Literature DB >> 33665680

Experiences of living with mental health problems during the COVID-19 pandemic in the UK: a coproduced, participatory qualitative interview study.

Steven Gillard1, Ceri Dare2, Jackie Hardy2, Patrick Nyikavaranda2, Rachel Rowan Olive2, Prisha Shah2, Mary Birken2, Una Foye3, Josephine Ocloo3, Ellie Pearce2, Theodora Stefanidou2, Alexandra Pitman2, Alan Simpson3, Sonia Johnson2, Brynmor Lloyd-Evans4.   

Abstract

PURPOSE: Research is beginning to quantify the impact of COVID-19 on people with pre-existing mental health conditions. Our paper addresses a lack of in-depth qualitative research exploring their experiences and perceptions of how life has changed at this time.
METHODS: We used qualitative interviews (N = 49) to explore experiences of the pandemic for people with pre-existing mental health conditions. In a participatory, coproduced approach, researchers with lived experiences of mental health conditions conducted interviews and analysed data as part of a multi-disciplinary research team.
RESULTS: Existing mental health difficulties were exacerbated for many people. People experienced specific psychological impacts of the pandemic, struggles with social connectedness, and inadequate access to mental health services, while some found new ways to cope and connect to the community. New remote ways to access mental health care, including digital solutions, provided continuity of care for some but presented substantial barriers for others. People from black and ethnic minority (BAME) communities experienced heightened anxiety, stigma and racism associated with the pandemic, further impacting their mental health.
CONCLUSION: There is a need for evidence-based solutions to achieve accessible and effective mental health care in response to the pandemic, especially remote approaches to care. Further research should explore the long-term impacts of COVID-19 on people with pre-existing mental health conditions. Particular attention should be paid to understanding inequalities of impact on mental health, especially for people from BAME communities.
© 2021. The Author(s).

Entities:  

Keywords:  Covid-19; Mental health; Pandemic; Qualitative

Mesh:

Year:  2021        PMID: 33665680      PMCID: PMC7931976          DOI: 10.1007/s00127-021-02051-7

Source DB:  PubMed          Journal:  Soc Psychiatry Psychiatr Epidemiol        ISSN: 0933-7954            Impact factor:   4.328


  6 in total

1.  Impact on mental health care and on mental health service users of the COVID-19 pandemic: a mixed methods survey of UK mental health care staff.

Authors:  Sonia Johnson; Christian Dalton-Locke; Norha Vera San Juan; Una Foye; Sian Oram; Alexandra Papamichail; Sabine Landau; Rachel Rowan Olive; Tamar Jeynes; Prisha Shah; Luke Sheridan Rains; Brynmor Lloyd-Evans; Sarah Carr; Helen Killaspy; Steve Gillard; Alan Simpson
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2020-08-28       Impact factor: 4.328

Review 2.  Interventions to mitigate the effects of poverty and inequality on mental health.

Authors:  Kristian Wahlbeck; Johanna Cresswell-Smith; Peija Haaramo; Johannes Parkkonen
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2017-03-09       Impact factor: 4.328

3.  COVID-19: the perfect vector for a mental health epidemic.

Authors:  Idura N Hisham; Giles Townsend; Steve Gillard; Brishti Debnath; Jacqueline Sin
Journal:  BJPsych Bull       Date:  2020-06-01

4.  What does COVID mean for UK mental health care?

Authors:  Andrew Molodynski; Angus McLellan; Tom Craig; Dinesh Bhugra
Journal:  Int J Soc Psychiatry       Date:  2020-06-10

Review 5.  Can mental health interventions change social networks? A systematic review.

Authors:  Kimberley Anderson; Neelam Laxhman; Stefan Priebe
Journal:  BMC Psychiatry       Date:  2015-11-21       Impact factor: 3.630

  6 in total
  19 in total

Review 1.  Synthesis of the Evidence on What Works for Whom in Telemental Health: Rapid Realist Review.

Authors:  Merle Schlief; Katherine R K Saunders; Rebecca Appleton; Phoebe Barnett; Norha Vera San Juan; Una Foye; Rachel Rowan Olive; Karen Machin; Prisha Shah; Beverley Chipp; Natasha Lyons; Camilla Tamworth; Karen Persaud; Monika Badhan; Carrie-Ann Black; Jacqueline Sin; Simon Riches; Tom Graham; Jeremy Greening; Farida Pirani; Raza Griffiths; Tamar Jeynes; Rose McCabe; Brynmor Lloyd-Evans; Alan Simpson; Justin J Needle; Kylee Trevillion; Sonia Johnson
Journal:  Interact J Med Res       Date:  2022-09-29

2.  'Getting involved in research': a co-created, co-delivered and co-analysed course for those with lived experience of health and social care services.

Authors:  Carolyn Blair; Paul Best; Patricia Burns; Anne Campbell; Gavin Davidson; Joe Duffy; Anne Johnston; Berni Kelly; Campbell Killick; Denise Mac Dermott; Alan Maddock; Claire Jane McCartan; Paula McFadden; Anne McGlade; Lorna Montgomery; Sonia Patton; Dirk Schubotz; Brian Taylor; Fiona Templeton; Paul Webb; Chris White; Jade Yap
Journal:  Res Involv Engagem       Date:  2022-05-16

3.  An analysis of changes in wellbeing during the COVID-19 pandemic in the UK.

Authors:  Jen Murphy; Mark Elliot
Journal:  Discov Soc Sci Health       Date:  2022-04-25

4.  "They have more than enough to do than patch up people like me." Experiences of seeking support for self-harm in lockdown during the COVID-19 pandemic.

Authors:  Cara Sass; Kate Farley; Cathy Brennan
Journal:  J Psychiatr Ment Health Nurs       Date:  2022-04-24       Impact factor: 2.720

5.  Phenomenology of the COVID-19 Pandemic Experience in Patients Suffering from Chronic Schizophrenia-A Qualitative Analysis.

Authors:  Katarzyna Kotlarska; Benita Wielgus; Łukasz Cichocki
Journal:  Int J Environ Res Public Health       Date:  2021-12-22       Impact factor: 3.390

Review 6.  AI-Based Prediction and Prevention of Psychological and Behavioral Changes in Ex-COVID-19 Patients.

Authors:  Krešimir Ćosić; Siniša Popović; Marko Šarlija; Ivan Kesedžić; Mate Gambiraža; Branimir Dropuljić; Igor Mijić; Neven Henigsberg; Tanja Jovanovic
Journal:  Front Psychol       Date:  2021-12-28

7.  The Impact of the COVID-19 Pandemic on Those Supported in the Community with Long-Term Mental Health Problems: A Qualitative Analysis of Power, Threat, Meaning and Survival.

Authors:  Dawn Leeming; Mike Lucock; Kagari Shibazaki; Nicki Pilkington; Becky Scott
Journal:  Community Ment Health J       Date:  2022-01-15

8.  Implementation, Adoption, and Perceptions of Telemental Health During the COVID-19 Pandemic: Systematic Review.

Authors:  Rebecca Appleton; Julie Williams; Norha Vera San Juan; Fiona Gaughran; Sonia Johnson; Justin J Needle; Merle Schlief; Harriet Jordan; Luke Sheridan Rains; Lucy Goulding; Monika Badhan; Emily Roxburgh; Phoebe Barnett; Spyros Spyridonidis; Magdalena Tomaskova; Jiping Mo; Jasmine Harju-Seppänen; Zoë Haime; Cecilia Casetta; Alexandra Papamichail; Brynmor Lloyd-Evans; Alan Simpson; Nick Sevdalis
Journal:  J Med Internet Res       Date:  2021-12-09       Impact factor: 5.428

9.  "COVID-19 spreads round the planet, and so do paranoid thoughts". A qualitative investigation into personal experiences of psychosis during the COVID-19 pandemic.

Authors:  Minna Lyons; Ellen Bootes; Gayle Brewer; Katie Stratton; Luna Centifanti
Journal:  Curr Psychol       Date:  2021-10-12

10.  Exploring Access to Mental Health and Primary Care Services for People With Severe Mental Illness During the COVID-19 Restrictions.

Authors:  Elizabeth Newbronner; Panagiotis Spanakis; Ruth Wadman; Suzanne Crosland; Paul Heron; Gordon Johnston; Lauren Walker; Simon Gilbody; Emily Peckham
Journal:  Front Psychiatry       Date:  2022-01-21       Impact factor: 4.157

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