Literature DB >> 33514374

A national survey of caregiver's own experiences and perceptions of U.S. health care system when addressing their health and caring for an older adult.

Jill C Slaboda1, Sandahl H Nelson2, Zia Agha2, Gregory J Norman3.   

Abstract

BACKGROUND: Caregiving is a demanding role that can negatively impact a person's health and well-being. As such, adequate access to health care is important for maintaining the family caregiver's own personal health. The aims of this study were to identify if family caregivers of older adults had more difficulty accessing health care services than non-caregivers and to identify if family caregivers felt access to additional services would be beneficial for maintaining their own personal health care.
METHODS: National survey of 3026 US adults aged 30 to 89 years old. Participants were grouped based on self-reported caregiving experience. Survey asked about access to care, importance of health care services and whether caregivers had support needed. Descriptive statistics were used to compare caregiver and non-caregiver's responses. Multivariate logistic regression model assessed correlates of caregivers not having the support they needed.
RESULTS: Caregivers were older, female, lower educational attainment, lower income, had more multiple chronic health conditions and health condition or disability that impacts their daily life. Caregivers reported difficulty accessing mental health services, dental services, medications, and supportive services at home. Caregivers felt it was important to have care coordinator, long-term relationship with primary care provider and access to house calls, telemedicine, and medications delivered to the home. Age, ethnicity, chronic conditions and confidence in finances were factors influencing whether caregiver had support needed to provide assistance to older care recipient.
CONCLUSION: Caregivers provide needed support and care to older adults while also needing support for themselves. Health care services delivered in the home were highly desirable to caregivers and could help them maintain their health and well-being.

Entities:  

Keywords:  Access to health care; And community care; Caregiver support; Family caregivers; Older adult

Mesh:

Year:  2021        PMID: 33514374      PMCID: PMC7846986          DOI: 10.1186/s12913-021-06086-z

Source DB:  PubMed          Journal:  BMC Health Serv Res        ISSN: 1472-6963            Impact factor:   2.655


  34 in total

Review 1.  Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis.

Authors:  Martin Pinquart; Silvia Sörensen
Journal:  Psychol Aging       Date:  2003-06

Review 2.  Cultural values and caregiving: the updated sociocultural stress and coping model.

Authors:  Bob G Knight; Philip Sayegh
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2009-11-24       Impact factor: 4.077

Review 3.  Systematic review of outcomes from home-based primary care programs for homebound older adults.

Authors:  Nathan Stall; Mark Nowaczynski; Samir K Sinha
Journal:  J Am Geriatr Soc       Date:  2014-11-04       Impact factor: 5.562

4.  Supporting Family Caregivers of Older Americans.

Authors:  Jennifer L Wolff; Judy Feder; Richard Schulz
Journal:  N Engl J Med       Date:  2016-12-29       Impact factor: 91.245

5.  Family and Other Unpaid Caregivers and Older Adults with and without Dementia and Disability.

Authors:  Catherine Riffin; Peter H Van Ness; Jennifer L Wolff; Terri Fried
Journal:  J Am Geriatr Soc       Date:  2017-04-20       Impact factor: 5.562

6.  Is there time for management of patients with chronic diseases in primary care?

Authors:  Truls Østbye; Kimberly S H Yarnall; Katrina M Krause; Kathryn I Pollak; Margaret Gradison; J Lloyd Michener
Journal:  Ann Fam Med       Date:  2005 May-Jun       Impact factor: 5.166

7.  Changing Structures and Processes to Support Family Caregivers of Seriously Ill Patients.

Authors:  Richard Schulz; Scott R Beach; Esther M Friedman; Grant R Martsolf; Juleen Rodakowski; A Everette James
Journal:  J Palliat Med       Date:  2017-11-01       Impact factor: 2.947

8.  Treatment outcomes in depression: comparison of remote treatment through telepsychiatry to in-person treatment.

Authors:  Paul E Ruskin; Michele Silver-Aylaian; Mitchel A Kling; Susan A Reed; Douglas D Bradham; J Richard Hebel; David Barrett; Frederick Knowles; Peter Hauser
Journal:  Am J Psychiatry       Date:  2004-08       Impact factor: 18.112

9.  Homebound Patient and Caregiver Perceptions of Quality of Care in Home-Based Primary Care: A Qualitative Study.

Authors:  Adi Shafir; Sarah K Garrigues; Yael Schenker; Bruce Leff; Jessica Neil; Christine Ritchie
Journal:  J Am Geriatr Soc       Date:  2016-07-07       Impact factor: 5.562

10.  The ideal healthcare: priorities of people with chronic conditions and their carers.

Authors:  Adem Sav; Sara S McMillan; Fiona Kelly; Michelle A King; Jennifer A Whitty; Elizabeth Kendall; Amanda J Wheeler
Journal:  BMC Health Serv Res       Date:  2015-12-14       Impact factor: 2.655

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