Literature DB >> 33604588

The Importance of Starting With Goals in N-of-1 Studies.

Sean A Munson1, Jessica Schroeder2, Ravi Karkar2, Julie A Kientz1, Chia-Fang Chung3, James Fogarty2.   

Abstract

N-of-1 tools offer the potential to support people in monitoring health and identifying individualized health management strategies. We argue that elicitation of individualized goals and customization of tracking to support those goals are a critical yet under-studied and under-supported aspect of self-tracking. We review examples of self-tracking from across a range of chronic conditions and self-tracking designs (e.g., self-monitoring, correlation analyses, self-experimentation). Together, these examples show how failure to elicit goals can lead to ineffective tracking routines, breakdowns in collaboration (e.g., between patients and providers, among families), increased burdens, and even designs that encourage behaviors counter to a person's goals. We discuss potential techniques for eliciting and refining goals, scaffolding an appropriate tracking routine based on those goals, and presenting results in ways that advance individual goals while preserving individual agency. We then describe open challenges, including how to reconcile competing goals and support evolution of goals over time.

Entities:  

Keywords:  N-of-1; goals; patient-centered; self-experiment; self-monitoring; self-tracking

Year:  2020        PMID: 33604588      PMCID: PMC7889002          DOI: 10.3389/fdgth.2020.00003

Source DB:  PubMed          Journal:  Front Digit Health        ISSN: 2673-253X


  16 in total

1.  Barriers and Negative Nudges: Exploring Challenges in Food Journaling.

Authors:  Felicia Cordeiro; Daniel A Epstein; Edison Thomaz; Elizabeth Bales; Arvind K Jagannathan; Gregory D Abowd; James Fogarty
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2015-04

Review 2.  Food: the forgotten factor in the irritable bowel syndrome.

Authors:  Shanti Eswaran; Jan Tack; William D Chey
Journal:  Gastroenterol Clin North Am       Date:  2011-03       Impact factor: 3.806

3.  Supporting Patient-Provider Collaboration to Identify Individual Triggers using Food and Symptom Journals.

Authors:  Jessica Schroeder; Jane Hoffswell; Chia-Fang Chung; James Fogarty; Sean Munson; Jasmine Zia
Journal:  CSCW Conf Comput Support Coop Work       Date:  2017-02-25

4.  TummyTrials: A Feasibility Study of Using Self-Experimentation to Detect Individualized Food Triggers.

Authors:  Ravi Karkar; Jessica Schroeder; Daniel A Epstein; Laura R Pina; Jeffrey Scofield; James Fogarty; Julie A Kientz; Sean A Munson; Roger Vilardaga; Jasmine Zia
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2017-05-02

5.  Reconsidering the Device in the Drawer: Lapses as a Design Opportunity in Personal Informatics.

Authors:  Daniel A Epstein; Jennifer H Kang; Laura R Pina; James Fogarty; Sean A Munson
Journal:  Proc ACM Int Conf Ubiquitous Comput       Date:  2016-09-12

6.  Boundary Negotiating Artifacts in Personal Informatics: Patient-Provider Collaboration with Patient-Generated Data.

Authors:  Chia-Fang Chung; Kristin Dew; Allison Cole; Jasmine Zia; James Fogarty; Julie A Kientz; Sean A Munson
Journal:  CSCW Conf Comput Support Coop Work       Date:  2016-02-27

7.  A framework for self-experimentation in personalized health.

Authors:  Ravi Karkar; Jasmine Zia; Roger Vilardaga; Sonali R Mishra; James Fogarty; Sean A Munson; Julie A Kientz
Journal:  J Am Med Inform Assoc       Date:  2015-12-07       Impact factor: 4.497

8.  More Than Telemonitoring: Health Provider Use and Nonuse of Life-Log Data in Irritable Bowel Syndrome and Weight Management.

Authors:  Chia-Fang Chung; Jonathan Cook; Elizabeth Bales; Jasmine Zia; Sean A Munson
Journal:  J Med Internet Res       Date:  2015-08-21       Impact factor: 5.428

9.  Patient-driven N-of-1 in Parkinson's Disease. Lessons Learned from a Placebo-controlled Study of the Effect of Nicotine on Dyskinesia.

Authors:  Sara Riggare; Kenton T Unruh; Jasmine Sturr; Josefa Domingos; Jonathan A Stamford; Per Svenningsson; Maria Hägglund
Journal:  Methods Inf Med       Date:  2017-10-24       Impact factor: 2.176

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  2 in total

1.  Involving Crowdworkers with Lived Experience in Content-Development for Push-Based Digital Mental Health Tools: Lessons Learned from Crowdsourcing Mental Health Messages.

Authors:  Rachel Kornfield; David C Mohr; Rachel Ranney; Emily G Lattie; Jonah Meyerhoff; Joseph J Williams; Madhu Reddy
Journal:  Proc ACM Hum Comput Interact       Date:  2022-04-07

2.  Understanding self-monitoring to inform a mobile intervention for binge eating and weight management: A proof-of-concept randomized trial.

Authors:  Jianyi Liu; Sean A Munson; Angela Chang; Claire Voss; Andrea K Graham
Journal:  Int J Eat Disord       Date:  2022-03-12       Impact factor: 5.791

  2 in total

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