Literature DB >> 33605647

Comfort Needs of Cancer Family Caregivers in Outpatient Palliative Care.

Karla T Washington, Jacquelyn J Benson, Daphne E Chakurian, Lori L Popejoy, George Demiris, Abigail J Rolbiecki, Debra Parker Oliver.   

Abstract

Rapid expansion of outpatient palliative care has been fueled by the growing number of people living with cancer and other chronic illnesses whose symptoms are largely managed in the community rather than inpatient settings. Nurses and other palliative care professionals support seriously ill patients and their families, yet little research has specifically examined the needs of cancer family caregivers receiving services from outpatient palliative care teams. To address this gap in the knowledge base, researchers conducted a reflective thematic analysis of qualitative interviews conducted with 39 family caregivers, using Comfort Theory as a theoretical guide. Seven themes describing caregivers' comfort needs were identified, including the need to understand, need for self-efficacy, need to derive meaning, need for informal support, need for formal support, need for resources, and need for self-care. Findings have clear implications for palliative nursing, as they directly address cancer family caregivers' needs in 5 of the 8 domains of care delineated by the National Consensus Project for Quality Palliative Care's Clinical Practice Guidelines. Comprehensive, holistic nursing assessment is suggested to identify family caregivers' needs and plan for delivery of evidence-based interventions shown to decrease burden and improve quality of life.
Copyright © 2021 by The Hospice and Palliative Nurses Association. All rights reserved.

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Year:  2021        PMID: 33605647      PMCID: PMC8084891          DOI: 10.1097/NJH.0000000000000744

Source DB:  PubMed          Journal:  J Hosp Palliat Nurs        ISSN: 1522-2179            Impact factor:   2.131


  20 in total

1.  Comfort Theory: a unifying framework to enhance the practice environment.

Authors:  Katharine Kolcaba; Colette Tilton; Carol Drouin
Journal:  J Nurs Adm       Date:  2006-11       Impact factor: 1.737

2.  The self-care practices of family caregivers of persons with poor prognosis cancer: differences by varying levels of caregiver well-being and preparedness.

Authors:  J Nicholas Dionne-Odom; Wendy Demark-Wahnefried; Richard A Taylor; Gabrielle B Rocque; Andres Azuero; Aras Acemgil; Michelle Y Martin; Meka Astin; Deborah Ejem; Elizabeth Kvale; Karen Heaton; Maria Pisu; Edward E Partridge; Marie A Bakitas
Journal:  Support Care Cancer       Date:  2017-03-01       Impact factor: 3.603

Review 3.  A review of family caregiving intervention trials in oncology.

Authors:  Betty Ferrell; Elaine Wittenberg
Journal:  CA Cancer J Clin       Date:  2017-03-20       Impact factor: 508.702

Review 4.  Palliative Care for Family Caregivers.

Authors:  Sorayya Alam; Breffni Hannon; Camilla Zimmermann
Journal:  J Clin Oncol       Date:  2020-02-05       Impact factor: 44.544

Review 5.  The financial burden and distress of patients with cancer: Understanding and stepping-up action on the financial toxicity of cancer treatment.

Authors:  Pricivel M Carrera; Hagop M Kantarjian; Victoria S Blinder
Journal:  CA Cancer J Clin       Date:  2018-01-16       Impact factor: 508.702

Review 6.  Patient- and Caregiver-Reported Assessment Tools for Palliative Care: Summary of the 2017 Agency for Healthcare Research and Quality Technical Brief.

Authors:  Rebecca A Aslakson; Sydney M Dy; Renee F Wilson; Julie Waldfogel; Allen Zhang; Sarina R Isenberg; Alex Blair; Joshua Sixon; Karl A Lorenz; Karen A Robinson
Journal:  J Pain Symptom Manage       Date:  2017-08-15       Impact factor: 3.612

7.  Racial variation in the cancer caregiving experience: a multisite study of colorectal and lung cancer caregivers.

Authors:  Michelle Y Martin; Sara Sanders; Joan M Griffin; Robert A Oster; Christine Ritchie; Sean M Phelan; Audie A Atienza; Katherine Kahn; Michelle van Ryn
Journal:  Cancer Nurs       Date:  2012 Jul-Aug       Impact factor: 2.592

8.  Conducting secondary analysis of qualitative data: Should we, can we, and how?

Authors:  Nicole Ruggiano; Tam E Perry
Journal:  Qual Soc Work       Date:  2017-04-14

9.  Delivering problem-solving therapy to family caregivers of people with cancer: A feasibility study in outpatient palliative care.

Authors:  Karla T Washington; George Demiris; Debra Parker Oliver; David L Albright; Kevin W Craig; Paul Tatum
Journal:  Psychooncology       Date:  2018-08-31       Impact factor: 3.894

10.  Impact of informal cancer caregiving across the cancer experience: A systematic literature review of quality of life.

Authors:  Carol Y Ochoa; Natasha Buchanan Lunsford; Judith Lee Smith
Journal:  Palliat Support Care       Date:  2020-04
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