Literature DB >> 33580448

Patient-reported outcomes and the identification of subgroups of atrial fibrillation patients: a retrospective cohort study of linked clinical registry and administrative data.

Jae-Yung Kwon1,2, Richard Sawatzky3,4,5, Jennifer Baumbusch6, Pamela A Ratner7.   

Abstract

PURPOSE: Previous research about the health and quality of life of people with atrial fibrillation has typically identified a single health trajectory. Our study aimed to examine variability in health trajectories and patient characteristics associated with such variability.
METHODS: We conducted a retrospective analysis of data collected between 2008 and 2016 for a cardiac registry in British Columbia (Canada) linked with administrative health data. The Atrial Fibrillation Effect on Quality of Life Questionnaire was used to measure health status at up to 10 clinic visits. Growth mixture models were used and a three-step multinomial logistic regression was conducted to identify predictors of subgroups with different trajectories.
RESULTS: The patients (N = 7439) were primarily men (61.1%) over 60 years of age (72.9%). Three subgroups of health status trajectories were identified: "poor but improving", "good and stable", and "excellent and stable" health. Compared with the other two groups, patients in the "poor but improving group" were more likely to (1) be less than 60 years of age; (2) be women; (3) have greater risk of stroke; (4) have had ablation therapy within 6 months to 1 year or more than 2 years after their initial consultation; and (5) have had anticoagulation therapy within 6 months.
CONCLUSION: Using growth mixture models, we found that not all health trajectories are the same. These models can help to understand variability in trajectories with different patient characteristics that could inform tailored interventions and patient education strategies.

Entities:  

Keywords:  Atrial fibrillation; Clinical registry; Patient-reported outcomes; Trajectories

Year:  2021        PMID: 33580448     DOI: 10.1007/s11136-021-02777-6

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   4.147


  29 in total

Review 1.  Symptoms and functional status of patients with atrial fibrillation: state of the art and future research opportunities.

Authors:  Michiel Rienstra; Steven A Lubitz; Saagar Mahida; Jared W Magnani; João D Fontes; Moritz F Sinner; Isabelle C Van Gelder; Patrick T Ellinor; Emelia J Benjamin
Journal:  Circulation       Date:  2012-06-12       Impact factor: 29.690

2.  ACC/AHA/STS Statement on the Future of Registries and the Performance Measurement Enterprise: A Report of the American College of Cardiology/American Heart Association Task Force on Performance Measures and The Society of Thoracic Surgeons.

Authors:  Deepak L Bhatt; Joseph P Drozda; David M Shahian; Paul S Chan; Gregg C Fonarow; Paul A Heidenreich; Jeffrey P Jacobs; Frederick A Masoudi; Eric D Peterson; Karl F Welke
Journal:  J Am Coll Cardiol       Date:  2015-10-02       Impact factor: 24.094

3.  Harmonized outcome measures for use in atrial fibrillation patient registries and clinical practice: Endorsed by the Heart Rhythm Society Board of Trustees.

Authors:  Hugh Calkins; Richard E Gliklich; Michelle B Leavy; Jonathan P Piccini; Jonathan C Hsu; Sanghamitra Mohanty; William Lewis; Saman Nazarian; Mintu P Turakhia
Journal:  Heart Rhythm       Date:  2018-11-16       Impact factor: 6.343

4.  Sex is associated with differences in individual trajectories of change in social health after implantable cardioverter-defibrillator.

Authors:  Sandra B Lauck; Richard Sawatzky; Joy L Johnson; Karin Humphries; Matthew T Bennett; Santabhanu Chakrabarti; Charles R Kerr; Stanley Tung; John A Yeung-Lai-Wah; Pamela A Ratner
Journal:  Circ Cardiovasc Qual Outcomes       Date:  2015-02-24

5.  Patient reported outcome measures could help transform healthcare.

Authors:  Nick Black
Journal:  BMJ       Date:  2013-01-28

6.  Patient-reported outcomes: A new era in clinical research.

Authors:  Prasanna R Deshpande; Surulivel Rajan; B Lakshmi Sudeepthi; C P Abdul Nazir
Journal:  Perspect Clin Res       Date:  2011-10

7.  PROMs data: can it be used to make decisions for individual patients? A narrative review.

Authors:  Jonathan Field; Michelle M Holmes; Dave Newell
Journal:  Patient Relat Outcome Meas       Date:  2019-07-29

8.  The impact of patient-reported outcome (PRO) data from clinical trials: a systematic review and critical analysis.

Authors:  Samantha Cruz Rivera; Derek G Kyte; Olalekan Lee Aiyegbusi; Anita L Slade; Christel McMullan; Melanie J Calvert
Journal:  Health Qual Life Outcomes       Date:  2019-10-16       Impact factor: 3.186

9.  The association between patterns of atrial fibrillation, anticoagulation, and cardiovascular events.

Authors:  Dan Atar; Eivind Berge; Jean-Yves Le Heuzey; Saverio Virdone; A John Camm; Jan Steffel; Harry Gibbs; Samuel Z Goldhaber; Shinya Goto; Gloria Kayani; Frank Misselwitz; Janina Stepinska; Alexander G G Turpie; Jean-Pierre Bassand; Ajay K Kakkar
Journal:  Europace       Date:  2020-02-01       Impact factor: 5.214

10.  Real-world data and the patient perspective: the PROmise of social media?

Authors:  Laura McDonald; Bill Malcolm; Sreeram Ramagopalan; Hayley Syrad
Journal:  BMC Med       Date:  2019-01-16       Impact factor: 8.775

View more
  2 in total

1.  Growth mixture models: a case example of the longitudinal analysis of patient-reported outcomes data captured by a clinical registry.

Authors:  Jae-Yung Kwon; Richard Sawatzky; Jennifer Baumbusch; Sandra Lauck; Pamela A Ratner
Journal:  BMC Med Res Methodol       Date:  2021-04-21       Impact factor: 4.615

2.  Age-dependency of EHRA improvement based on quality of life at diagnosis of atrial fibrillation.

Authors:  Luc J H J Theunissen; Henricus-Paul Cremers; Dennis van Veghel; Pepijn H van der Voort; Peter E Polak; Sylvie F A M S de Jong; Geert Smits; Jos Dijkmans; Hareld M C Kemps; Lukas R C Dekker; Jeroen A A van de Pol
Journal:  J Arrhythm       Date:  2022-01-10
  2 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.