Literature DB >> 33546723

A comparison of self-reported and proxy-reported health utilities in children: a systematic review and meta-analysis.

Aixia Ma1,2, Pingyu Chen3,4, Mingyu Jiang5, Yue Ma5, Minghui Li6, Rui Meng5.   

Abstract

OBJECTIVE: This study aimed to conduct a systematic review and meta-analysis to compare differences in health utilities (HUs) assessed by self and proxy respondents in children, as well as to evaluate the effects of health conditions, valuation methods, and proxy types on the differences.
METHODS: Eligible studies published in PubMed, Embase, Web of Science, and Cochrane Library up to December 2019 were identified according to PRISMA guidelines. Meta-analyses were performed to calculate the weighted mean differences (WMDs) in HUs between proxy- versus self-reports. Mixed-effects meta-regressions were applied to explore differences in WMDs among each health condition, valuation method and proxy type.
RESULTS: A total of 30 studies were finally included, comprising 211 pairs of HUs assessed by 15,294 children and 16,103 proxies. This study identified 34 health conditions, 10 valuation methods, and 3 proxy types. In general, proxy-reported HUs were significantly different from those assessed by children themselves, while the direction and magnitude of these differences were inconsistent regarding health conditions, valuation methods, and proxy types. Meta-regression demonstrated that WMDs were significantly different in patients with ear diseases relative to the general population; in those measured by EQ-5D, Health utility index 2 (HUI2), and Pediatric asthma health outcome measure relative to Visual analogue scale method; while were not significantly different in individuals adopting clinician-proxy and caregiver-proxy relative to parent-proxy.
CONCLUSION: Divergence existed in HUs between self and proxy-reports. Our findings highlight the importance of selecting appropriate self and/or proxy-reported HUs in health-related quality of life measurement and economic evaluations.

Entities:  

Keywords:  Children; Health utility; Meta-analysis; Proxy; Quality of life

Mesh:

Year:  2021        PMID: 33546723      PMCID: PMC7866432          DOI: 10.1186/s12955-021-01677-0

Source DB:  PubMed          Journal:  Health Qual Life Outcomes        ISSN: 1477-7525            Impact factor:   3.186


  51 in total

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Authors:  Ligia Fu; Danielle Talsma; Fulgencio Baez; Miguel Bonilla; Belgica Moreno; Maria Ah-Chu; Armando Pena; William Furlong; Ronald D Barr
Journal:  J Pediatr Hematol Oncol       Date:  2006-06       Impact factor: 1.289

Review 2.  Health status utilities in pediatrics: a systematic review of acute lymphoblastic leukemia.

Authors:  Raphaële R L van Litsenburg; Annemieke Kunst; Jaap Huisman; Johannes C F Ket; Gertjan J L Kaspers; Reinoud J B J Gemke
Journal:  Med Decis Making       Date:  2013-07-25       Impact factor: 2.583

3.  Does anthropometric and fitness parameters mediate the effect of exercise on the HRQoL of overweight and obese children/adolescents?

Authors:  Miguel A Perez-Sousa; Pedro R Olivares; Antonio Garcia-Hermoso; Narcis Gusi
Journal:  Qual Life Res       Date:  2018-06-08       Impact factor: 4.147

4.  Measurement of quality of well being in a child and adolescent cystic fibrosis population.

Authors:  D I Czyzewski; M J Mariotto; L K Bartholomew; S H LeCompte; M M Sockrider
Journal:  Med Care       Date:  1994-09       Impact factor: 2.983

5.  Evaluation of health status and health-related quality of life in a cohort of Italian children following treatment for a primary brain tumor.

Authors:  Chiara Cardarelli; Cinzia Cereda; Lucia Masiero; Elisabetta Viscardi; Roberto Faggin; Annamaria Laverda; Gianni Bisogno; Giorgio Perilongo
Journal:  Pediatr Blood Cancer       Date:  2006-05-01       Impact factor: 3.167

6.  Health utilities for children and adults with type 1 diabetes.

Authors:  Joyce M Lee; Kirsten Rhee; Michael J O'grady; Anirban Basu; Aaron Winn; Priya John; David O Meltzer; Craig Kollman; Lori M Laffel; Jean M Lawrence; William V Tamborlane; Tim Wysocki; Dongyuan Xing; Elbert S Huang
Journal:  Med Care       Date:  2011-10       Impact factor: 2.983

7.  Preference-based measurement of health-related quality of life (HRQL) in children with chronic musculoskeletal disorders (MSKDs).

Authors:  H I Brunner; D Maker; B Grundland; N L Young; V Blanchette; A M Stain; B M Feldman
Journal:  Med Decis Making       Date:  2003 Jul-Aug       Impact factor: 2.583

8.  Self and proxy-reported health status and health-related quality of life in survivors of childhood cancer in Uruguay.

Authors:  Mark Fluchel; John R Horsman; William Furlong; Luis Castillo; Yasmine Alfonz; Ronald D Barr
Journal:  Pediatr Blood Cancer       Date:  2008-04       Impact factor: 3.167

9.  Cochrane methods--twenty years experience in developing systematic review methods.

Authors:  Jackie Chandler; Sally Hopewell
Journal:  Syst Rev       Date:  2013-09-20

10.  Serious child and adolescent behaviour disorders; a valuation study by professionals, youth and parents.

Authors:  Karin M Vermeulen; Daniëlle E M C Jansen; Erik Buskens; Erik J Knorth; Sijmen A Reijneveld
Journal:  BMC Psychiatry       Date:  2017-06-02       Impact factor: 3.630

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  3 in total

1.  Measuring health-related quality of life measures in children: lessons from a pilot study.

Authors:  Sarah Abraham; Elisabeth Edginton; David Cottrell; Sandy Tubeuf
Journal:  Res Psychother       Date:  2022-05-09

2.  'Like holding the axe on who should live or not': adolescents' and adults' perceptions of valuing children's health states using a standardised valuation protocol for the EQ-5D-Y-3L.

Authors:  Mimmi Åström; Helen Conte; Jenny Berg; Kristina Burström
Journal:  Qual Life Res       Date:  2022-02-24       Impact factor: 3.440

3.  Are We Agreed? Self- Versus Proxy-Reporting of Paediatric Health-Related Quality of Life (HRQoL) Using Generic Preference-Based Measures: A Systematic Review and Meta-Analysis.

Authors:  Diana Khanna; Jyoti Khadka; Christine Mpundu-Kaambwa; Kiri Lay; Remo Russo; Julie Ratcliffe
Journal:  Pharmacoeconomics       Date:  2022-08-23       Impact factor: 4.558

  3 in total

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