Literature DB >> 33543680

Perceived Effects of Neuropsychiatric Symptoms on Functional Status in Early-stage Huntington Disease.

Jessie S Gibson1, Bethany A Rhoten2, Sheila H Ridner2, Daniel O Claassen3.   

Abstract

Neuropsychiatric symptoms in Huntington disease (HD) are commonly encountered, but their effects on functional status are poorly understood. In this qualitative study guided by the Theory of Unpleasant Symptoms, 15 HD patients and caregivers completed semi-structured interviews regarding perceived effects of neuropsychiatric symptoms on functional status. Physical, cognitive, and social functional effects were reported, with negative effects on daily activities and social withdrawal being reported by the greatest number of subjects. Participants also reported improved function with intervention for neuropsychiatric symptoms. This study provides a novel description of the lived experiences of HD patients with neuropsychiatric symptoms.

Entities:  

Keywords:  ADL; Huntington disease; behavioral symptom; qualitative research; social participation

Mesh：

Year:  2021        PMID： 33543680      PMCID： PMC9163773          DOI： 10.1177/0193945921992545

Source DB:  PubMed          Journal:  West J Nurs Res        ISSN： 0193-9459            Impact factor:   1.774


  30 in total

1.  Qualitative research in health psychology: developments and directions.

Authors:  M Murray; K Chamberlain
Journal:  J Health Psychol       Date:  1998-07

2.  Couples' coping in prodromal Huntington disease: a mixed methods study.

Authors:  Nancy R Downing; Janet K Williams; Anne L Leserman; Jane S Paulsen
Journal:  J Genet Couns       Date:  2012-01-26       Impact factor: 2.537

3.  The qualitative content analysis process.

Authors:  Satu Elo; Helvi Kyngäs
Journal:  J Adv Nurs       Date:  2008-04       Impact factor: 3.187

4.  Identification of health-related quality of life (HRQOL) issues relevant to individuals with Huntington disease.

Authors:  Noelle E Carlozzi; David S Tulsky
Journal:  J Health Psychol       Date:  2012-03-16

5.  Communication and Huntington's disease: qualitative interviews and focus groups with persons with Huntington's disease, family members, and carers.

Authors:  Lena Hartelius; Maria Jonsson; Anneli Rickeberg; Katja Laakso
Journal:  Int J Lang Commun Disord       Date:  2010 May-Jun       Impact factor: 3.020

6.  An exploration of the experience of Huntington's disease in family dyads: an interpretative phenomenological analysis.

Authors:  Caroline Maxted; Jane Simpson; Stephen Weatherhead
Journal:  J Genet Couns       Date:  2013-11-10       Impact factor: 2.537

7.  The emotional experiences of family carers in Huntington disease.

Authors:  Janet K Williams; Heather Skirton; Jane S Paulsen; Toni Tripp-Reimer; Lori Jarmon; Meghan McGonigal Kenney; Emily Birrer; Bonnie L Hennig; Joann Honeyford
Journal:  J Adv Nurs       Date:  2009-02-09       Impact factor: 3.187

8.  Patient-reported impact of symptoms in Huntington disease: PRISM-HD.

Authors:  Alistair M Glidden; Elizabeth A Luebbe; Molly J Elson; Steven B Goldenthal; Christopher W Snyder; Christine E Zizzi; E Ray Dorsey; Chad R Heatwole
Journal:  Neurology       Date:  2020-03-19       Impact factor: 9.910

9.  Huntington's disease from the patient, caregiver and physician's perspectives: three sides of the same coin?

Authors:  Krzysztof Banaszkiewicz; Emilia J Sitek; Monika Rudzińska; Witold Sołtan; Jarosław Sławek; Andrzej Szczudlik
Journal:  J Neural Transm (Vienna)       Date:  2012-03-08       Impact factor: 3.575

10.  Impact of Huntington's across the entire disease spectrum: the phases and stages of disease from the patient perspective.

Authors:  A K Ho; M B Hocaoglu
Journal:  Clin Genet       Date:  2011-08-04       Impact factor: 4.438
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  1 in total

Review 1.  Social Withdrawal in Huntington's Disease: A Scoping Review.

Authors:  Jessie S Gibson; Kristen Springer
Journal:  J Huntingtons Dis       Date:  2022
  1 in total

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