Literature DB >> 33631787

What Happens After a Positive Primary Care Autism Screen Among Historically Underserved Families? Predictors of Evaluation and Autism Diagnosis.

Jocelyn Kuhn1, Julia Levinson2, Manisha D Udhnani3, Kate Wallis3,4, Emily Hickey1, Amanda Bennett3, Ada M Fenick5, Emily Feinberg2,6, Sarabeth Broder-Fingert1,6.   

Abstract

OBJECTIVE: Families, pediatric providers, and service systems would benefit from expanded knowledge regarding (1) who is most likely to receive a recommended diagnostic evaluation after a positive primary care-administered autism screen and (2) of those who screen positive, who is most likely to be diagnosed with autism?
METHOD: Participants included 309 predominantly low-income, racial/ethnic minority parents and their child, aged 15 to 27 months, who screened positive on the Modified Checklist for Autism in Toddlers, Revised with Follow-Up (M-CHAT-R/F). Generalized estimating equations were used to fit models of predictors for each binary outcome: receiving a diagnostic evaluation and receiving an autism diagnosis on evaluation.
RESULTS: Significant predictors of diagnostic evaluation receipt included the parent being older or non-Hispanic and the child having private insurance, lower child communication functioning, or receiving Early Intervention services. Significant predictors of an autism diagnosis on evaluation included male child, lower child communication functioning, screening directly in the parent's preferred language, White/non-Hispanic parent, and no parent history of mood disorder.
CONCLUSION: Children with younger parents, Hispanic ethnicity, relatively higher communication skills, public insurance, and no Early Intervention services were less likely to receive recommended diagnostic care. Reduced likelihood of autism diagnosis after a positive screen in non-White/non-Hispanic subgroups supports previous research indicating issues with M-CHAT-R/F positive predictive power for racial/ethnic minorities. The use of telephonic interpreters to administer screens, as opposed to directly screening in families' preferred languages, may lead to identification of fewer true autism cases. Thus, multilingual clinical staff capacity may improve positive predictive power of autism screening.
Copyright © 2021 Wolters Kluwer Health, Inc. All rights reserved.

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Year:  2021        PMID: 33631787      PMCID: PMC8380258          DOI: 10.1097/DBP.0000000000000928

Source DB:  PubMed          Journal:  J Dev Behav Pediatr        ISSN: 0196-206X            Impact factor:   2.988


  33 in total

1.  Influence of reporting effects on the association between maternal depression and child autism spectrum disorder behaviors.

Authors:  Teresa Bennett; Michael Boyle; Katholiki Georgiades; Stelios Georgiades; Ann Thompson; Eric Duku; Susan Bryson; Eric Fombonne; Tracy Vaillancourt; Lonnie Zwaigenbaum; Isabel Smith; Pat Mirenda; Wendy Roberts; Joanne Volden; Charlotte Waddell; Peter Szatmari
Journal:  J Child Psychol Psychiatry       Date:  2011-08-10       Impact factor: 8.982

2.  Latino parents' perspectives on barriers to autism diagnosis.

Authors:  Katharine E Zuckerman; Brianna Sinche; Angie Mejia; Martiza Cobian; Thomas Becker; Christina Nicolaidis
Journal:  Acad Pediatr       Date:  2014 May-Jun       Impact factor: 3.107

3.  Differentiating between autism spectrum disorders and other developmental disabilities in children who failed a screening instrument for ASD.

Authors:  Pamela Ventola; Jamie Kleinman; Juhi Pandey; Leandra Wilson; Emma Esser; Hilary Boorstein; Thyde Dumont-Mathieu; Gail Marshia; Marianne Barton; Sarah Hodgson; James Green; Fred Volkmar; Katarzyna Chawarska; Tammy Babitz; Diana Robins; Deborah Fein
Journal:  J Autism Dev Disord       Date:  2007-03

4.  Accuracy of Autism Screening in a Large Pediatric Network.

Authors:  Whitney Guthrie; Kate Wallis; Amanda Bennett; Elizabeth Brooks; Jesse Dudley; Marsha Gerdes; Juhi Pandey; Susan E Levy; Robert T Schultz; Judith S Miller
Journal:  Pediatrics       Date:  2019-10       Impact factor: 7.124

5.  Child and Family Characteristics that Predict Autism Spectrum Disorder Specialty Clinic Appointment Attendance and Alignment with Providers.

Authors:  Gazi F Azad; Vini Singh; Luke Kalb; Melanie Pinkett-Davis; Rebecca Landa
Journal:  J Autism Dev Disord       Date:  2019-08

6.  Disparities in Diagnosis and Treatment of Autism in Latino and Non-Latino White Families.

Authors:  Katharine E Zuckerman; Olivia J Lindly; Nuri M Reyes; Alison E Chavez; Kristy Macias; Kathryn N Smith; Ann Reynolds
Journal:  Pediatrics       Date:  2017-05       Impact factor: 7.124

7.  Parenting stress in caregivers of young children with ASD concerns prior to a formal diagnosis.

Authors:  Trent D DesChamps; Lisa V Ibañez; Sarah R Edmunds; Catherine C Dick; Wendy L Stone
Journal:  Autism Res       Date:  2019-10-08       Impact factor: 5.216

8.  Validation of the modified checklist for Autism in toddlers, revised with follow-up (M-CHAT-R/F).

Authors:  Diana L Robins; Karís Casagrande; Marianne Barton; Chi-Ming A Chen; Thyde Dumont-Mathieu; Deborah Fein
Journal:  Pediatrics       Date:  2013-12-23       Impact factor: 7.124

Review 9.  A review of cultural adaptations of screening tools for autism spectrum disorders.

Authors:  Sandra Soto; Keri Linas; Diane Jacobstein; Matthew Biel; Talia Migdal; Bruno J Anthony
Journal:  Autism       Date:  2014-07-09

10.  Screening for Autism Spectrum Disorder in Young Children: US Preventive Services Task Force Recommendation Statement.

Authors:  Albert L Siu; Kirsten Bibbins-Domingo; David C Grossman; Linda Ciofu Baumann; Karina W Davidson; Mark Ebell; Francisco A R García; Matthew Gillman; Jessica Herzstein; Alex R Kemper; Alex H Krist; Ann E Kurth; Douglas K Owens; William R Phillips; Maureen G Phipps; Michael P Pignone
Journal:  JAMA       Date:  2016-02-16       Impact factor: 56.272

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  1 in total

Review 1.  Barriers to access and utilization of healthcare services for minority-language speakers with neurodevelopmental disorders: A scoping review.

Authors:  Myriam L H Beauchamp; Kaela Amorim; Samantha N Wunderlich; Jonathan Lai; Julie Scorah; Mayada Elsabbagh
Journal:  Front Psychiatry       Date:  2022-08-25       Impact factor: 5.435

  1 in total

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