Marie-Pierre Gagnon1,2,3, Mylène Tantchou Dipankui1, Thomas G Poder4,5, Julie Payne-Gagnon1, Gisèle Mbemba1, Valentina Beretta6. 1. Faculté des sciences infirmières, Université Laval, Québec, Canada. 2. Centre de recherche du CHU de Québec-Université Laval, Québec, Canada. 3. Centre de recherche en santé durable VITAM, CIUSSS-Capitale Nationale, Québec, Canada. 4. Département de gestion, évaluation et politique de santé, École de Santé Publique de l'Université de Montréal, Université de Montréal, Montréal, Canada. 5. Centre de recherche de l'Institut universitaire en santé mentale de Montréal, CIUSSS de l'Est de l'Île de Montréal, Montréal, Canada. 6. Università degli Studi di Pavia, Pavia, Italy.
Abstract
OBJECTIVE: To summarize current evidence on patient and public involvement (PPI) in health technology assessment (HTA) in order to synthesize the barriers and facilitators, and to propose a framework to assess its impact. METHODS: We conducted an update of a systematic review published in 2011 considering the recent scientific literature (qualitative, quantitative, and mixed-methods studies). We searched papers published between March 2009 (end of the initial search) and December 2019 in five databases using specific search strategies. We identified other publications through citation tracking and contacting authors of previous related studies. Reviewers independently selected relevant studies based on prespecified inclusion and exclusion criteria. We extracted information using a pre-established grid. RESULTS: We identified a total of 7872 publications from the main search strategy. Ultimately, thirty-one distinct new studies met the inclusion criteria, whereas seventeen studies were included in the previous systematic review. PPI is realized through two main strategies: (i) patients and public members participate directly in decision-making processes (participation) and (ii) patients or public perspectives are solicited to inform decisions (consultation or indirect participation). This review synthesizes the barriers and facilitators to PPI in HTA, and a framework to assess its impact is proposed. CONCLUSION: The number of studies on patients or public involvement in HTA has dramatically increased in recent years. Findings from this updated systematic review show that PPI is done mostly through consultation and that direct involvement is less frequent. Several barriers to PPI in HTA exist, notably the lack of information to patients and public about HTA and the lack of guidance and policies to support PPI in HTA.
OBJECTIVE: To summarize current evidence on patient and public involvement (PPI) in health technology assessment (HTA) in order to synthesize the barriers and facilitators, and to propose a framework to assess its impact. METHODS: We conducted an update of a systematic review published in 2011 considering the recent scientific literature (qualitative, quantitative, and mixed-methods studies). We searched papers published between March 2009 (end of the initial search) and December 2019 in five databases using specific search strategies. We identified other publications through citation tracking and contacting authors of previous related studies. Reviewers independently selected relevant studies based on prespecified inclusion and exclusion criteria. We extracted information using a pre-established grid. RESULTS: We identified a total of 7872 publications from the main search strategy. Ultimately, thirty-one distinct new studies met the inclusion criteria, whereas seventeen studies were included in the previous systematic review. PPI is realized through two main strategies: (i) patients and public members participate directly in decision-making processes (participation) and (ii) patients or public perspectives are solicited to inform decisions (consultation or indirect participation). This review synthesizes the barriers and facilitators to PPI in HTA, and a framework to assess its impact is proposed. CONCLUSION: The number of studies on patients or public involvement in HTA has dramatically increased in recent years. Findings from this updated systematic review show that PPI is done mostly through consultation and that direct involvement is less frequent. Several barriers to PPI in HTA exist, notably the lack of information to patients and public about HTA and the lack of guidance and policies to support PPI in HTA.
Entities:
Keywords:
Consultation; Health technology assessment; Participation; Patient and public involvement; Systematic review
Authors: Janet L Wale; David Chandler; Deborah Collyar; Dominique Hamerlijnck; Roberto Saldana; Zack Pemberton-Whitely Journal: Front Med Technol Date: 2022-01-25
Authors: Maria Dimitrova; Ivett Jakab; Zornitsa Mitkova; Maria Kamusheva; Konstantin Tachkov; Bertalan Nemeth; Antal Zemplenyi; Dalia Dawoud; Diana M J Delnoij; François Houýez; Zoltan Kalo Journal: Front Public Health Date: 2022-07-28