Literature DB >> 33449294

Introduction to Endo-ERN-scope and mission.

Alberto M Pereira1, Olaf Hiort2.   

Abstract

The official installation of the European Reference Networks in 2017 formed the foundation to improve quality and safety and access to highly specialized health care across the EU for patients affected by rare or low prevalence and complex conditions. The European Reference Network on Rare Endocrine Conditions (Endo-ERN) covers specific expertise from birth to senescence with a specific governance structure characterized by both a pediatric and an adult chair, and equal responsibilities for patient representatives and health care providers. The introduction on the scope and mission of Endo describes the complexity of the Endo-ERN mission and will thrive toward the ultimate aim and mission of the network of reducing health care inequalities across Europe. Specific knowledge and medical expertise of the existing rare endocrine condition is urgently needed, and therefore, raising awareness for Rare Disease Day from the Endo-ERN perspective is imperative.

Entities:  

Keywords:  Endo-ERN; Endocrinology; Patient perspective; Rare disease

Mesh:

Year:  2021        PMID: 33449294      PMCID: PMC7809090          DOI: 10.1007/s12020-020-02602-z

Source DB:  PubMed          Journal:  Endocrine        ISSN: 1355-008X            Impact factor:   3.633


  1 in total

1.  ENDO-ERN ON RARE ENDOCRINE CONDITIONS: Endo-ERN in its fifth year: a pinch of care, science, curiosity and new horizons.

Authors:  Violeta Iotova; Jerome Bertherat; George Mastorakos; Olaf Hiort; Alberto M Pereira
Journal:  Endocr Connect       Date:  2022-03-24       Impact factor: 3.335

  1 in total

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