Mandi L Pratt-Chapman1, Jeanne Murphy2,3, Dana Hines4, Ruta Brazinskaite1, Allison R Warren5,6, Asa Radix7. 1. GW Cancer Center, School of Medicine and Health Sciences, The George Washington University, Washington, DC, United States of America. 2. GW Cancer Center, School of Nursing, The George Washington University, Washington, DC, United States of America. 3. The GW Medical Faculty Associates, The George Washington University, Washington, DC, United States of America. 4. Division of Community HIV/AIDS Programs, HIV/AIDS Bureau, Rockville, MD, United States of America. 5. PRIME Center of Innovation, VA Connecticut Healthcare System, West Haven, CT, United States of America. 6. Department of Psychiatry, Yale School of Medicine, New Haven, CT, United States of America. 7. Callen-Lorde Community Health Center, New York, NY, United States of America.
Abstract
INTRODUCTION: Approximately 1.4 million transgender and gender diverse (TGD) adults in the United States have unique health and health care needs, including anatomy-driven cancer screening. This study explored the general healthcare experiences of TGD people in the Washington, DC area, and cancer screening experiences in particular. METHODS: Twenty-one TGD people were recruited through word of mouth and Lesbian Gay Bisexual Transgender Queer (LGBTQ)-specific community events. Participant interviews were conducted and recorded via WebEx (n = 20; one interview failed to record). Interviews were transcribed using Rev.com. Two coders conducted line-by-line coding for emergent themes in NVivo 12, developed a codebook by consensus, and refined the codebook throughout the coding process. Member checking was conducted to ensure credibility of findings. RESULTS: Three major themes served as parent nodes: health-care seeking behaviors, quality care, and TGD-specific health care experiences. Within these parent nodes there were 14 child nodes and 4 grand-child nodes. Subthemes for health care seeking behaviors included coverage and costs of care, convenience, trust/mistrust of provider, and provider recommendations for screening. Subthemes for quality of care included professionalism, clinical competence in transgender care, care coordination, provider communication, and patient self-advocacy. Overall, transgender men were less satisfied with care than transgender women. CONCLUSIONS: Results suggest a need for improved provider communication skills, including clear explanations of procedures and recommendations for appropriate screenings to TGD patients. Results also suggest a need for improved clinical knowledge and cultural competency. Respondents also wanted better care coordination and insurance navigation. Overall, these findings can inform health care improvements for TGD people.
INTRODUCTION: Approximately 1.4 million transgender and gender diverse (TGD) adults in the United States have unique health and health care needs, including anatomy-driven cancer screening. This study explored the general healthcare experiences of TGD people in the Washington, DC area, and cancer screening experiences in particular. METHODS: Twenty-one TGD people were recruited through word of mouth and Lesbian Gay Bisexual Transgender Queer (LGBTQ)-specific community events. Participant interviews were conducted and recorded via WebEx (n = 20; one interview failed to record). Interviews were transcribed using Rev.com. Two coders conducted line-by-line coding for emergent themes in NVivo 12, developed a codebook by consensus, and refined the codebook throughout the coding process. Member checking was conducted to ensure credibility of findings. RESULTS: Three major themes served as parent nodes: health-care seeking behaviors, quality care, and TGD-specific health care experiences. Within these parent nodes there were 14 child nodes and 4 grand-child nodes. Subthemes for health care seeking behaviors included coverage and costs of care, convenience, trust/mistrust of provider, and provider recommendations for screening. Subthemes for quality of care included professionalism, clinical competence in transgender care, care coordination, provider communication, and patient self-advocacy. Overall, transgender men were less satisfied with care than transgender women. CONCLUSIONS: Results suggest a need for improved provider communication skills, including clear explanations of procedures and recommendations for appropriate screenings to TGD patients. Results also suggest a need for improved clinical knowledge and cultural competency. Respondents also wanted better care coordination and insurance navigation. Overall, these findings can inform health care improvements for TGD people.
Authors: Sarah M Peitzmeier; Madina Agénor; Ida M Bernstein; Michal McDowell; Natalie M Alizaga; Sari L Reisner; Dana J Pardee; Jennifer Potter Journal: Qual Health Res Date: 2017-08-24
Authors: Megan E Gandy; Kacie M Kidd; James Weiss; Judith Leitch; Xavier Hersom Journal: Int J Environ Res Public Health Date: 2021-12-02 Impact factor: 3.390