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Literature DB >> 3354744

Characteristics influencing informed consent on a congenital malformations registry.

C Law¹, M O Robertson, S R Panny, L M Wulff.

Abstract

Maryland law requires that all babies born with "sentinel birth defects" be reported to the State Department of Health, but mothers may deny consent for further contact. Consent was not strongly related to maternal age, race, or self-reported data on exposures, smoking, and drugs but was much less likely if the infant was dead. Selection bias in congenital malformations research may lead to underrepresentation of lethal defects, but self-reported data appear to be unbiased.

Entities: Disease Species

Keywords: Biomedical and Behavioral Research; Empirical Approach; Maryland Birth Defects Reporting and Information System (BDRIS)

Mesh：

Year: 1988 PMID： 3354744 PMCID： PMC1349343 DOI： 10.2105/ajph.78.5.572

Source DB: PubMed Journal: Am J Public Health ISSN： 0090-0036 Impact factor: 9.308

7 in total

1 in total

1. The effects of opt-out legislation on data collection and surveillance of birth defects by the New Hampshire Birth Conditions Program, New Hampshire, United States, 2007-2009.

Authors: Simerpal Gill; Stephanie Miller; Cheryl Broussard; Jennita Reefhuis
Journal: J Registry Manag Date: 2012

1 in total

Characteristics influencing informed consent on a congenital malformations registry.

1. Statistical aspects of the analysis of data from retrospective studies of disease.

2. Response bias and risk ratios in epidemiologic studies.

3. Informed consent as a form of volunteer bias.

4. Investigation of nonresponse bias in NHANES II.

5. Exposure to anaesthetic gases and spontaneous abortion: response bias in a postal questionnaire study.

6. Bias due to non-participation and heterogenous sub-groups in population surveys.

7. Bias resulting from using the card-back system to contact patients in an epidemiologic study.

1. The effects of opt-out legislation on data collection and surveillance of birth defects by the New Hampshire Birth Conditions Program, New Hampshire, United States, 2007-2009.