Literature DB >> 33479069

Developing services for long COVID: lessons from a study of wounded healers.

Emma Ladds1, Alex Rushforth2, Sietse Wieringa2, Sharon Taylor3, Clare Rayner4, Laiba Husain2, Trisha Greenhalgh2.   

Abstract

Persistent symptoms lasting longer than 3 weeks are thought to affect 10-20% of patients following SARS-CoV-2 infection. No formal guidelines exist in the UK for treating patients with long COVID and services are sporadic and variable, although additional funding is promised for their development.In this study, narrative interviews and focus groups are used to explore the lived experience of 43 healthcare professionals with long COVID. These individuals see the healthcare system from both professional and patient perspectives, thus represent an important wealth of expertise to inform service design.We present a set of co-designed quality standards, highlighting equity and ease of access, minimal patient care burden, clinical responsibility, a multidisciplinary and evidence-based approach, and patient involvement; and we apply these to propose a potential care pathway model that could be adapted and translated to improve care of patients long COVID. © Royal College of Physicians 2021. All rights reserved.

Entities:  

Keywords:  long COVID,; new service model; post-acute COVID-19; qualitative study; quality standards

Year:  2021        PMID: 33479069      PMCID: PMC7850205          DOI: 10.7861/clinmed.2020-0962

Source DB:  PubMed          Journal:  Clin Med (Lond)        ISSN: 1470-2118            Impact factor:   2.659


  13 in total

1.  From doctors as patients: a manifesto for tackling persisting symptoms of covid-19.

Authors:  Nisreen A Alwan; Emily Attree; Jennifer Mary Blair; Debby Bogaert; Mary-Ann Bowen; John Boyle; Madeleine Bradman; Tracy Ann Briggs; Sarah Burns; Daniel Campion; Katherine Cushing; Brendan Delaney; Chris Dixon; Grace E Dolman; Caitriona Dynan; Ian M Frayling; Nell Freeman-Romilly; Iulia Hammond; Jenny Judge; Linn Järte; Amali Lokugamage; Nathalie MacDermott; Mairi MacKinnon; Visita Majithia; Tanya Northridge; Laura Powell; Clare Rayner; Ginevra Read; Ekta Sahu; Claudia Shand; Amy Small; Cara Strachan; Jake Suett; Becky Sykes; Sharon Taylor; Kevin Thomas; Margarita Thomson; Alexis Wiltshire; Victoria Woods
Journal:  BMJ       Date:  2020-09-15

2.  Long-term Health Consequences of COVID-19.

Authors:  Carlos Del Rio; Lauren F Collins; Preeti Malani
Journal:  JAMA       Date:  2020-11-03       Impact factor: 56.272

3.  Management of post-acute covid-19 in primary care.

Authors:  Trisha Greenhalgh; Matthew Knight; Christine A'Court; Maria Buxton; Laiba Husain
Journal:  BMJ       Date:  2020-08-11

4.  Evidence based guidelines or collectively constructed "mindlines?" Ethnographic study of knowledge management in primary care.

Authors:  John Gabbay; Andrée le May
Journal:  BMJ       Date:  2004-10-30

5.  What happens when doctors are patients? Qualitative study of GPs.

Authors:  Fiona Fox; Michael Harris; Gordon Taylor; Karen Rodham; Jane Sutton; Brian Robinson; Jenny Scott
Journal:  Br J Gen Pract       Date:  2009-11       Impact factor: 5.386

6.  Self-doctoring: a qualitative study of physicians with cancer.

Authors:  Erik K Fromme; Randy S Hebert; Joseph A Carrese
Journal:  J Fam Pract       Date:  2004-04       Impact factor: 0.493

7.  Studying complexity in health services research: desperately seeking an overdue paradigm shift.

Authors:  Trisha Greenhalgh; Chrysanthi Papoutsi
Journal:  BMC Med       Date:  2018-06-20       Impact factor: 8.775

8.  Persistent symptoms after Covid-19: qualitative study of 114 "long Covid" patients and draft quality principles for services.

Authors:  Emma Ladds; Alex Rushforth; Sietse Wieringa; Sharon Taylor; Clare Rayner; Laiba Husain; Trisha Greenhalgh
Journal:  BMC Health Serv Res       Date:  2020-12-20       Impact factor: 2.655

9.  Persistent symptoms 1.5-6 months after COVID-19 in non-hospitalised subjects: a population-based cohort study.

Authors:  Knut Stavem; Waleed Ghanima; Magnus Kringstad Olsen; Hanne Margrethe Gilboe; Gunnar Einvik
Journal:  Thorax       Date:  2020-12-03       Impact factor: 9.139

10.  Relational coordination in interprofessional teams and its effect on patient-reported benefit and continuity of care: a prospective cohort study from rehabilitation centres in Western Norway.

Authors:  Merethe Hustoft; Eva Biringer; Sturla Gjesdal; Jörg Aβmus; Øystein Hetlevik
Journal:  BMC Health Serv Res       Date:  2018-09-17       Impact factor: 2.655

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  17 in total

1.  Finding your own way to manage patients with functional disorders.

Authors:  Anton Emmanuel
Journal:  Clin Med (Lond)       Date:  2021-01       Impact factor: 2.659

Review 2.  Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)-A Systemic Review and Comparison of Clinical Presentation and Symptomatology.

Authors:  Timothy L Wong; Danielle J Weitzer
Journal:  Medicina (Kaunas)       Date:  2021-04-26       Impact factor: 2.430

Review 3.  Frequency, signs and symptoms, and criteria adopted for long COVID-19: A systematic review.

Authors:  Ana Luiza Cabrera Martimbianco; Rafael Leite Pacheco; Ângela Maria Bagattini; Rachel Riera
Journal:  Int J Clin Pract       Date:  2021-06-02       Impact factor: 3.149

4.  Experiences of living with long COVID and of accessing healthcare services: a qualitative systematic review.

Authors:  Karen Macpherson; Kay Cooper; Jenny Harbour; Dawn Mahal; Charis Miller; Moray Nairn
Journal:  BMJ Open       Date:  2022-01-11       Impact factor: 3.006

5.  Burnout and long COVID among the UK nephrology workforce: results from a national survey investigating the impact of COVID-19 on working lives.

Authors:  Haresh Selvaskandan; Ailish Nimmo; Manuela Savino; Sarah Afuwape; Sarah Brand; Matthew Graham-Brown; James Medcalf; Paul Cockwell; Hannah Beckwith
Journal:  Clin Kidney J       Date:  2021-12-13

6.  Post-COVID-19 assessment in a specialist clinical service: a 12-month, single-centre, prospective study in 1325 individuals.

Authors:  Melissa Heightman; Jai Prashar; Toby E Hillman; Michael Marks; Rebecca Livingston; Heidi A Ridsdale; Robert Bell; Michael Zandi; Patricia McNamara; Alisha Chauhan; Emma Denneny; Ronan Astin; Helen Purcell; Emily Attree; Lyth Hishmeh; Gordon Prescott; Rebecca Evans; Puja Mehta; Ewen Brennan; Jeremy S Brown; Joanna Porter; Sarah Logan; Emma Wall; Hakim-Moulay Dehbi; Stephen Cone; Amitava Banerjee
Journal:  BMJ Open Respir Res       Date:  2021-11

7.  'I can't cope with multiple inputs': a qualitative study of the lived experience of 'brain fog' after COVID-19.

Authors:  Caitriona Callan; Emma Ladds; Laiba Husain; Kyle Pattinson; Trisha Greenhalgh
Journal:  BMJ Open       Date:  2022-02-11       Impact factor: 2.692

8.  Safety implications of remote assessments for suspected COVID-19: qualitative study in UK primary care.

Authors:  Sietse Wieringa; Ana Luisa Neves; Alexander Rushforth; Emma Ladds; Laiba Husain; Teresa Finlay; Catherine Pope; Trisha Greenhalgh
Journal:  BMJ Qual Saf       Date:  2022-03-08       Impact factor: 7.035

9.  ["Long-haul COVID": An opportunity to address the complexity of post-infectious functional syndromes].

Authors:  P Cathébras; J Goutte; B Gramont; M Killian
Journal:  Rev Med Interne       Date:  2021-06-09       Impact factor: 0.728

Review 10.  Health care workers' experiences during the COVID-19 pandemic: a scoping review.

Authors:  Souaad Chemali; Almudena Mari-Sáez; Charbel El Bcheraoui; Heide Weishaar
Journal:  Hum Resour Health       Date:  2022-03-24
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