ethical considerations in HIV cure trials requiring treatment interruption.

Authors:  Michael P Arnold; David Evans; Nelson Vergel
Journal:  J Virus Erad       Date:  2015-01-01

9.  HIV Cure Research: Risks Patients Expressed Willingness to Accept.

Authors:  Allison Kratka; Peter A Ubel; Karen Scherr; Benjamin Murray; Nir Eyal; Christine Kirby; Madelaine N Katz; Lisa Holtzman; Kathryn Pollak; Kenneth Freedburg; Jennifer Blumenthal-Barby
Journal:  Ethics Hum Res       Date:  2019-11

10.  A collaborative, multidisciplinary approach to HIV transmission risk mitigation during analytic treatment interruption.

Authors:  Michael J Peluso; Lynda Dee; Danielle Campbell; Jeff Taylor; Rebecca Hoh; Rachel L Rutishauser; John Sauceda; Steven G Deeks; Karine Dubé
Journal:  J Virus Erad       Date:  2020-02-20
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  2 in total

1.  Illustrating HIV Cure Research Strategies for the Next Generation of Research Participants: A Research-Community Collaboration.

Authors:  Parya Saberi; Chadwick K Campbell; Eric Yi-Hao Lee; Jazmin Guzman; Matylda-Mai McCormack-Sharp; Karine Dubé
Journal:  AIDS Res Hum Retroviruses       Date:  2021-12-13       Impact factor: 2.205

2.  Perceptions of Risks and Benefits of Participating in HIV Cure-Related Research Among Diverse Young Adults Living with HIV in the United States: Qualitative Research Findings.

Authors:  Parya Saberi; Chadwick K Campbell; John A Sauceda; Samuel Ndukwe; Karine Dubé
Journal:  AIDS Res Hum Retroviruses       Date:  2022-06-28       Impact factor: 1.723

  2 in total

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